Small Fibre Sensory Neuropathy

[DarrenM]

Hello all,

At the age of 36 I was a fit healthy active person, by the age of 38 just 2 years, I became completely numb over 90% of my body, my hands, arms,legs, feet, face and forehead were giving me an incredible pain. I was put on high levels of morphine but my pain was still 8 out of 10. Fast forward to present day I'm in almost the same pain. It has always been put down to diabetic neuropathy, I can no longer walk, i sleep on the floor with no covers, I'm going blind, recently I've lost a lot of my hearing. My Neurosurgeon has in the last year has diagnosed me with Small Fibre Sensory Neuropathy. I can find very little on this condition, I wanted to find other people with this diagnosis. I would love to be someone's guinea pig and look more into my symptoms eg why did it come on so quick leaving me crippled and totally reliant on my wife who is my full time carer. Any feedback would be greatly appreciated, however I can only just about hold a stylus to type and I have to syc myself up each time I use my tablet to type.

Best Regards
Darren

 

[Toucan]

Hello Darren and welcome to the forum. You certainly have some very difficult problems to deal with. I don't personally have any knowledge or experience of your condition, but my heart goes out to you, and maybe someone else on the forum may know more about this.

 

[everydayupsanddowns]

Welcome to the forum @DarrenM

So sorry to hear about your problems with neuropathy. Must have been very difficult with it coming on so rapidly.

I’m not sure we have a member here with exactly the same condition, but we do have a few folks with various different experiences of neuropathy and nerve damage.

Is there any treatment other than pain management available? Or any chance of reducing your symptoms with blood glucose management?

 

[Ditto]

I'm so sorry Darren. I hope you can find some answers.