🙂
Well, the story to date:
...Hospital A (names changed to protect the... lol), with massive waiting lists & overbooked clinics had been v briefly examining then zealously lasering my bad eye (for lack of any other plan) at every opportunity, despite little evidnce of new vessels and a never clearing bleed. After nearly a year of this, without being told anything & with good BG control I was getting a bit freaked out so paid out for a private 2nd opinion. Lo & behold, after actually taking his time to take a really good thorough look at the eye, the new doc spotted the problem, which was some scarring from all the lasering, which had snagged a blood vessel and was tearing it as it contracted, causing all the bleeds. He confirmed I have no active retinopathy and the lasering would not do any good at all - just burning good tissue for now improvement! He said I needed a vitrectomy so they could remove the scar tissue & sort the eye out, and that I could be referred to his care under Hospital B. He even gave me a photo of the vessel/tissue! 🙄
So I went back to the GP, he wrote me a referral letter & I went back to the clinic at hospital A to get discharged from their books, offered the doc a view of the pic at which he said that he'd spotted & sketched that scarring some months (& a few laser sessions!) back... 😱 Anyway, grrr, got discharged from that place.... This was in late May / early june.
Come the end of June I hadn't heard anything, so called Hospital B to check if they'd sent an appt, as some post had gone missing around that time... they claimed never to have received the GP referral... so a few calls later & they confirmed that the surgery had now faxed through a copy referral & it would be processed.... anyway, weeks & weeks of calls & chasing later, and I have just received an appointment, YAY!!!! Only for the outpatients clinic, apparently we have to go through the rigaramole of being assessed again as this time it's nhs & before he saw me privately, so it will still be months & months before I actually get treated, but I guess it's progress of a sort. Meanwhile I was working from home (as much of my job as I can do that is) but the never ending nature of it all was getting me down... but maybe now there is some kind of light at the end of the tunnel! Fingers crossed....
Well, the story to date:
...Hospital A (names changed to protect the... lol), with massive waiting lists & overbooked clinics had been v briefly examining then zealously lasering my bad eye (for lack of any other plan) at every opportunity, despite little evidnce of new vessels and a never clearing bleed. After nearly a year of this, without being told anything & with good BG control I was getting a bit freaked out so paid out for a private 2nd opinion. Lo & behold, after actually taking his time to take a really good thorough look at the eye, the new doc spotted the problem, which was some scarring from all the lasering, which had snagged a blood vessel and was tearing it as it contracted, causing all the bleeds. He confirmed I have no active retinopathy and the lasering would not do any good at all - just burning good tissue for now improvement! He said I needed a vitrectomy so they could remove the scar tissue & sort the eye out, and that I could be referred to his care under Hospital B. He even gave me a photo of the vessel/tissue! 🙄
So I went back to the GP, he wrote me a referral letter & I went back to the clinic at hospital A to get discharged from their books, offered the doc a view of the pic at which he said that he'd spotted & sketched that scarring some months (& a few laser sessions!) back... 😱 Anyway, grrr, got discharged from that place.... This was in late May / early june.
Come the end of June I hadn't heard anything, so called Hospital B to check if they'd sent an appt, as some post had gone missing around that time... they claimed never to have received the GP referral... so a few calls later & they confirmed that the surgery had now faxed through a copy referral & it would be processed.... anyway, weeks & weeks of calls & chasing later, and I have just received an appointment, YAY!!!! Only for the outpatients clinic, apparently we have to go through the rigaramole of being assessed again as this time it's nhs & before he saw me privately, so it will still be months & months before I actually get treated, but I guess it's progress of a sort. Meanwhile I was working from home (as much of my job as I can do that is) but the never ending nature of it all was getting me down... but maybe now there is some kind of light at the end of the tunnel! Fingers crossed....
