Nothing like your first time

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GooseyGander

Active Member
Relationship to Diabetes
Type 2
Hi all,

l‘ve been reading this forum since I was diagnosed in July and it’s really helped (thank you all) and I thought I would post to let you know my experience, as you say, it may help others… (sorry for the long story)…

I'm a 39 year old male and have a reasonable active job. I didn't think I was over weight (13st 8 at the start of the year) and thought didn't have a particularly bad diet, but looking back it was. I work antisocial hours so there was lots of snacking, late night eating and takeaways, when I couldn't make my own food with veg and fruits.
Last year I realised I kept needing the toilet for a wee every 3 hours almost like clockwork, and needing the loo regularly in the night. It seemed to subside after a couple of weeks so I thought it 'was just a phase' and carried on as normal. Then at the start of this year it happened again and one morning woke up blurry eyed and this had never happened before. I decided to Google MD it (and had everything from bladder infection to cancer) and the majority of everything pointed to Diabetes (as my dad is T2 as well). So decided to go and get tested! (I should have done it earlier but thought I’d be wasting peoples time because I was youngish and fine otherwise)

I saw my GP, who did a urine test and said there was glucose in it and that it was likely to be Diabetes but needed to blood tests the following day to confirm and would take a couple of days for the results. I finally managed to speak after, 5 days, to the Practice Nurse who said my results were a little high, I asked “a little?” and she said “well very, 80 when it should be 40”. Shocked was a mild understatement!

I saw the GP again who confirmed through another urine test that it was a type 2 and, within a week of my first, sent me for a second blood test to confirm the diagnosis (came back 78, confirmed!).

The next day saw the practice nurse to give me details about diabetes and to see what to do going forward. If I'm honest this was the most pointless exercise and I went with my wife we’re both left aghast of how she treated us. Very defensive, matter of fact and didn’t really seem to realise that I was concerned and wanted to see what I can do. She did the usual things, foot test, weight, and gave me a monitor to use, although she said I didn’t need to use it but it was up to me. She then proceeded to use it on me, could seem to get it to work and wasted about 4 or 5 strips before we got enough blood and a couple of lance jabs, not the greatest thing for something I have found is reasonably simple and doesn’t hurt (It was 8.1 before lunch and 4 hours after breakfast). She, instead of talking to me, just handed me a print out from the NHS website, which I had already read, about what Diabetes was. She told me I would get I course to go on of my choice (I missed the dates due to work, is it worth it, should I follow up to try and get on it?)

I then said I had read the Michael Mosley book and wanted to try and see if I could get into remission. She told me not to bother as it was unsustainable to live on that diet and that I should just cut back on sugary drinks (which I had a while back) and only have 1 or 2 Greggs sausage rolls a week (as I unsuccessfully joked about them in the appointment). She said she was going to prescribe 1000mg of Metformin (but could take just 500 if I wanted, which I am) and 80mg of Gliclizide as that controls BG quicker than Metformin. I asked if it was worth me dieting to at least try and not go on the meds and she said we need to control it get it down now so just take the drugs. I told her I was going to diet and exercise as there was no harm in trying to aim for remission even if it’s not possible. She looked down on my and said ”I have never known someone with your high result be able to get into remission…” then with condescension she said “… who knows you maybe my first miracle case!!”. I was livid with the lack and support and the fact that I do not want to be on drugs for (hopefully) another 40+ years, when there maybe something I could do something about it.

Since then I followed the Michael Mosley 800 calories a day book for 8 weeks, not religiously counting the calories/carbs but doing measured fruits, nuts and and Greek yoghurt for breakfast, salad, avacardo, mushrooms etc and a protein for lunch and then either chicken and fish with either veg, courgetti or cauliflower rice for dinner, no alcohol or sweet stuff. My only treats were 100% peanut butter and chunks of Cheese. For excercise I am trying to keep doing push-ups, crunches, planks, squats and hitting as close to 10,000 steps as possible.

