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Still waiting......

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sally43

Well-Known Member
After almost two weeks of waiting to find out if our son is a T1 or T2 diabetic I have finally manged to get someone who will answer a telephone. The general appointments switchboard at our local hospital is permanently engaged! However, I have now found that after the initial panic of being called to A&E following a bloodtest, with a sugar level of 24.3, they are quite happy to send him an appointment for 6-8 weeks! A very helpful young lady checked the records for me just now and said a doctor had looked at it and had said 'appointment for 6-8 weeks'! So, all my panicking and worrying was a bit silly if they don't actually consider it that much of a problem. I am, however, at a loss as what to encourage my son to do now. Would it be useful to try to keep a diary of his foods etc? He says he's often hungry and he's often tired too. Is information like that useful to the doc when he eventually sees one? Advice from you all previously was to cut down on the carbs so we are trying to do that. That makes so much more sense than the 'don't eat sugar' advice we got from A&E - bless them!

Any suggestions gratefully received! 🙂
 
Hi sally.

I would make an appointment with your GP and explain the situation, ask him/her to do a blood glucose test (finger prick and meter - result in 5 seconds) and ask him/her what is best to do.

If the BG is still at silly levels (high teens+) then I would ask the GP if they can escalate it or you'll contact the PCT to make a formal complaint but if his BG is perhaps in the low teens of below, it may be less urgent and you can just ask for interim advice.

It is very wrong to leave you floundering whatever the situation. Diabetes should never be kept as a medical secret to those who are medically trained. It's always self-managed, so we as individuals need to know full facts.🙂

Rob
 
oh Sally, that's rubbish!! If he's got bloods that high, surely they should be diagnosing him and treating him much quicker than 2 months!!!!

The thirst will be from his raised sugar levels, and the hunger (as I learnt from someone else today) is because the food isn't being turned into energy and so the body thinks it needs to eat (hope I've got that right).

Like you say, it would be useful to keep a track of what he's eating (the amount of carbs if possible) and probably how much he's drinking in a day. His moods are likely to be affected with high bloods and if you need to speed things up, I'd say this is a good thing to keep track of.

Have you got any way of testing his blood? (Or has he?)

Good luck and I really hope he gets an appt through much quicker than that - with bloods that high, he shouldn't be left.
 
Thank you so much for that advice. I now feel there is something positive we can do. All this dithering about is very worrying - especially for our son. Fortunately his mates are being quite supportive too and they can be seen huddled in a small group scrutinising the food labels in the supermarket with him..... honestly! All joking aside, being positive seems the best attitude.

Thank you for your support.
 
One positive that tends to come from it all is the realisation of how the body works and what 'healthy' really means. But beware of the myths and rumours. There is much money to be made from diabetes and healthy eating and there are many who try to sell to the unwary.😉:D

It's good that his mates are rallying round. It can be very lonely as a diabetic. 🙂

Rob
 
Given his dislike of needles, how adverse is he about getting a self-test blood glucose meter so he can test his own levels?

Self-testing is the best way of getting self-control of diabetes, even if you are not on insulin or other injectables.

Being hungry and tired could point to his levels still being far too high.
 
Breaking news!!!! Just had the diabetic nurse on the phone. She was the first person to answer her phone whe I was trying to contact people earlier on and gave me the number of the woman who told me the appointment was 6-8 weeks. However, she obviously investigated my son's cause and rang me just now. She feels that he is a likely T2 and wants to see him at 9.30am tomorrow! 🙂

I will let you know how he gets on. Thank you again.
 
Great news 🙂
 
sally43 said:
Breaking news!!!! Just had the diabetic nurse on the phone. She was the first person to answer her phone whe I was trying to contact people earlier on and gave me the number of the woman who told me the appointment was 6-8 weeks. However, she obviously investigated my son's cause and rang me just now. She feels that he is a likely T2 and wants to see him at 9.30am tomorrow! 🙂

I will let you know how he gets on. Thank you again.
Click to expand...

That's excellent news Sally! 🙂
 
Great news !

Hope you can get some sensible advice from them. Bear in mind, some still try to diagnose on age/weight but it requires a blood test for antibodies to properly diagnose.

Good luck. 🙂

Rob
 
At last!

Sorry youve had to fight for all this - it makes little sense to have to wait so long if they 'thought' he was T2 - if there was a chance of him being T1 it was plain dangerous!

Well done and hope you get this sorted out now 🙂
 
sally43 said:
Breaking news!!!! Just had the diabetic nurse on the phone. She was the first person to answer her phone whe I was trying to contact people earlier on and gave me the number of the woman who told me the appointment was 6-8 weeks. However, she obviously investigated my son's cause and rang me just now. She feels that he is a likely T2 and wants to see him at 9.30am tomorrow! 🙂

I will let you know how he gets on. Thank you again.
Click to expand...

excellent news Sally!!! please let us know how it all goes, and it's great you got to talk to someone who actually seemed to be pro-active and do something to help you. There are some good bods out there 🙂
 
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