Recently diagnosed Type 1

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Aliferjani

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Type 1
Hi there! My name is Alison. I was shocked to learn I have Type 1 diabetes after a friend advised me to get checked out for diabetes after telling her I always seemed thirsty and had lost a stone in weight. My blood sugar measured 22.5 but my doctor said it was highly unlikely I had Type 1 as it would have been diagnosed long before now - I am 58. However she was wrong and my worst nightmare has come true - insulin injections 4 times a day for the rest of my life. I was given the bad news on 30 May and am off work till Friday while learning how to manage my condition. I am not overweight, eat healthily and excercise at least 4 times a week so think I have a good chance of staying healthy and living long enough to see my 7 grandchildren grow up. I also have hypothyroidism so have been on thyroxine for the past 18 years and alopecia totalis so nature's not been very kind to me! However I am determined not to let all this get on top of me and am adopting a positive attitude. I would welcome comments and advice from any other members. Many thanks 🙂
 
Hi Alison, I can't offer much advice, but I can offer a welcome 🙂
 
Welcome to the forum! Sorry about your diagnosis, but you've come to the right place. There are quite a few people on here who developed T1 later on in life, so you're in good company 🙂 I'm the mum of a T1 and found the whole thing overwhelming at first, but it does become part of life very quickly ...
Catherine
 
Hi Ali, I like the bit about "Positive Atitude". I have been T1 for over 45yrs & think i have got that atitude. As a kid i know i could run just as fast as other kids & didnt like to be beaten at anthing !(British National Champ 3 Times on a catamaran) Keep at it Ali & you will do yourself a favour. Join your local Duk & learn off others. You have come to the right place. 😉
 
Hear Hear, it ain't the worst thing you could get by any means.

But it is fairly gobsmacking and a severe shock to the system so don't underestimate the trauma of it, and don't let the NHS fob you off by telling you that's nonsense, it's easy.

It's never exactly easy, in fact it's really quite complcated, but rather you do get used to it pdq (well, no other choices available so best get on with it LOL) and then it just seems to be easy-er.

And the jabs aren't like any other jab you've ever had so far or will ever have to have again. They should NOT hurt. If they do then there's something wrong which needs to be sorted out and 99.99% of the time, it can be sorted out simply.

Now you won't know these things and no-one expects you to yet - so whenever any sort of question occurs to you, shout up. Someone will know the answer and you don't have to make any appointment before you can ask! By the way, no such thing as a silly question here!

So when you just wonder if ..... ASK !!
 
Aliferjani

Good morning all - your replies have given me lots of hope for the future and encouragement. I have always been a very active person and one of my main concerns was I may not be able to excercise as much but so far I have continued with pilates, swimming and gym workout after the initial shock when first put on insulin and was advised not to excercise initially by my diabetic nurse. i am trying zumba again tonight but am a bit apprehensive about it as it is so fast! However my DN says just sip lucozade rather than water during the class so will see how it goes. Could anyone advise me how stress affects their levels please as I am returning to my job as Jobcentre adviser where I interview people on JSA all day long? As you can imagine I have 'difficult' interviews at times and too many interviews are squeezed into a day - on Friday - my first day back after 2 weeks - I have 12 interviews to do. Also my eating pattern will change as I will have breakfast at 7am but my lunch break is not until 1pm with a 15 minute tea break at 10am. I am thinking of asking my manager (who has so far been less than supportive) if I can luch at 12 noon instead if the other adviser agrees to swop with me. If any of you work full time how do you manage your condition while at work? It's all so new - so many questions! I only take 3 units Novorapid before each meal and 8 units Lantus at bedtime and my glucoze levels vary between 4.8 and 13 but I guess I may have to increase this - I am terrified of having a hypo and going unconscious! I look forward to hearing from you all again.
 
Good morning all - your replies have given me lots of hope for the future and encouragement. I have always been a very active person and one of my main concerns was I may not be able to excercise as much but so far I have continued with pilates, swimming and gym workout after the initial shock when first put on insulin and was advised not to excercise initially by my diabetic nurse. i am trying zumba again tonight but am a bit apprehensive about it as it is so fast! However my DN says just sip lucozade rather than water during the class so will see how it goes. Could anyone advise me how stress affects their levels please as I am returning to my job as Jobcentre adviser where I interview people on JSA all day long? As you can imagine I have 'difficult' interviews at times and too many interviews are squeezed into a day - on Friday - my first day back after 2 weeks - I have 12 interviews to do. Also my eating pattern will change as I will have breakfast at 7am but my lunch break is not until 1pm with a 15 minute tea break at 10am. I am thinking of asking my manager (who has so far been less than supportive) if I can luch at 12 noon instead if the other adviser agrees to swop with me. If any of you work full time how do you manage your condition while at work? It's all so new - so many questions! I only take 3 units Novorapid before each meal and 8 units Lantus at bedtime and my glucoze levels vary between 4.8 and 13 but I guess I may have to increase this - I am terrified of having a hypo and going unconscious! I look forward to hearing from you all again.

Hi Ali

Another welcome to the forum. Sorry to hear about your diagnosis. I gather some thyroid problems are also autoimmune (like T1 diabetes) so it's not uncommon for them to go together apparently.

