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Ok let me tell you this story - driving me nuts!

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Lolavegas

Member
Relationship to Diabetes
Type 2
Happy to receive comments and experiences because I am almost at my wits end with this!

1. Diagnosed almost a year ago with type2...got under control really quickly with metformin and diet, lost 2 stone felt fabulous and Doctor very happy..I was very positive about it.

2. 6 weeks ago BG levels suddenly went to 22 on waking and the only way they would go from there was UP. Was in constant contact with Doctor and we tried - waiting to see if it was an infection. Increasing metformin to 4 a day...eventually started to get infections and fevers and spending most of the time in bed....took antibiotics ...got rid of infection BG levels still in 20s. testing for ketones throughout the day...nil.

3. Doctor then tried Gliclazide along with increased metformin dose...now taking a vat of pills and testing for EVERYTHING - its like a full time job. By this time I have no appetite, lost my sense of taste lost another 8 pounds in a week. I have a referral to go onto insulin.

So....it appears the diabetes has suddenly become more agressive and cannot be controlled...anyone else had this happen? What happens when you go onto insulin? Do you use a pen or injections? Any comments appreciated...I can't actually live my life now...and if I get ketones or appear confused I have to go straight to hospital which means everytime I don't quite understand what my husband is talking about (which is not unusual) hes trying to drag me to A&E!!!!!
 
Welcome Lolavegas.

Many people with type 2 diabetes have successfully gained control of their condition / life with insulin or other injectable medications such as Victoza or Bryetta. Some GPs / practice nurses can start patients on insulin, but Vicotoza & Byetta can only be prescribed initially by diabetes specialists, usually in hospital clinics.

Some of these injectable medications are available in a choice of pen devices, either with cartridges or pre-filled, always with disposable very fine needles. Pre-filled pens means you have to throw away the whole device each time, which is more wasteful, both in terms of materials used in manufacture and the extra bulk of what goes into sharps bin.
 
Can you test for ketones ? If you can then test when the OH wishes to drag you to A&E. Its good that he wants to take care of you - and if you have the means to show him A&E isn't necessary - that can only be good.

I have no idea why your diabetes seems to have progressed rapidly. Has your Dr checked your adrenal function as sometimes problems in that area can make diabetes difficult to control.

Hopefully you will get your appointment at the hospital soon and will be on the road to recovery.
 
Hi Sorry to hear of your situation.
I wonder if you have been misdiagnosed and are infact a slow onset type 1.
I hope things are soon sorted for you.
 
Yeah I've got Ketone testing strips...

It is weird though isn't it? Hopefully the specialist will have some answers...I am annoyed because I was SO positive about everything, still am up to a point when when it starts stopping your life...I couldn't possibly get a job at the moment and because of the high BG my eyesight means I can't drive!

Moan moan moan! Neither the metformin or the gliclazide are doing anything at all! I've decided to stay positive and declare myself a medical marvel!!
 
Pumper_Sue said:
Hi Sorry to hear of your situation.
I wonder if you have been misdiagnosed and are infact a slow onset type 1.
I hope things are soon sorted for you.
Click to expand...

Now THAT sounds interesting and logical. Would type 1 not respond to medication like Metformin?
 
Lolavegas said:
Now THAT sounds interesting and logical. Would type 1 not respond to medication like Metformin?
Click to expand...

Hi,
from what I can gather it helps to start with whilst you still have some pancreas function. But once pancreas has gone awol it has nothing to work on.
So your only option is insulin replacement.
Have you any idea how many carbs you are eating a day? Would it help to review what you are eating carb wise untill you get the help you need.
If it were me I would ring the local diabetes centre and speak to a dsn and see if they can fit you in any sooner.
 
Five years ago I found out I was diabetic.I had pregnancy diabetes three years before that.

I was put on two metformin and then four metformin and it worked for about 18 months but then bloods went higher and I was put instantly on insulin.They didn't bother with the other type two meds at all.

So my diabetes progressed really quickly but then it may have been that I was diabetic for much longer than I thought.
I am on about 30 units of levemir and about the same of novorapid.My insulin requirements have upped a lot in the last two years.I have also been put onto four metformin a day,which was upped from two.
 
I sympathise

Hi Lovelavegas
Sorry to hear your story. I have been a diabetic for 8 years (type 2, now on insulin). I started off on tablets but then rapidly progressed to insulin. Now my insulin does not seem to be controlling my sugars, even though I am constantly increasing it and eating sensibly. I think it is impossible to totally control your diabetes if you have type 2, as you either don't produce enough body insulin or don't produce it at the right time. It also annoys me when people think that type 2 is nothing to worry about, I actually think it is worse than type 1. Hope you get sorted.
 
Copepod said:
Welcome Lolavegas.

Many people with type 2 diabetes have successfully gained control of their condition / life with insulin or other injectable medications such as Victoza or Bryetta. Some GPs / practice nurses can start patients on insulin, but Vicotoza & Byetta can only be prescribed initially by diabetes specialists, usually in hospital clinics.
.
Click to expand...

Not true, thankfully, as my GP started me on Victoza. The situation changes rapidly, my friend had to go to the diabetic clinic at the hospital to start his Byetta treatment a year ago, but the GP can prescribe it now.
 
Like an awful lot of other things, depends on your PCT .....
 
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