Pump users...

Daisy

Moderator
Relationship to Diabetes
Type 1
Were you all terribly out of control before you went on the pump? I am desperate to go on a pump - but my HbA1c is usually in the 6 - 6.5 region. Though I have fluctuating blood sugars - and they average out to that. I would much prefer them to be in the 5.5 region - but just can't get there. I have been monitored for a year and because my bs have got a little better - I am not being considered for a pump. I did consider just letting my bs get out of hand on purpose - but was scared of the consequences. I have had a touch of retinopathy - but that cleared up. I am so so so frustrated that those that want to go on a pump cannot - in the long run I think it will be so much better for me and my long term health. If I were rich enough i would happily purchase one myself - but am not.:mad: I mostly have no support for my diabetes at all, no ds support team, no ds nurse and take full responsibility for my health - I want to act responsibly and can't because of NHS budgets. I just want to screeeeeeeeeaaaaaaaaaaaaaaaaam! at this injustice. There rant over - back to lantus and novorapid! Thank-you xx :)
 

kitemaster

Well-Known Member
Relationship to Diabetes
Type 1
Pump decisions

Hi Ive just gone on to a pump and unfortunately in our area you have to have a HbA1c above 7.1 for 12 months. Since going onto the pump at last I have HbA1c similar to yours. This doesnt help you I know what I can say is there most be loads of people out there who haent got problems but their control will still be improved with the use of one.
 

sunflower_harvester

Well-Known Member
Relationship to Diabetes
Type 1
Hi Daisy

Wasnt terribly controlled- HbA1c of 8.something, no complications but had problems with frequent hypos despite being on lantus and humalog. Think you either have to have a HbA1c of 8.5+ despite a basal bolus regieme that uses Lantus OR cannot gain good control without disabling hypos-so if you have loads of hypos despite HbA1c you should still be eligable.

From what I've seen in some areas its reasonably straightforward to get one, other require the most ridiculous amount of hoop-jumping-try INPUT and Insulinpumpers websites for some advice.

Can I ask-if your control is good what is it about the pump that appeals to you, is it just the thought of even better control? Really sympathise with you about not being able to get one-dont know why the PCTs cant get it through their heads that although certain treatments may cost more in the short term it will save them a fortune in not having to treat the cost of complications. How come you've got no diabetes support?
 
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