A few thoughts from my perspective on what you have said:

Exercise
Should not be a problem at all, in fact it should help a great deal. There's a thread somewhere on here about Team Type 1, cyclists who compete (and succeed!) at the highest levels of one of the most physically demanding sports. You will just need to learn how to cope with is alongside your D now. You have probably been advised too much exercise at this point because it is not advisable to exercise strenuously at high blood glucose levels (eg in the teens).

With exercise (and with everything else!) it's a good bet to start keeping notes. What you ate beforehand (estimate grams of carbs to the nearest 5g-10g), what doses you took and when, what you did, what your levels did before/during/after.

That way you can look back in a week's time and try to spot patterns that emerge over several days. Try not to jump to conclusions (I am terrible for this) make changes to any approach, eg what lucozade you drink and when, gradually and try to see if results are repeatable. The infuriating thing about D is that there are a *lot* of factors to take into account. Testing and experimenting over several days should help ensure that your results are not thrown by a one-off crazy day.

Stress
This will most likely have an effect. As will many, many things (including even the general temperature!). How much it affects you and inn what way will be unique to you. Diabetes is very like that. 'General' rules and approaches tend to hold true, but all the nitty gritty detail will be unique to you. More than almost any other long term condition you will be the expert. Your clinic and team will give you support, information and approaches, but in the end you will be the one dealing with this condition 24 hours a day - they will only be thinking about it in the context of *you* (albeit expertly and with experience) for a few minutes a year. Some people find stress increases blood glucose levels (fight or flight, release of adrenaline stress). Other people find stress makes their BG's plummet (busy supermarket with toddlers, ask my wife)

Insulin and meal timings
Great news to hear you have been put on basal:bolus/MDI. Many newly diagnosed get started on mixed insulins twice a day which is far less flexible and often means you *have* to eat or snack at certain times. The good news for you is that this should not be the case once your doses are roughly right. Your Lantus (background or 'basal') is designed to deal with the trickle of glucose that comes from the liver 24 hours a day. It releases slowly and fairly steadily over 24(ish) hours and if you ate no carbohydrate, in an ideal world your BGs would stay more or less completely level over 24 hours. This means that once your Lantus dose is roughly right you can eat early, late or not at all and should not have to worry, unless you are being unusally active in which case you might need a little 'top-up'. Your NovoRapid should be dealing with the carbohydrate in your meals. If you are taking the same doses every day (as advised by your team) you should aim to eat *roughly* the same quantity of carbohydrate at each meal (so much for breakfast, so much for lunch...) In time you will be taught/shown how to adjust your own meal doses such that you can eat (within reason) pretty much anything you fancy. Novorapid tends to work over 4-5 hours so by lunchtime your 'breakfast' dose will be finishing. A good, regular testing regime can help you spot what is going on... A bit like this:

Test before breakfast: 6.5mmol/L (yay!)
Notes: Ate 3 slices granary toast, est 50g carbs

Test before lunch: 12.8 (bah!)
...

Next day...
Test before breakfast: 11.2mmol/L (rats!)
Notes: Ate 3 slices granary toast, est 50g carbs

Test before lunch: 16.2 (doh!)

Conclusion: Rose by approx 5-6mmol/L both days, will try one less slice of toast tomorrow...

At this stage the actual numbers themselves are arguably less important than the differences and trends.

If you struggle trying to find out what food has carbs in there's a great little book by Collins Gem called the 'CALORIE' counter which lists hundreds of foods with carb counts per 100g (they have a 'carb' counter one, but people find that can be trickier to use since it often says things by portion, half of whatever, without you necessarily knowing how big the whole was!). DUK have a free Carb Count e-book too: https://www.diabetes.org.uk/OnlineS...diabetes/Food-and-activity/Carb-count-e-book/

Good luck with getting your head around it all.

Keep on firing out the questions 🙂
 
Hi Ali and a warm welcome to the forum
 
aliferjani

Thanks for all that very enlightening advice Mike and thanks to all for welcoming me to the forum. I'm going to zumba in an hour so will see how it affects me. 🙂
 
Hi Alison, a belated welcome to the forum from me 🙂 I was 49 when diagnosed, and due to run a marathon that week, so it certainly can strike at the otherwise fit and active - and at any age! The good news is that I quickly got back into my running and have found it to be an enormous help in keeping my levels very steady. As Mike has said, keeping records is well worth the effort so that you can spot patterns and trends. You may not be able to explain every result, but experience will teach you to dismiss the occasional blip and develop an intuition for what works for you. One thing to bear in mind about exercise is that the effects can sometimes only become apparent hours later - for example, if I go out for a long run my levels will only tend to respond by dropping several hours later - I have therefore learned to reduce my insulin or increase my snacks to cope with this. You will learn your own personal strategies, I am sure. 🙂

This will make you feel good - I'd highly recommend getting a copy of Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas! No matter what your age, this book is invaluable in getting to grips with all aspects of Type 1 and is a superb reference for any eventuality (but don;t forget we are here for you also! 🙂)
 
Hi Alison, welcome to the forum! I have picked up on a different aspect of your message for obvious reasons... I also have alopaecia totalis. I lost all my hair when I was 40, about a year after I had my twins (now 12 years ag) I just wanted to say that coping with this is not easy and, although diabetes is challenging, you clearly are a very strong individual and I have no doubt you will ultimately rise to the challenge! Good luck and keep posting - there are loads of wonderful and knowledgeable people here to help.
 
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