Should more have been done?

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Kaybe

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Hi, I best explain the background first. My mum was type 2 diabetic on Novomix insulin and went into a nursing home for a months respite last September as I was struggling to look after both her and my dad, he had vascular dementia. My mum walked in under her own steam, was perfectly compos mentis although she had recently been diagnosed with Alzheimers.
To cut a long story short within 2 weeks she was bedbound and doubly incontinent, very confused and extremely paranoid. I went in to see her and inquired about her blood sugar readings as they were always up and down, and I just wanted to see how they were managing. I was told they had been really high, the last reading being 31.2 mmol (the two previous readings were 30.0 and 26.8) They said they were waiting for the GP to call them back. Meanwhile they were giving her snacks of biscuits (diabetic they made sure to point out when I queried why they were doing that)
This was Monday 12th of September when they called the GP. When she called them back she told them to monitor her glucose levels and her meals and she would call back on Thursday. I am most definitely not an expert on diabetes, my mum managed everything herself and I only got involved in the last couple of years when she was a bit forgetful. However, I did have an episode where her blood was registering HI and we ended up calling the ambulance. She was admitted to hospital for two weeks with ketoacidosis, but this was sometime before this. Up until this she had only ever had hypos, I didn't realise how dangerous hypers could be.
I'm not asking anyone to say the Dr was negligent, but now I'm querying whether she should have been sent straight to hospital. What also makes me question this is the nursing home can't provide me with the blood glucose chart for the week starting 13th Sept -19th Sept.
My mum changed over this time, she was totally confused and very paranoid. At one point I suggested she may have a urine infection as she was acting so strangely. I wonder if the prolonged high blood sugar may have cause something to happen in her brain? She really never was the same again. When eventually she came out (took two extra weeks to get equipment, hospital bed, hoist and a full care plan as she never walked again, struggled to even feed herself) she wasn't well. Soon after she was diagnosed with cancer in her lungs, lymph nodes and liver and died in December. I am writing up a complaint about the nursing home but I also wondered if the Dr was at fault, does high blood glucose always cause ketoacidosis? Could she tell if my mum was suffering from that simply by asking the staff questions over the phone?
I'm just trying to understand, I'm asking the experts. Thank you in advance, K
 
So sorry to hear about your mum @Kaybe It must be very difficult, especially with the concern you have about her treatment. You might want to give Diabetes U.K. a call tomorrow as they might know about procedures for nursing homes and care homes. Their number is top right of the page.

In my non-medical opinion, as she’d had DKA before (ketoacidosis) that should have been kept in mind when her blood sugar got high in the Home. Did they test her urine for ketones? With high blood sugar, she could indeed have had a UTI and/or been dehydrated. Both those things can cause behavioural changes.

The missing blood glucose chart sounds very poor. Did they record her insulin doses? Did she have a diet plan eg meal times and carb amounts?

I don’t think prolonged high blood sugar can affect the brain afterwards. As she sadly had cancer, could that have had an effect on her brain with undiscovered secondary cancers? I don’t know. I will say that with Alzheimer’s, sometimes people can decline suddenly. Perhaps it was a combination of a number of different things?

Sending you love on your sad loss xx
 
Hi, sorry to hear about the care that your mum has received and for your loss. Care homes are overseen by the Care Quality Commission. Contact them on Monday and ask if they can assist at all. They are meant to inspect all care homes, and hopefully will be able to give you some assistance.
Sorry for your loss, Sarah
 
Hi, thank you for your replies and kind words. I will be making complaints to the CQC and also the local council authority about the nursing home, there were more issues that weren't related to my mum's diabetes.
The home didn't inform me if the checked her urine for ketones - it certainly wasn't on the record sheet, they kept her insulin doses the same 14 units in the morning and 6 in the evening until the Dr called back on the Thursday and increased the insulin by 2 units both morning and evening.
It was the sudden change in my mum that coincided with the very high readings that made me wonder if it caused something to happen. It was the following week that she became really strange and I suggested a possible UTI. I certainly feel the home was at fault for many reasons but in this case they were guided by the Dr.
I know my mum was warned high glucose levels for long periods could cause serious problems, but I don't know how high or for how long. I think she was between 26-31 for about 3 days, after that the records are missing for a week.
I know this has no bearing on the inevitable outcome of her cancer but she'd not had a single symptom before she went into the home. I certainly feel the way she was looked after allowed the cancer to overwhelm her, she died within weeks.
Thanks again for your help
K
 
Given that the liver plays a role in blood sugar regulation, I wonder if it's possible that the liver cancer she was subsequently diagnosed with was part of the cause of the higher BG readings. (Insulin resistance impacted maybe?) Whether or not more should have been done to bring them down earlier is of course a separate question to that of why they happened (and I totally understand your concern about whether they did adequately respond to that), but it's possible that the increased confusion was due to other factors that also caused the high blood glucose, rather than the confusion being caused by the BG.
 
So sorry to hear about your Mum @Kaybe :(

Do give the Diabetes UK Helpline a call to chat through your concerns with them.

The Helpline is open 9-6 Monday-Friday on 0345 123 2399.
 
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