DrHChaplin
New Member
- Relationship to Diabetes
- HCP/Researcher
- Pronouns
- She/Her
Hello, our names are Rachel Kettle, Hema Chaplin and Paula Ormandy and we are health services researchers from the University of Salford working alongside University of Exeter on this project about information and education for early-stage chronic kidney disease.
This project is part of larger National Institute of Health Research funded research to help patients with early-stage chronic kidney disease in the UK, including those with Diabetes or High Blood Pressure, and their families get better information and education. Information refers to content that could be read, listened to or watched, whilst education builds on this through interaction with this content such as completing worksheets or practicing new skills.
The research has two parts: first, we look at all the evidence to see what works best; second, we talk to patients and families to hear their ideas and experiences. We’re inviting you to take part in the second part - sharing your thoughts with us.
For the video summary of this information, please click here.
What would taking part involve?
We have the permission of the Forum Admin/Moderators to post a link to our survey and to start a discussion thread for you to answer three questions about information and education for kidney disease.
We will use the discussion as ‘data’ to analyse. During analysis we will look for patterns and themes in the text/images posted to group together similar experiences. The cut off time for data collection will be determined based on how active the discussion is, but is likely to be a two-week period. This means we will not analyse the discussion past a certain date.
If you do not wish to participate, you can still engage with other posts in this Forum but please do not comment on this discussion thread.
The Admin/Moderators have the right to decline permission to participate and can withdraw permission at any time. By engaging in the discussion (posting comments/responses), you are implying permission/consent for your information to be used in this research study.
What will happen if I don't want to carry on with the study?
We are contactable via email or Facebook messenger for further information. However, should individuals wish for their own contributions to be removed this will only be possible by deleting their individual comments prior to data harvesting as after this point all data will be non-identifiable and we will not be able to identify your data to remove it.
Who has reviewed this study?
This study has been independently reviewed and approved by the University of Salford Research Ethics Committee (REC number 1027).
Please contact the research team if you have any questions, by emailing Hema at h.chaplin@salford.ac.uk or Facebook messenger to Hema Chaplin – UoS.
Survey
We want to hear about your specific experiences with kidney disease education and information, so could you please complete our survey that consists of 27 questions and will take roughly 30-40 minutes to fill out. The survey is anonymous and is not linked in any way to your Facebook/Forum profile or any of the discussions here.
Forum Discussion
We want to hear a bit more about your experiences with kidney education and information and open a discussion in the group about what is working about it and what isn't! Please can you tell us in detail:
This study has been approved by @Ieva DUK and is not affiliated with Diabetes UK.
This project is part of larger National Institute of Health Research funded research to help patients with early-stage chronic kidney disease in the UK, including those with Diabetes or High Blood Pressure, and their families get better information and education. Information refers to content that could be read, listened to or watched, whilst education builds on this through interaction with this content such as completing worksheets or practicing new skills.
The research has two parts: first, we look at all the evidence to see what works best; second, we talk to patients and families to hear their ideas and experiences. We’re inviting you to take part in the second part - sharing your thoughts with us.
For the video summary of this information, please click here.
What would taking part involve?
We have the permission of the Forum Admin/Moderators to post a link to our survey and to start a discussion thread for you to answer three questions about information and education for kidney disease.
We will use the discussion as ‘data’ to analyse. During analysis we will look for patterns and themes in the text/images posted to group together similar experiences. The cut off time for data collection will be determined based on how active the discussion is, but is likely to be a two-week period. This means we will not analyse the discussion past a certain date.
If you do not wish to participate, you can still engage with other posts in this Forum but please do not comment on this discussion thread.
The Admin/Moderators have the right to decline permission to participate and can withdraw permission at any time. By engaging in the discussion (posting comments/responses), you are implying permission/consent for your information to be used in this research study.
What will happen if I don't want to carry on with the study?
We are contactable via email or Facebook messenger for further information. However, should individuals wish for their own contributions to be removed this will only be possible by deleting their individual comments prior to data harvesting as after this point all data will be non-identifiable and we will not be able to identify your data to remove it.
Who has reviewed this study?
This study has been independently reviewed and approved by the University of Salford Research Ethics Committee (REC number 1027).
Please contact the research team if you have any questions, by emailing Hema at h.chaplin@salford.ac.uk or Facebook messenger to Hema Chaplin – UoS.
Survey
We want to hear about your specific experiences with kidney disease education and information, so could you please complete our survey that consists of 27 questions and will take roughly 30-40 minutes to fill out. The survey is anonymous and is not linked in any way to your Facebook/Forum profile or any of the discussions here.
Forum Discussion
We want to hear a bit more about your experiences with kidney education and information and open a discussion in the group about what is working about it and what isn't! Please can you tell us in detail:
- What resources, information or education have you found most helpful for learning about kidney disease?
- Who provided this information, or did you find it yourself? What format was it in (booklet, website, etc.)?
- What challenges did you face in understanding or accessing it, and how could these materials be improved to be more relevant to you (e.g., videos instead of written material)?
This study has been approved by @Ieva DUK and is not affiliated with Diabetes UK.