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scared to death!

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laurenbeth1988

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Type 1
Hi all,

This might sound jumping the gun but im 24 and want tp start a family, however Two years ago i started with diabetic retinopathy ive had a virtrectomy in my left eye due to retinopathy and a load of laser in my right it has been stable now since november 2010 all my cells have gone. But I am terrified of getting pregnant because of my eyes and I really want to have children but I cant lose my sight i just dont know what to do :( xxx
 
Talk to your diabetes pre-conception team, I should!

Good luck !

I think where there is a question mark involving retinopathy, it's doubly important to keep your BP well in check as an aid to avoiding further eye damage.
 
Last edited:
trophywench said:
Talk to your diabetes pre-conception team, I should!

Good luck !
Click to expand...

Yep, this. They'll be clued up on the risks and how best to manage them. Never too early to think about things like this tho, you're one ahead by having done that.
 
I will do have an appointmetn with my eye surgeon in september, I just hate waiting im so nervous about it had such a bad experiance with it all just want to find all the awnsers i guess
 
Hi there...i had background R which post baby1 became proliferative needing laser to both eyes...we all thought it had stabilised so I had baby2 (needing more laser during & after preg). It's since stabilised but I did have to have a vitrectomy to deal with contracting scar tissue from all the lasering. The bottom line is that there will be a risk of rapid worsening of your retinopathy during preg (it's known to accelerate things in some women) & I suspect your eye doc will want to be confident things have stabilised before you start trying. They'll want to keep a close eye on you (no pun lol) & should check you at least every trimester. i remember reading that in extreme cases baby might be delivered early to limit eye damage & allow for ops etc but this is very rare. I guess the ultimate factor is how much you trust your eye care team? If it (R) does become an issue in preg they & your preg team will need to work together closely. Sorry, not sure how helpful that is?! It can be done but as ever it's a case of weighing up what you want vs the level of risk you will be happy to tolerate...good luck!! Xxx
 
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