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Parent of newly diagnosed daughter

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Moo moos Mum

Moo moos Mum

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi all, my daughter was diagnosed 3 weeks ago, I feel like my life has been turned upside down. I wish I could take it all away from her. She had been feeling unwell a week prior but I never knew the signs. All that keeps sticking in my mind is when they kept saying you did the right thing and got her checked today instead of leaving it till the Monday, her BG was 32, she looked so poorly, each day she is getting better and stronger and I am so proud of how she is handling things. There is so much to take in and lots to learn I just want to get it all right for her so she don’t suffer. I think it will be good for her to talk to others Is there a kids chat group on here?
Thank you for reading my post x
 
Moo moos Mum said:
Hi all, my daughter was diagnosed 3 weeks ago, I feel like my life has been turned upside down. I wish I could take it all away from her. She had been feeling unwell a week prior but I never knew the signs. All that keeps sticking in my mind is when they kept saying you did the right thing and got her checked today instead of leaving it till the Monday, her BG was 32, she looked so poorly, each day she is getting better and stronger and I am so proud of how she is handling things. There is so much to take in and lots to learn I just want to get it all right for her so she don’t suffer. I think it will be good for her to talk to others Is there a kids chat group on here?
Thank you for reading my post x
Click to expand...
Hi @Moo moos Mum, welcome to the forum 🙂 Very sorry to hear about your daughter's diagnosis :( Well done for getting things checked out, and now that she is receiving the insulin her body needs she will fell SOOO much better, I know I did 🙂 We don't have a specific kid's chat section here, but you can certainly learn a lot from our members who have a great depth on knowledge and experience, so will be able to help with any questions you may have 🙂 If you want to communicate with other parents of Type 1 children and you are on Facebook, then have a look at the Parents of Children with Type 1 Diabetes in the UK which is full of lovely people, some of whom are also members here 🙂

What insulin is she on, and how old is she? I would highly recommend getting a copy of Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas - it covers everything to do with living with Type 1 and is written in a very positive way. I'd recommend getting the latest edition, as things can change quite quickly, with new treatments and technology appearing frequently over the years 🙂 She may also be interested in getting a Rufus Bear from JDRF, the Type 1 charity which can help younger children with fingerpricks and injections, making them less scary. For your information, the needles are really small and don't hurt, although sometimes the insulin might sting a bit.

You might also like to read Adrienne's essential guide for parents of newly-diagnosed children, written by one of our members to help parents understand what has happened and how to come to terms with it.

Please let us know if you have ANY questions at all and we will be more than happy to help 🙂
 
hi moo moos mum, glad you found us. There are some parents on here, and someone will link you with other great places for parents. We don't JDRF one. It is a huge shock and so much to take in at the start. A great book we recommend is Type 1 Diabetes in children, adolescents and young adults by Dr Ragnar Hanas. Its not cheap, but is well written and very clear.
 
Hi @Moo moos Mum and welcome. Sounds like you have had quite a shock with a lot to take in over the last few weeks, but great to hear how well your daughter is doing 🙂
Hopefully you will find plenty of support on here from parents and adults who understand diabetes. Depending on your daughter's age, she can join the forum if she is 13 years or over, but as Northerner mentioned, there is no specific kids section.
There is information for kids on our website: https://www.diabetes.org.uk/guide-to-diabetes/kids
The 'Fun Stuff' area has stories from other children about their diagnosis and a 'selfie wall' with comments, which your daughter may find helpful to read about other children's experiences with type 1:
https://www.diabetes.org.uk/guide-to-diabetes/kids/fun-stuff
Hope that helps 🙂
 
Moo moos Mum said:
Hi all, my daughter was diagnosed 3 weeks ago, I feel like my life has been turned upside down. I wish I could take it all away from her. She had been feeling unwell a week prior but I never knew the signs. All that keeps sticking in my mind is when they kept saying you did the right thing and got her checked today instead of leaving it till the Monday, her BG was 32, she looked so poorly, each day she is getting better and stronger and I am so proud of how she is handling things. There is so much to take in and lots to learn I just want to get it all right for her so she don’t suffer. I think it will be good for her to talk to others Is there a kids chat group on here?
Thank you for reading my post x
Click to expand...
Hello ! I sympathize with you but its not the end of the world. Let her do the things she wants to do & encourage her to get on with it. Kids are so much positive than you think. It was 1966 when I was diagnosed & it is hard work at times but I would employ any T1 with the positive attitude that they have for survival. Good luck 🙂. Have a look at "Kids Events"
 
Welcome to the site Moo Moos Mum. Sorry to hear about your daugter.
 
Welcome Moo Moos Mum.
As others have said there are a lot of useful resources around, and I also endorse the recommendation for the Ragnar Hanas book. It is a great book to dip into and seems to have answers to so many questions. It also helped me to understand exactly what was giong on inside me with the insuin.

There is a so much to take in at the start but it sounds as if your daughter is already taking it in her stride. But don’t underestimate the impact on you too. Please do ask ANY questions on here. There are plenty of people happy to support you and a good number of parents of children who have T1.
 
Hi and welcome, sorry to hear of your daughters of diagnosis, it sounds like she's coping well, take one day at a time x
 
Hallo. Sorry about your daughters diagnosis. There are hundreds of YouTube videos of young kids and their experiences with Type 1, very positive and educational....a lot....as I was trying to find adult ones 🙂 Think your daughter will enjoy them. Good luck.
 
Moo moos Mum said:
Hi all, my daughter was diagnosed 3 weeks ago, I feel like my life has been turned upside down. I wish I could take it all away from her. She had been feeling unwell a week prior but I never knew the signs. All that keeps sticking in my mind is when they kept saying you did the right thing and got her checked today instead of leaving it till the Monday, her BG was 32, she looked so poorly, each day she is getting better and stronger and I am so proud of how she is handling things. There is so much to take in and lots to learn I just want to get it all right for her so she don’t suffer. I think it will be good for her to talk to others Is there a kids chat group on here?
Thank you for reading my post x
Click to expand...
Kids are tough cookies. My brother was diagnosed at age 9, it is a life change but it'll become second nature. I have just been diagnosed myself 3 weeks ago. It's scary at first but in a few months it'll be all fine. It's that good old word confidence lol
 
Moo moos Mum said:
Hi all, my daughter was diagnosed 3 weeks ago, I feel like my life has been turned upside down. I wish I could take it all away from her. She had been feeling unwell a week prior but I never knew the signs. All that keeps sticking in my mind is when they kept saying you did the right thing and got her checked today instead of leaving it till the Monday, her BG was 32, she looked so poorly, each day she is getting better and stronger and I am so proud of how she is handling things. There is so much to take in and lots to learn I just want to get it all right for her so she don’t suffer. I think it will be good for her to talk to others Is there a kids chat group on here?
Thank you for reading my post x
Click to expand...
Hello,
I was diagnosed at 16months old and have had a fab childhood with diabetes. I'd highly recommend getting involved in a local Diabetes UK group. They have meetings where you can meet other diabetics /parents. That's where we got involved in adventure holidays and I met loads of kids with diabetes and we spent whole weekends in the lake district doing a range of activities while being cared for.
Be positive - treatment is so advanced now compared to even when I was diagnosed and I always think I am so lucky to have been diagnosed so young because you're able to adapt so easily!
Diabetes isn't the end, it's just a new way of life. I've travelled 300miles away from home to study at Uni; graduated; worked in a few different industries but am currently in private healthcare; travelled around the world (including to Australia!).
I guess all I'm saying is that while it's scary at times, your daughter can achieve anything she wants to!:D
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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