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Parent of 18 yr old diagnosed 18months ago

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Lorna Stafford

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi guys 1st time posting. My son who has learning difficulties got diagnosed just as he left special secondary school.We've just started DAFNE but its made us aware of his sensitivity to insulin which has caused daily Hypos...I'm feeling quite worried at the moment,would be nice to hear from people in the same boat ☺
 
Welcome to the forum, Lorna Stafford and son. We have several parents of teenagers on the boards, although I'm not sure if any have learning difficulties. I hope other posters can help.
 
Thank you for replying he's a very bright lad but has server dyslexia so I do a lot of organising for him.we thinkthat he was running at the higher end before the carb counting & its now become more obvious, would be nice to hear how others cope, I constantly worry about night time hypos at the moment .
 
Hello Lorna, and welcome 🙂
Which insulins has your son got, and how many units is he injecting at the moment? And has he been given half-unit pens? - if not, I recommend your or he ask his diabetes team for some. A pump might also be an option (if he doesn't have one already) as it would allow him to have much smaller doses of insulin at a time.
I have insulin sensitivity too, and have hypos virtually every day, sometimes 2 or 3 a day - can't offer any advice as to how to avoid them, I'm afraid, but I can reassure you that I'm still here, six years after diagnosis. I tend to wake up if I have a bad hypo in the night and get an adrenalin rush which helps me get up and deal with it. I suspect I also get slight hypos in the night quite often which don't wake me up, but that my liver produces enough glucose to make sure I'm OK.
Hypos in the night usually result in splitting headaches in the morning, so that's a sign to watch out for, and a cue to lower basal insulin.
 
Parents of younger children actually set their own alarm clocks for the middle of the night - to test their childrens BG for them. Have you explained the difficulty to the consultant and nurse at the diabetes clinic and discussed the best way forward? If not - then you need to!

You don't have to wait for the next appointment - you should give them a ring and ask for advice on adjusting doses - it's exactly what they are employed to give us!
 
Hello and welcome Lorna.

You and your son will see how much help is out there, and just how helpful everyone in here is.
Ask ANY question and you will get good answers.

Good luck girly.

Bill.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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