Partha Kar says costs negotiated should mean any CGMs are available

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Good to have Partha Kar so much on the case.

Our clinic has already told us that are self funding CGMs should have funding by the end of the year.
Keep asking.
 
Ah so my ccg saying "were asking for funding for it" isn't quite right then.
 
So could a CCG be challaged if they say there asking for funding when allreasy funding for the libre
 
I’ll be really interested to see how the conversation goes at my next pump clinic appointment (whenever that is!) given my CCG’s historic ‘blanket no’ approach when I’ve asked before.
 
I’ve been offered the Dana I as I was interested In closed looping they told me I have to pay up to £70 for camapps and implied I could get Dexcom but have Just received a copy of the consultants letter to the GP which says Dexcom is not funded
 
everydayupsanddowns said:
I’ll be really interested to see how the conversation goes at my next pump clinic appointment (whenever that is!) given my CCG’s historic ‘blanket no’ approach when I’ve asked before.
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My next appointment is a few weeks away.
Previous appointments I have been told the Libre budget is in a different pot to any other CGM.
When I told my DSN via email I had a trial for the Medtrum CGM, she told me there was no budget for it even though it was the same price as Libre.
I have been self funding ever since. My HBA1C has remained good but my TIR has significantly improved (increased from 70 to 90%).
I expect an interesting conversation.
 
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I was promised via letter that the NHS would fund my CGM (Dexcom) only to have a Libre2 handed to me, so pointed out it was not a CGM and due to my disabilities I couldn't use the Libre 2. I have complained to the CCG and weeks ago they promised a reply am still waiting.
As far as I am concerned it's discrimination under the disability act.
 
Yup @helli @Pumper_Sue - this is pretty much exactly what I fear I will be faced with.

Hopefully we will start to hear some more positive experiences too.
 
I am in annoying situation.
After asking for almost 2 years my hospital finally approved Dexcom G6 funding on Monday but my CCG have removed the form I was told due to the guidelines changes so they need to update it but no idea when it will be done. Could be week or two or months!
 
everydayupsanddowns said:
Yup @helli @Pumper_Sue - this is pretty much exactly what I fear I will be faced with.

Hopefully we will start to hear some more positive experiences too.
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Positive result here, been told by DSN I am to have the G6 and a new pump (Tslim) so can make good use of both 🙂
I wont believe it until it actually happens but on cloud 9 at the moment.
 
Pumper_Sue said:
Positive result here, been told by DSN I am to have the G6 and a new pump (Tslim) so can make good use of both 🙂
I wont believe it until it actually happens but on cloud 9 at the moment.
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Great to have got in at just the right time Sue.
 
SB2015 said:
Great to have got in at just the right time Sue.
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The CGM is good timing as only have a months supply of my G6 left from a 12 month supply. Pump is going to be about 12 months early so more than pleased as do not like the medtronic pump at all.
 
Pumper_Sue said:
The CGM is good timing as only have a months supply of my G6 left from a 12 month supply. Pump is going to be about 12 months early so more than pleased as do not like the medtronic pump at all.
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wow congrats.
how did you manage to convince them to give you new pump 12 months early?
My 640G Medtronic warrenty does not end until October 2023 and they having none of it haha
 
nekromantik said:
wow congrats.
how did you manage to convince them to give you new pump 12 months early?
My 640G Medtronic warrenty does not end until October 2023 and they having none of it haha
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Thank you 🙂
DSN said she was going to order the pump for me so I did own up and say I had another year on my warranty and she said it didn't matter. So I will await with interest to see what happens. Obviously sorting out the training with the rep as a new pump to the clinic will take time so not expecting things to happen next week lol.
 
Pumper_Sue said:
Pump is going to be about 12 months early so more than pleased as do not like the medtronic pump at all.
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I got my 780 quite early as it fitted in with the training they wanted to rganise. Also a new pump for the clinic so we all learnt together, which was a bit scary at times. I had never used their other pumps so the switch took a bit of getting used to but excellent support provided.

Very happy now and glitches are few and far between so more than happy to stick with Medtronic, although I shall be interested in your experiences of T-slim. I hope that you don’t have to wait too long.
 
SB2015 said:
I got my 780 quite early as it fitted in with the training they wanted to rganise. Also a new pump for the clinic so we all learnt together, which was a bit scary at times. I had never used their other pumps so the switch took a bit of getting used to but excellent support provided.

Very happy now and glitches are few and far between so more than happy to stick with Medtronic, although I shall be interested in your experiences of T-slim. I hope that you don’t have to wait too long.
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As far as I know it's a 1 -1 for the training.
My only worry really is the thought of having to rely on a device to make the decisions and deliver the insulin. I think I'm going to find that very hard to adjust too and trust as well.
 
Pumper_Sue said:
As far as I know it's a 1 -1 for the training.
My only worry really is the thought of having to rely on a device to make the decisions and deliver the insulin. I think I'm going to find that very hard to adjust too and trust as well.
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It took me sometime to allow the pump to do the job it is designed to do, but it is worth sticking with it if you can and it could lead to a lot less thinking about your diabetes. Give it a chance, and then find work around for some things, remembering that previously you were doing all the work before, and we then just have to deal with oddities.
 
SB2015 said:
Give it a chance, and then find work around for some things, remembering that previously you were doing all the work before, and we then just have to deal with oddities.
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I suspect I'm going to needs lots of toys to throw out of the pram :D
 
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