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rubbish hba1c....

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B

bev

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
We had Alex's hba1c today - its awful : 9.5!!!!!!!!!!!!!!!!😱

I had expected it to be high as we cant resolve his overnight highs due to growth spurts etc... But i didnt think it would be this awful.....

The gp's receptionist rang me with the result and helfully passed on a message from the gp that 'perhaps you ought to be giving him more insulin?'!!!!!!! Well blow me down!!!!!!!!!!!
HEEELLLLLLOOOOOOO if he has more insulin he hypo's constantly!!!!!!!!!!!!!!

Does the gp think i just sit and 'guess' how much insulin to give him or something? Do gp's even know how much effort people put into trying to get it right and take into consideration exercise, fat in food, growth spurts, dawn phenomenon, excitement,anxiety, and all the other variables that make dealing with diabetes a nightmare to control? Oh, and put into the mix the fact that our dsn cant get herself motivated enough to actually sort out a cgm - been waiting months now - and what do we have?..... A FARCE!!!!!!!!!

The phrase 'brewery and rather drunk' springs to mind!

Perhaps i should dump Alex on their doorstep and say 'when youve got it right give him back to me if your so expert at diabetes'....

I am completely sick of dealing with incompetant people who have it within their power to sort out a cgm or a pump and yet we are still waiting for both ....meanwhile the damage is being done ......and i have no idea how to get this resolved.😱:(😡Bev
 
Hi bev, so sorry to hear that the result is disappointing. What was his last one? I know, as do many others who visit here, just how hard you and Alex have worked to try and keep the levels steady and within range. But with all that happens - the learning curve, the hormones etc. it has been so difficult. I can't imagine it is ever easy with a growing boy, newly-diagnosed.

Try to stay positive. All the wealth of knowledge you have gained will be invaluable as Alex grows up, especially once he gets the pump. The control has been difficult, but I imagine it could have been much worse without all your efforts. It's still relatively early days for Alex, and an extremely complex thing to try and balance 'manually' as his body is no doubt starting to change. And, through it all you have kept him happy and confident, I hope that this doesn't dent that confidence, because you will improve on this, and have a thoroughly good grounding for the future.

I thoroughly understand your anger and frustration at those you have to deal with in trying to get the best care for your son, maybe they will recognise their failures in this respect and it will help to finally make some progress on that CGM and pump. My best wishes and hugs to you and Alex xx
 
is this the first one since diagnosis? Calm down, you're doing really well trying to sort it out which sounds like all on your own. I cant believe the Dr said that the idiot. My Gp was useless and eventually got pushed over to the hospital clinic (best thing ever) i really think you should push for proper hospital clinic. Dont let it get to you, your doing everything you can, dont make yourself ill over this. i know your worried about alex but it will get sorted, you may need to keep shouting at them though unfortunatly
 
If this is alex's first since diagnosis it really isn't bad! you've only just managed to sort out how much insulin he needs, before that he was high alot so it explains the result. The GP should not have made that comment, that is the only problem here. Why was the GP talking about it anyway? They don't know much about diabetes. You need to talk to a Diabetes Specialist!!

Apart from that you are doing fine, I'm sure the next one will be better - ask for another one in 4 months time instead of 6, if you are worried.
 
Hi bev...

Can I just mirror what Notherner and sugar have said..... Its all hardwork...and you are an outstanding mum...Try not to take what the gp said to heart...they have no idea sometimes what diabetes or how to bring a child up with diabetes...you are doing everything and more you can...stick in at them...Is alex under the care of you gp and dsn...or hosptial child diabetic clinic?????

Sending you lots of hugs

Heidi
🙂
 
Thanks.
His first result was at diagnosis and it was 12.4. Then after 3 months he was 8.2. Then the highs through the night started and this has resulted in the 9.5.

I think what made me the most angry was the gp telling me to give him more insulin. If it was as easy as that - does he think i would withold insulin from him? Trying to get his levels within range is a full time job, and isnt helped by stupid people who try to offer advice when they obviously know very little.

I honestly dont know what else i can do - we carb count - we take into account exercise and he eats a healthy diet. I cannot help him having growth spurts - its something that happens to children and it happens through the night. That is why i decided to split his levemir, i waited for weeks for them to tell me whether i should do this,but they never got back to me so i decided to do it anyway. It has started to help him a little bit - but i am doing it very slowly increasing his levemir by half a unit every 2 nights. But, if i had left it to his dsn we would still be waiting for an answer!

