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Previously T2 now queried T1/LADA

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curly247

New Member
Relationship to Diabetes
Type 1.5 LADA
Hi

I'm hoping that there will be someone who can give me a little insight or reassurance. I am due to speak with diabetic nurse on Monday so could also do with a guide to questions to ask.

Previously T2 for 6/7 years and only checking levels very occasionally with 6 monthly reviews, very steady Hb1Ac's, initially diet controlled until a major op slowed me down them 500mg Metformin/day. On Sunday I randomly tested at 33 and was advised to go to A&E. Long story short, I came out of hospital on Thursday with initial doses of Novorapid 6 units (was initially 5) x3, Toujeo 12 units. Levels are still very up and down from 8.9 to 18 ish with morning reading 2hours post breakfast 22.

Some bloods being run for GAD antibodies and some extra tests. I felt fine but clearly was dangerously high and had ketones varying in hospital from 0.8 to 1.6, now they are back down to 0.1/0.2. Food allergies/lack of sleep made my time in hospital difficult, feel much better for some sleep. Family history of T1 and insulin dependent T2.

Feeling rubbish now, I think body is feeling the drop in sugar levels though when getting the higher readings also feeling weird. I do have clear headed times when I guess things are more in balance.

I know everyone is different however is this normal? I know its an evolving process, not given guidance on carbs, etc yet so am guessing Monday is a check on how things going with further info. Not completely lost and can discuss stuff in the family but do feel "all at sea". Any comments/thoughts gratefully received.
 
Hi @curly247 . Welcome to the forum. Firstly please don’t panic about having LADA instead of T2 ok. a number of us me included were first labelled as T2 . The GAD antibody test and I assume the other test is the C-peptide test should give you the right diagnosis.

As your levels are high at the mo you sure won’t be feeling at your best .
When you say you’re feeling rubbish , what symptoms s are you having .
Also when your feeling weird , what are your symptoms .

I hope you are keeping in close contact with your DSN as they will advise you what adjustments to make with you insulin’s, you see they need to bring your levels down slowly else you can get some unpleasant symptoms, they also don’t actually know how much insulin you need, they do have a formula to go by but we are all very individual in what ratios work best for us .
In time you will learn how to count carbs and adjust your insulin accordingly but it’s too soon for that right now.

It’s very likely that on Monday it’s to check your BG results , advise on any changes and answer your questions , do have a list ready so you don’t think afterward I wish I had asked that. It’s also the time to explain those symptoms you are having.

It will get easier in time and you will feel better , honest !
 
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It is perfectly natural to feel lost, confused , upset and even angry.
It’s nit nice finding out one has a chronic (in medicalise chronic means long term rather than bad , apologies if you already know this ) condition it’s a bit like grief really .
 
Hi and welcome.

Sorry to hear that your diabetes has "progressed" and may in fact be a slow onset Type 1, but it is good that they are doing the appropriate GAD and presumably C-peptide tests to establish that. Having the correct diagnosis is really quite important.

I came into diabetes via an assumption of Type 2 but thankfully it only took a few months to establish that I was Type 1. I know it is all quite overwhelming at first and there is a lot to learn in a short space of time, but just like learning to drive, you soon a start to change gear and check your mirrors and indicate without even thinking about it, or in diabetes terms, count carbs and calculate insulin doses and inject etc. It just becomes a new routine in your life and whilst it is frustrating at times, it is certainly not the worst condition to live with and the insulin regimes and technology that are now available make it so much easier than for diabetics 30-40 years ago. No reason why we shouldn't live a full and active life with it.

This forum has a wealth of knowledge and experience to dip into. Being an active part of it is incredibly helpful in feeling more normal and being able to bounce thoughts and concerns off people who totally understand what you are going through or just sound off about the frustration of it all. It was members of this forum who spotted that I was Type 1 and not Type 2 and in need of insulin, before my medical professionals. we understand the everyday aspects of living with it and the mental toll it can sometimes take. I hope you find the advice and support here as helpful and beneficial as I have over the past 2 years.

If you have any questions at all, feel free to ask.
 
Welcome to the forum @curly247

Sorry to hear about your recent change of tack diabetes-wise.

It’s actually not all that uncommon a thing to see on the forum these days - and the length of time can vary significantly from just a few months to several years. Matters complicated and edges blurred by the way the ailing pancreas can be pushed to produce extra insulin by some T2 meds.

It must be quite bewildering having got used to one diabetes status and system for so many years, and now to be told you may have had a different type of diabetes all along!

Hope Monday is a really helpful appointment for you - let us know how you get on 🙂
 
Hi @curly247 , from another late starter (53). I was fortunate that a locus picked up the T1 (or LADA) from the start.

It may feel a lot easier once you have a correct diagnosis. You may well have been managing for so long as they found high levels at the start of the destruction of your beta cells. This is a slower process in those of us diagnosed as adults, so a lot of people tick over without injections at the start as there are still enough Beta cells surviving to deal with the glucose in the system.

Then the remaining ones go one strike, often in response to an additional illness or stress when they are expected to do more work. This then leads to high levels and ketones.

Let us know how you get on and fire away with any questions that you have.
 
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