Hi all, bit of a long story here, but feel the background is important. I was diagnosed with T1D at the end of May - I'd lost loads of weight and ended up in hospital with DKA. On discharge I was put on fixed doses of insulin (Novorapid) for each meal, plus Lantus. I spoke to my nurse a week later, and she adjusted my doses, and I was unable to get in touch with her for another month. When we next spoke in July, she adjusted my doses again, and told me I'd been misdiagnosed and was actually T2 as I had no antibodies. I'd be able to come off insulin and could reverse the condition with diet and exercise. I questioned her about it - because I was severely underweight (my BMI was 15) and as far as I was aware, DKA isn't likely in T2. She was insistent that no, I was definitely T2. Having read up about antibodies not being present in 20-25% of people newly diagnosed T1, I called her back to check AGAIN and she said, no, you're definitely T2. So I was left feeling kind of confused - how could things have gone so wrong that a previously healthy and active thirty-something had developed T2, but also...oh great, I can reverse things...let's go low carb.
My physical and mental health started to go on a steep decline - because of the uncertainty and the worry about what had gone wrong in my body. I couldn't get in touch with the nurse - always busy or unavailable. I finally had a consultant appointment in August, and she was unaware that I'd been told I was T2, she said no, definitely T1. I hadn't been misdiagnosed, I'd been given dud info by the nurse. I was so upset that she'd toyed with my emotions like that.
Luckily, I have been able to change nurse, I saw her at the end of September and she is much better. I was told at that meeting that I would see the dietician at the start of December, to start carb counting so I had more flexibility with my eating. She said they like to wait six months with adult diagnoses to ensure the honeymoon period is over. Fine.
I have a history of disordered eating (and my team knows this). I am scared of being high (The irrational part of my mind sees being high as I've eaten too much.) I struggle with fixed doses because I feel very restricted with food. I am afraid to snack - sometimes I'll have a few nuts - I stick to very strict meal times, and eat more or less the same meals every day. I've not had the confidence to return to the gym, as I weight train and know this can make your sugars go high. I also have no idea how to adjust my insulin after exercise such as walking - which I know makes me much more insulin sensitive.
When I saw my nurse last week she told me I couldn't see the dietician in December ("it's messy" or something?!) so now, it might be January. I am just SO fed up with it all!!!!!! When I was diagnosed, the consultants tripped over themselves to tell me I'd live a normal life and yet here I am, six months later stuck on a rigid eating regime, and too scared to exercise properly because I don't know how to adjust my insulin to fit in with it.
I have been carb counting to the extent that I will take an extra unit if I want two pieces of toast instead of one with my soup, or if I want a banana instead of strawberries with my breakfast. But I don't have a clue what to do if I wanted say, a starter and main in a restaurant, or a particularly high fat meal that may take longer to digest.
A dietician won't solve my eating issues, and I don't need them to tell me how to carb count - my lifetime of eating issues means I know exactly what's in most food products - but I do need some advice on how to deal with possible high blood sugars after weight training, how correction doses should be accounted for when dosing for meals, how to adjust my doses if I've been out walking or doing cardio etc. And I was rather hoping I'd be able to have a cup of tea and a mince pie one afternoon over Christmas, but now that is out the flipping window. I'm just so sick of being fobbed off and given dud information!!
My physical and mental health started to go on a steep decline - because of the uncertainty and the worry about what had gone wrong in my body. I couldn't get in touch with the nurse - always busy or unavailable. I finally had a consultant appointment in August, and she was unaware that I'd been told I was T2, she said no, definitely T1. I hadn't been misdiagnosed, I'd been given dud info by the nurse. I was so upset that she'd toyed with my emotions like that.
Luckily, I have been able to change nurse, I saw her at the end of September and she is much better. I was told at that meeting that I would see the dietician at the start of December, to start carb counting so I had more flexibility with my eating. She said they like to wait six months with adult diagnoses to ensure the honeymoon period is over. Fine.
I have a history of disordered eating (and my team knows this). I am scared of being high (The irrational part of my mind sees being high as I've eaten too much.) I struggle with fixed doses because I feel very restricted with food. I am afraid to snack - sometimes I'll have a few nuts - I stick to very strict meal times, and eat more or less the same meals every day. I've not had the confidence to return to the gym, as I weight train and know this can make your sugars go high. I also have no idea how to adjust my insulin after exercise such as walking - which I know makes me much more insulin sensitive.
When I saw my nurse last week she told me I couldn't see the dietician in December ("it's messy" or something?!) so now, it might be January. I am just SO fed up with it all!!!!!! When I was diagnosed, the consultants tripped over themselves to tell me I'd live a normal life and yet here I am, six months later stuck on a rigid eating regime, and too scared to exercise properly because I don't know how to adjust my insulin to fit in with it.
I have been carb counting to the extent that I will take an extra unit if I want two pieces of toast instead of one with my soup, or if I want a banana instead of strawberries with my breakfast. But I don't have a clue what to do if I wanted say, a starter and main in a restaurant, or a particularly high fat meal that may take longer to digest.
A dietician won't solve my eating issues, and I don't need them to tell me how to carb count - my lifetime of eating issues means I know exactly what's in most food products - but I do need some advice on how to deal with possible high blood sugars after weight training, how correction doses should be accounted for when dosing for meals, how to adjust my doses if I've been out walking or doing cardio etc. And I was rather hoping I'd be able to have a cup of tea and a mince pie one afternoon over Christmas, but now that is out the flipping window. I'm just so sick of being fobbed off and given dud information!!
Last edited:
