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Not so newbie...

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Shaolin

New Member
Relationship to Diabetes
Type 1
Hi,
I'm Dan. I was diagnosed in 1990 at the age of 17. It is a fascinating and sometimes wearing journey. I started with syringes and slow acting insulin twice a day. I had to eat a set amount of carbs (without carb counting!??) for each meal. My test strips changed colour that you compared on a chart. I know people who started only able to test their urine, yet we have come such a long way in a short time. I was originally told to keep my sugars between 3 and 9 (I was corrected on that, 10 years later....)

I moved from St Thomas' to St Georges and then to Kings College Hospital. I have participated in quite a few medical trials to try and do my bit to help medical tech and medicine with our condition.

I now have a great and supportive team. I'm on a pump (Dana RS) with a CGM (Libre with MM2) and a closed loop system, Android APS. I still struggle at times and sometimes I have a rollercoaster graph, for seemingly no reason at all. I believe that we are always still learning. It was fairly recently for instance that the idea that high fat meals (pizza, cheesy pasta etc.) need an extended (dual wave) bolus to deal with the delayed absorption of the carbs (and that the total carbs will be higher because of the fat...).

I had to give up on my ambition to be a pilot, when I was diagnosed at 17. However 15 years later T1s were allowed to become commercial pilots. I do not think that it defines us and in 99.9% of cases it shouldn't be a reason to hold us back. As much as I wouldn't miss it, it is now easier than it has ever been to deal and live with.
😉
Dan
 
Welcome @Shaolin 🙂 I have the DANA RS pump too (but without looping). I remember the test strips where you compared colours or stuck them in the meter. I actually quite liked them apart from the enormous drop of blood and the wiping off palaver:D I liked the visual check they provided.

I agree that Type 1 is easier to live with now, but I can’t wait till the day nobody has to live with it at all!
 
Welcome to the forum @Shaolin.

Please join in with daily posts your knowledge can help others
with their Diabetes journey and you may have questions that
other members can help with.
 
Welcome to the forum @Shaolin

Ah ‘BM sticks’ and hastily scribbled blood glucose diaries just before appointments 😉

I was just a year later than you and remember it well.

Great to hear a little of your story, and look forward to hearing more from you over the coming weeks and months.

We have a few hybrid-closed-loops of different flavours on the forum, but it’s good to have AAPS represented 🙂
 
Hi,
I'm Dan. I was diagnosed in 1990 at the age of 17. It is a fascinating and sometimes wearing journey. I started with syringes and slow acting insulin twice a day. I had to eat a set amount of carbs (without carb counting!??) for each meal. My test strips changed colour that you compared on a chart. I know people who started only able to test their urine, yet we have come such a long way in a short time. I was originally told to keep my sugars between 3 and 9 (I was corrected on that, 10 years later....)

I moved from St Thomas' to St Georges and then to Kings College Hospital. I have participated in quite a few medical trials to try and do my bit to help medical tech and medicine with our condition.

I now have a great and supportive team. I'm on a pump (Dana RS) with a CGM (Libre with MM2) and a closed loop system, Android APS. I still struggle at times and sometimes I have a rollercoaster graph, for seemingly no reason at all. I believe that we are always still learning. It was fairly recently for instance that the idea that high fat meals (pizza, cheesy pasta etc.) need an extended (dual wave) bolus to deal with the delayed absorption of the carbs (and that the total carbs will be higher because of the fat...).

I had to give up on my ambition to be a pilot, when I was diagnosed at 17. However 15 years later T1s were allowed to become commercial pilots. I do not think that it defines us and in 99.9% of cases it shouldn't be a reason to hold us back. As much as I wouldn't miss it, it is now easier than it has ever been to deal and live with.
😉
Dan
So inspiring to read your story and I look forward to hearing more. I agree it shouldn't hold us back though at times it can make everything just a little harder! I am only 5 years in and have since worked around the world, giving talks and not let it stop me. I do feel lucky to have it now with all the amazing technology rather than back in syringe days.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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