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gemsell

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I am a parent who has a two year old newly diagnosed with type 1 diabetes. 3 and a half weeks on and still trying to get our heads round it all!
 
Hi Gemsell- sorry to hear of your little ones diagnosis- but glad youve found us so soon .There are lots of parents with little ones on the forum who will be along soon.My son is not so little { now 17 - dx at 15] and I know its really hard at the start.The lovely people on here understand and get it! .I knew nothing about diabetes before and felt totally dim- ask away someone will always help- welcome again
 
Hi gensell, welcome to the forum 🙂 Very sorry to hear about your little one's diagnosis. What insulin regime are they on? I would recommend reading Adrienne's essential guide for parents of newly diagnosed children, which may give you some idea of what to expect. I would also recommend getting a copy of the excellent Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas, which is a really useful reference guide to everything related to Type 1.

Please feel free to ask questions/let off steam/have a good moan about anything that is bothering you, or you find confusing, and we will try our best to help you out!
 
Hi from me 🙂

I can appreciate how you are feeling, such a lot to take in and just get on with when you are all in shock and, I suppose, grieving. I hope you are getting plenty of support from your child's team.

take care!
 
Hi from me as well, you've come to the right place ask your questions, there's plenty of help and support here.
 
Hi , Welcome to the forum, my little man is nearly 5, he was diagnosed at 3. I have had lots of ups and downs over the past year but you will come to terms with it and cope. This forum has been great for advice. Please ask anything even if you think it's silly. Someone will be able to help.
Helen
 
New parent

Hi, I've also got a little one, diagnosed in May aged 22 months and coming to terms with it too, we already find it is getting easier but there are ups and downs. Hope you're feeling ok, it's a huge shock and not many people I knew had much experience of it so you may be in a similar position. I was put in touch with a Facebook group of local parents of children with diabetes which was helpful and there may be similar in your area.
 
Emma B said:
Hi, I've also got a little one, diagnosed in May aged 22 months and coming to terms with it too, we already find it is getting easier but there are ups and downs. Hope you're feeling ok, it's a huge shock and not many people I knew had much experience of it so you may be in a similar position. I was put in touch with a Facebook group of local parents of children with diabetes which was helpful and there may be similar in your area.
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Hi Emma B, welcome to the forum to you as well! 🙂
 
Thank you all for hello's!! i appreciate it. ellie was on novomix30 and now been moved onto novorapid 3 times a day and then levemir before bed. He readings are all over the place still, but they want us to do this so she can go on a pump, has anyone got a pump? and what do people think of them?? Also we are having to keep taking half a unit off of her levemir as it seems no matter if she is high before bed (over 10) she is still waking up in hypo lowest has been 2.3, Even last night at 2 am she measured at 10 but we gave her a jelly baby as in the morning she woke up at 4.3 about where she should be. Night times seem the worst at the moment. Any suggestions?? Thanks again Gem
 
gemsell said:
Thank you all for hello's!! i appreciate it. ellie was on novomix30 and now been moved onto novorapid 3 times a day and then levemir before bed. He readings are all over the place still, but they want us to do this so she can go on a pump, has anyone got a pump? and what do people think of them?? Also we are having to keep taking half a unit off of her levemir as it seems no matter if she is high before bed (over 10) she is still waking up in hypo lowest has been 2.3, Even last night at 2 am she measured at 10 but we gave her a jelly baby as in the morning she woke up at 4.3 about where she should be. Night times seem the worst at the moment. Any suggestions?? Thanks again Gem
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After diagnosis my little one was on novomix on a morning, rapid at tea-time and levemir at night, after a few weeks we had to stop the levemir as she began with hypos through the night too - this was her "honeymoon period". We had to begin the night too on higher numbers to see her through safely. After approx. 3 months moved onto the pump which has made things much more manageable once settled into it.
 
Emma B said:
Hi, I've also got a little one, diagnosed in May aged 22 months and coming to terms with it too, we already find it is getting easier but there are ups and downs. Hope you're feeling ok, it's a huge shock and not many people I knew had much experience of it so you may be in a similar position. I was put in touch with a Facebook group of local parents of children with diabetes which was helpful and there may be similar in your area.
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Welcome too!🙂
 
Can I make a suggestion please? What is happening to her blood glucose in between 2am and her normal waking time?

Trouble is - if you go TOO high - you can have a 'reactive hypo' - where you just plummet - and that could be happening. And during sleeping hours is when this tends to happen a lot more than during waking hours.

Sorry about YOUR sleep, but I think you need to test a bit more frequently during the night to try and get to the bottom of it.
 
Hi

We had a patch where Sam was waking below 4 (usually 3.2 to 3.9) so we reduced his levemir by 0.5 then he went too high in the mornings. We did 2am checks looking for whether we was going hypo or just high and it led to to increase his dose again. Because of their small size it can make quite a difference. It is a little trial and error I think and sometimes only lasts a short while. Our nurse wondered if he might need between 1.5 -2 units which you can't do with the pen so I'm keeping my eye on things considering if he'd be better off on a pump. Our support team are trying not to influence us either way re the pump option. I feel like its a big decision but a lot of people adjust well to them ... I can only suggest gather the info and discuss changes with your team and monitor the effect, and keep positive even if it's hard when you can't crack it I know;-)
 
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