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Only taken 37 years but hi
- Thread starter Tigeral
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rebrascora
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Hi and welcome.
The forum is a great place to compare notes with others, and it is a gold mine of knowledge and information as well as emotional support. It is also just helpful to offload the strain and frustration of managing diabetes day to day on people who understand.... as well as share your little triumphs like when you manage to bolus a tricky meal successfully.
Interesting that you developed Type 1 after an accident. Was there damage to your pancreas or was it possibly the shock that triggered the autoimmune attack, do they think.... or have you not ever contemplated it? Hope you were not left with any other long term ill effects from the accident.
Which insulin(s) do you use and are you on a pump of Multiple Daily Injections (MDI)?
I see that you have found Libre a gamechanger as it is and hopefully you will manage to get the CGM feature working soon.
The forum is a great place to compare notes with others, and it is a gold mine of knowledge and information as well as emotional support. It is also just helpful to offload the strain and frustration of managing diabetes day to day on people who understand.... as well as share your little triumphs like when you manage to bolus a tricky meal successfully.
Interesting that you developed Type 1 after an accident. Was there damage to your pancreas or was it possibly the shock that triggered the autoimmune attack, do they think.... or have you not ever contemplated it? Hope you were not left with any other long term ill effects from the accident.
Which insulin(s) do you use and are you on a pump of Multiple Daily Injections (MDI)?
I see that you have found Libre a gamechanger as it is and hopefully you will manage to get the CGM feature working soon.
Hi lucyr whilst in the Royal Marines had a boating accident which knocked me out in Gibraltar and the trauma I made me type 1 when I was 22 as I wasn’t a diabetic when I joined up.
Proud to be erratic
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Hello @Tigeral and Welcome,
Interesting intro "Type 1 after an accident"; presumably your panc'y was damaged and you became insulin dependent. So, perhaps, you didn't have the autoimmune problem that killed off your beta cells or maybe the trauma from the accident triggered the autoimmune condition? Just curious, apologies. I'm T3c, after the total removal of my panc'y to counter Pancreatic Cancer, but this T3 descriptor is a relatively recent term (@Lucyr), intended to cover those circumstances where people had some form of panc'y damage from accident, surgery, steroid damage, alcohol, et al - leading to various flavours of T3 a-k. Most of these haven't gained much acceptance and thus not in common usage; however all the T3s (as if T1) are still only a small proportion of all the T1s. But it makes a difference as far as I'm concerned, since my D is very brittle - I get rapid changes from high to low in particular, which I believe is because I don't have any of the other pancreatic hormones and functions that help to 'soften' the BG changes. Anyway, I digress perhaps.
How long have you had Libre 2? Were you affected by the recent fiasco when Abbott converted the flash scan capability into the real time CGM? Are you now getting real time CGM? I used the unofficial Diabox app to pick up the Libre readings and display the info continuously and in a more user friendly format. When I first got Libre 2 in Feb 2020, I thought it was brilliant, but once I found the Diabox app I realised just how much more brilliant real time CGM is and how basic and clumsy Libre 2 was with the need to scan to find out what was going on (and the hit or miss nature of scanning, trying to find the right spot).
Anyway, welcome aboard!
Interesting intro "Type 1 after an accident"; presumably your panc'y was damaged and you became insulin dependent. So, perhaps, you didn't have the autoimmune problem that killed off your beta cells or maybe the trauma from the accident triggered the autoimmune condition? Just curious, apologies. I'm T3c, after the total removal of my panc'y to counter Pancreatic Cancer, but this T3 descriptor is a relatively recent term (@Lucyr), intended to cover those circumstances where people had some form of panc'y damage from accident, surgery, steroid damage, alcohol, et al - leading to various flavours of T3 a-k. Most of these haven't gained much acceptance and thus not in common usage; however all the T3s (as if T1) are still only a small proportion of all the T1s. But it makes a difference as far as I'm concerned, since my D is very brittle - I get rapid changes from high to low in particular, which I believe is because I don't have any of the other pancreatic hormones and functions that help to 'soften' the BG changes. Anyway, I digress perhaps.
How long have you had Libre 2? Were you affected by the recent fiasco when Abbott converted the flash scan capability into the real time CGM? Are you now getting real time CGM? I used the unofficial Diabox app to pick up the Libre readings and display the info continuously and in a more user friendly format. When I first got Libre 2 in Feb 2020, I thought it was brilliant, but once I found the Diabox app I realised just how much more brilliant real time CGM is and how basic and clumsy Libre 2 was with the need to scan to find out what was going on (and the hit or miss nature of scanning, trying to find the right spot).
Anyway, welcome aboard!
Never thought if as autoimmune attack it was diagnosiced whilst in HM haslar in Portsmouth. When you had to clean your own injection kit!! I take two insulin tresiba on a night and daily novorapid
Proud to be erratic
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I have many fond memories of Gibraltar, '99-2002. I first visited in '76 when the border was still closed. Presumably the Marines had to pension you off after your accident? In 2004 the Services allowed their first T2 to remain in active service. Until then such illnesses were deemed medically unsupportable for front line troops and exceptions for more administrative rear area functions were far and few between.
Thanks for welcome, had libre since it came out and managed great over the years and got my relation on to using it as well which made a difference however the CGM system of Libre2 still isn’t working with new app and new sensor but works fine to scan until I speak with Abbitts
Yep pensioner since 23 but had 7 great years
rebrascora
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I have heard of people developing Type 1 after significant shock including grief due to unexpected loss of a loved one, as well as the more usual suspected trigger of a virus, although the exact cause is rarely identified and more suspected. Just to explain, diabetes is categorized by the cause, so Type 1 is where the immune system has attacked the insulin producing beta cells in the pancreas ie autoimmune, Type 2 is metabolic, Type 3, as has been explained by Roland, is damage to the pancreas through disease, trauma or surgery. Do you know if you suffered abdominal injury during the accident?
Proud to be erratic
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I think the update is still only for iPhone. I'm on android. I was grateful for Libre, but my body and Libre weren't great mates and I had over 50% failures; none fell off just very irregular behaviour, poor compatibility with finger pricks and frequently ending early. Once the NICE Guidelines were updated in spring '22 I was able to move across the Dexcom One (virtually the same cost to the NHS as L2) which is real time CGM and is a little more compatible with my body than L2. But overall its different and there are various +/-'s between Dex One and L2.
On Thursday I ordered a Dexcom G7, at my expense, to try; and I was pleasantly surprised to receive that in this morning's post. Each sensor only lasts 10 days and I won't be fitting it for another week - but I was impressed by Dexcom's customer support and the G7 reviews read well - so it's going to be about compatibility with me!
New realised all theses different types existed only ever been told I’m type 1! Will have to ask question at next clinic
Proud to be erratic
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From your perspective it probably now makes little difference. You've found your way of managing your T1 over the last 37 years and the most important thing is to be recognised as T1, since the NICE Guidance places much more support for T1 than T2 (eg CGM). So, for example, insulin dependent T2s don't necessarily get CGM - for them it's partly a post code lottery whether the financial cover is made available for their region. It will be interesting to see if the people at your next clinic are even recognising the T3 variants; my GP certainly didn't initially and shortly after my surgery even decided unilaterally to ration my test strips, reasoning that I wasn't a true T1 and didn't need to test more than 4 times daily.
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