So Confused

[Jo Millin]

I was diagnosed in 2004 with type 1 diabetes, this was due to having left my diabetes undiagnosed and ended up in intensive care with ketone acidosis I was 23 at the time and had lost over 4lb a week over 6 weeks.

After 12 years my new consultant has tested to see if my pancreas is still producing insulin and turn out it is. She is now telling me that I am type 2! She is still waiting on some more results coming back to confirm. I then mentioned that my brother has been diagnosed with LADA, she then told me there is no such thing. That type 1 doesn't produce insulin at all or you are type 2.

I am just very confused and not to mention upset, she seems to think that I know nothing about my or diabetes in general. I am worried that if they take me off my insulin my levels will go sky high and I will end up with another trip to the ICU. Has anyone come across this. I am tempted to email my old consultant to get his opinion.

I have read that type 1 can still produce small amounts of insulin for many years.

Thanks

 

[Robin]

Hi Jo and welcome to the forum. I thought it was a generally recognised thing that Type 1s often had some residual insulin production, (but I can't actually put my finger on any research, perhaps someone else can help me out. ) I should have thought that the details of how you came to be diagnosed should be in your medical records, and they don't suggest Type 2 at all. Has your new consultant read the whole file?
If your brother has been diagnosed with LADA, maybe your consultant should speak to the person who diagnosed him, and see what s/he says about it not existing!

 

[grovesy]

Welcome.I am with Robin on this.

 

[trophywench]

The Joslin Institute in Boston discovered it years ago Robin - I'll have a rummage.

 

[trophywench]

https://joslinresearch.org/message-from-the-director-of-research-chief-scientific-officer

Scroll down to the second para, last sentence of 'Extraordinary Teamwork'

I'm inclined to think the same as you, anyway Jo.

Plus https://www.idf.org/sites/default/files/attachments/article_5_en.pdf

an in depth article all about LADA from the IDF. What's the betting the ignorant woman hasn't even heard of them?

You can email them to your old consultant, asking him to forward them to her and explaining why!

Are you certain she's a consultant though and not just a Houseman? - and have you got a DSN you could talk to about her worrying lack of basic knowledge?