Since the 8 weeks I have kept a similar diet but gone to more a Mediterranean diet as suggested and put back treats of red wine and the occasional whiskey or brandy. I have gone from 13st 4 at the first GP visit to 11st 8 this morning, which has stabilised to this over the past 4 weeks.

I have kept a basic food diary since being diagnosed which has My meter test every morning (has stayed between 4.1-7 except for one erroneous 7.6), my daily weight, and then a bit of info of anything that happened on that day in case I went to the doctors, out for dinner, was stressed at work or just interesting info.

My next blood test is next week, so will be interesting to see!

Thank you and sorry if you read this far!!!
 
She looked down on my and said ”I have never known someone with your high result be able to get into remission…” then with condescension she said “… who knows you maybe my first miracle case!!”.

She should meet @Martin.A - diagnosed in the 100s, and now happily living on a relatively low carb menu, and in remission since Jan 2020! One of many on the forum with similar stories.

Sorry to hear about the negativity of your appointment, and the tone your diabetes nurse took. I think perhaps, reading between the lines, it speaks of someone whose experience day to day with others diagnosed with diabetes had led her to believe that people can’t make effective lifestyle changes (or perhaps aren’t interested in doing so). It then becomes a self-fulfilling prophecy, and could be sufficient to deter anyone she sees from even trying!

Thanks for sharing your story. I look forward to you receiving your results from her at your next checkup - which seem sure to have slashed your HbA1c with the fingerstick results you are getting.

Thanks for sharing your story, and glad you have de-lurked 🙂
 
Hi @GooseyGander, I'm glad to hear you've been finding the forum useful, and to hear about your experiences!

It definitely sounds like an interesting experience with your nurse! I'm also sorry to hear about that, and hope that next time you see them it's more positive.

Many people we speak to find diabetes courses very helpful and informative, particularly around food. You may already know the names of them, but they're listed here on our website - https://www.diabetes.org.uk/guide-to-diabetes/managing-your-diabetes/education

And as everydayupsanddowns said above, looking forward to hearing about your results! It sounds like you've put in a lot of effort and thought into food and exercise, so fingers crossed that should be reflected in a lower reading. Please reach out again if you need any advice or have any Q's 🙂
 
Great progress!

I was told to lose weight and see if it goes into remission, and my hba1c was 83. Just 1000mg of Metformin and no real urgency and zero advice. (I used the work of Dr David Unwin, low carb GP, in cook books aimed at people with T2 diabetes.) The staff my surgery are pretty nice and not condescending at all.

It's been in the 30s for almost two years now and I'm only taking 500mg of Metformin (Which they wanted me to stop, but as I get no side effects I carried on just in case.)

With readings like that I think you'll get a good result!
 
Hi @GooseyGander
Very sorry to read about your DNurse experience.
I’m lucky that mine takes the polar opposite view and encourages me no end.
My initial count was 87, meds,diet changes and exercise meant it dropped to 38 12 weeks later.
My nurse was thrilled and stopped all meds.

Would love it if you got similar result, which it very much sounds like you’re on track for, not only for your well-being but to wake up your DNurse!
Maybe you can change her outlook, which just might help the next poor soul she sees.
Go get her!!
Keep up the good work
 
She should meet @Martin.A - diagnosed in the 100s, and now happily living on a relatively low carb menu, and in remission since Jan 2020! One of many on the forum with similar stories.
My first thought, Mike, but nice to know she considers me to be one of the site's medical miracles.
 
My first thought, Mike, but nice to know she considers me to be one of the site's medical miracles.
It’s amazing and something to aspire to. Got to love a miracle and it would be great to achieve one. Thank you for everyone you support and the advice you give.
 