Much as i value this forum and the advice i get on here, surely this isnt what should happen? Surely the professionals should be actively advising parents/carers on how to achieve the best levels? Actually, i do KNOW how to get better levels - but i cannot stop growth spurts! The only thing that can help with that is a pump. And if i cant even get them to put him on a cgm for a few days - what hope do we have of getting him on a pump?😡Bev

p.s. he is only under the diabetic team, the gp hasnt even seen him since diagnosis.
 
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bev said:
p.s. he is only under the diabetic team, the gp hasnt even seen him since diagnosis.
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Bev i'm afraid GPs and their receptionists and the nurses there can be SOO insensitive and stupid! As far as i'm concerned the GP should never have said such a throw-away, unhelpful comment. Especially as he hasn't seen alex 😱
 
Hi Bev

I can only echo what everyone else has said. It must be so frustrating and disappointing but it is still early days and it isn't uncommon for people's a1cs to go up in the early days so try not to get too disheartened. It's a pretty difficult time what with new diagnosis and the potentials of a honeymoon period, let alone all the challenges of a growing boy. I think you are both doing really well and even if things don't seem to be coming together yet the learning you are doing along the way will stand you both in good stead for the future.

It's obviously not the way things should work (pre emptive should be preferred) but maybe these results will also give you some ammunition in getting the cgm and pump?

I would say try not to dwell too much on these results, nothing can be done to change them now and I know form personal experience that worrying about past results can really affect future ones, just try to draw a line under it and concentrate on all the good things you are doing.

Oh, and ignore what the GP said, he most likely knows very little about dealing with diabetes day to day!
 
aymes said:
...Oh, and ignore what the GP said, he most likely knows very little about dealing with diabetes day to day!
Click to expand...

He hasn't got a retired sister who lives in Birkenhead by any chance? Or maybe they went to the same medical school? Give more insulin? Let's see, I was high the other day, throughout the day, so I gave myself more insulin the following day - I had three hypos! Surely not! How did that happen? Stupid man!😡
 
Northerner said:
He hasn't got a retired sister who lives in Birkenhead by any chance? Or maybe they went to the same medical school? Give more insulin? Let's see, I was high the other day, throughout the day, so I gave myself more insulin the following day - I had three hypos! Surely not! How did that happen? Stupid man!😡
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He he he - perhaps he is her brother! Perhaps they both went to the school of 'how NOT to talk to people in an understandng way and make stupid patronising suggestions school'!.com! Thanks for all your replies - you will never know just how much it makes me feel less of a failure! :D Bev
 
bev said:
He he he - perhaps he is her brother! Perhaps they both went to the school of 'how NOT to talk to people in an understandng way and make stupid patronising suggestions school'!.com! Thanks for all your replies - you will never know just how much it makes me feel less of a failure! :D Bev
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Wow Bev, don't ever think that, I think you are incredible! although you do seem to have an elephant fixation...🙂
 
Northerner, just this once i will let you get away with that! Cheeky!:DBev
 
Hi Bev,

Sorry to hear you and Alex have had a disappointing result. It soul destroying when you try so hard (which you and Alex obviously do!) and the numbers dont tally.

Silver lining: Major, major ammo to tell the DSN to pull her finger out with the pump!

Dont give up xxx
 
Viki said:
Hi Bev,

Sorry to hear you and Alex have had a disappointing result. It soul destroying when you try so hard (which you and Alex obviously do!) and the numbers dont tally.

Silver lining: Major, major ammo to tell the DSN to pull her finger out with the pump!

Dont give up xxx
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Viki, where have you been? Hope all is going well for you.🙂
 
Northerner said:
Viki, where have you been? Hope all is going well for you.🙂
Click to expand...

Hi Northener,

I have been rubbish lately! Logging in every now and then to see how people are but not posting.

Must try harder :D
 
Bev, what a disappointment for you all -- BUT you know you are trying so hard. From the bottom of my (our) heart(s) I really do know where you are coming from. It is unbelievably difficult to manage type 1 with a growing child. And the worst thing is, we do everything we know how to do. Everything we know how to do. And still the big D seems to mess us up. Sometimes it seems out of spite (ridiculous).This we know.

We have a great GP -- but he still doesn't know tuppence about the day to day management of diabetes. No front line medical people seem to, and I'm not sure why. It's the gritting teeth thing we seem to do all the time: not blame them for their ignorance, but feel just so alone and struggling...argh!

This is fabulous ammunition for a pump Bev, as mentioned. The only silver lining bit. You are trying your guts out, I know....

I see on the other thread that your consultant is behind you. This will count for something in the long run, I'm sure. Please lord make all this grief add up to *dead cert* for a pump. And CGM.

Whew. Bev, you are going through it. Wish I wave a wand for you.

Hang tough.
 
grahasm at yewsterday clinic was 9 last time was 9.5 dont worry i am sure you and alex doing your best
 
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