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A cystic fibrosis sufferer says he feels like there is a "carrot dangling in front of me" due to being denied a life-changing drug on the NHS.
Mike Boyle, 30, is one of 44 people who it is believed could be helped by the drug Ivacaftor, which is commonly known as Kalydeco.
But although it is currently available to 360 people with the G551D mutation of cystic fibrosis, it is not being offered to others who carry one of eight additional gating mutations found to be affected by the drug.
Mr Boyle, from Pontypridd in south Wales, said he had seen first-hand the life-changing results that Kalydeco has on people that suffer from the condition.
https://uk.news.yahoo.com/plea-cystic-fibrosis-sufferer-000659325.html
Mike Boyle, 30, is one of 44 people who it is believed could be helped by the drug Ivacaftor, which is commonly known as Kalydeco.
But although it is currently available to 360 people with the G551D mutation of cystic fibrosis, it is not being offered to others who carry one of eight additional gating mutations found to be affected by the drug.
Mr Boyle, from Pontypridd in south Wales, said he had seen first-hand the life-changing results that Kalydeco has on people that suffer from the condition.
https://uk.news.yahoo.com/plea-cystic-fibrosis-sufferer-000659325.html