An update:
Just logged on to my NHS app and found my results from my blood test on there, that I had a couple of days ago;
So after 3 months my HbA1ca is down from 80 to 36!
Beyond anything I could have thought, thank you guys on here and throughout the forum for your continuous help, support and advice (even in my lurker mode @everydayupsanddowns 😉 )

My concern now is keeping it around that level, I don’t want to fall back into bad habits, at all. I have a BG monitor so will test more to see what food increases things more. Any advice?

I want to stop the medication but I guess I have to wait until my next check go visit in November by the looks of it.

I’m Chuffed, but here is to being strong, and keeping it going on my diabetic journey…!!!
 
Wow!!!!!
Well done. What a turn around.
Using BG tests can be very helpful in identifying changes to portion sizes and/or food choices that can further help you. You have clearly made a good start with the changes made and I hope that you are able to persuade your team that you could try coming off the meds at your next check up. Congratulations.
 
Wow!!!!!
Well done. What a turn around.
Using BG tests can be very helpful in identifying changes to portion sizes and/or food choices that can further help you. You have clearly made a good start with the changes made and I hope that you are able to persuade your team that you could try coming off the meds at your next check up. Congratulations.
Amazing. Well done. No doubt miserable mary will want to give all th e credit to the drugs and none to your outstanding efforts. Don’t let her!

I’m a bit unclear exactly which drugs you’re on but there’s no way Metformin would achieve that (or even gliclizide as well). I‘d strongly push for a reduction or cessation of the gliclizide as that has hypos as a side effect and you need to be testing for driving. Ditching that would avoid those hassles. If she balks then suggest a trial and a retest in 3 months.
 
So after 3 months my HbA1ca is down from 80 to 36!

Wow! Amazing stuff @GooseyGander

Allow yourself to relish the expression on your nurses face at your next appointment when she has to give you your results :rofl:
 
That's a brilliant result - well done. Just the kind of result that shows newly-diagnosed members what's possible. Really pleased for you.
 
@SB2015 thanks for this. I think I need to ask them to up my strip allocation as I only get 50 for 2 months (but 100 lances). I really enjoy seeing the results, I like to see trends but BG really annoy me as I can’t seem to see it yet! Ha. I was 7.2 this morning and other than a couple of spoons of peanut butter and a brandy yesterday I didn’t really have anything too treaty! I’m sure I’ll get my head around it!

@everydayupsanddowns So the downside is that I’m not booked in with a different doctor, my 3rd since being diagnosed. I hope I can get to see the nurse again at some point though… 😉

@HSSS Thanks so much. I’m on a single tablet of both Metformin and Gliclizide every morning and that’s it, I’m hoping to stop both, but what ever works I suppose.

@Martin.A Thank you, it’s stories like yours that help me, and made me understand it can be reduced. I don’t want it to be a flash in the pan though, keep the PMA and keep going and hopefully keep it down and maybe make it into remission. So much so went out for my hour walk this morning and 6,000 steps.

I hope that I help someone that was as confused as me when I started, and that they know from this site that they are not alone and someone on here has probably been through it and can help.
 
I’m not booked in with a different doctor, my 3rd since being diagnosed. I hope I can get to see the nurse again at some point though… 😉
When I have an appointment at the GP surgery I would much prefer to see the nurse who specialises in diabetes rather than one of the GPs. The nurses are more experienced in general.
 
An update:
Just logged on to my NHS app and found my results from my blood test on there, that I had a couple of days ago;
So after 3 months my HbA1ca is down from 80 to 36!
Beyond anything I could have thought, thank you guys on here and throughout the forum for your continuous help, support and advice (even in my lurker mode @everydayupsanddowns 😉 )

My concern now is keeping it around that level, I don’t want to fall back into bad habits, at all. I have a BG monitor so will test more to see what food increases things more. Any advice?

I want to stop the medication but I guess I have to wait until my next check go visit in November by the looks of it.

I’m Chuffed, but here is to being strong, and keeping it going on my diabetic journey…!!!

This is such amazing news! Super inspiring and as I said above, it proves the effort you have put into everything. Thank you for giving us this update, we're all very happy for you :D
 
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