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Not good few days

Woodywoodpecker

Woodywoodpecker

Well-Known Member
Relationship to Diabetes
Type 1
Pronouns
She/Her
Hi all bit off a moan the day, feel like I’ve had **** few days. Everything been going good till last few days, then feel like it’s all went south. Actually quite mad at myself, thinking what am I doing wrong bit on the higher side. Not had the best off sleep last few nights, don’t know if that’s god anything to do with it. Does anyone else get times like this, or is it just me
 
Sorry it feels like it's all going wrong. It's definitely not just you, everyone feels like that some of the time and if you're anything like me, it's worse at this time of the year.

Lack of sleep will also make things seem worse than they are.

Hope you're back to normal quickly.
 
Dishevelled said:
Sorry it feels like it's all going wrong. It's definitely not just you, everyone feels like that some of the time and if you're anything like me, it's worse at this time of the year.

Lack of sleep will also make things seem worse than they are.

Hope you're back to normal quickly.
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Thank you, only had since April so can’t comment on this time off year
 
Indeed, this is the time of the year when I go off the rails if I'm going to. Before I took up walking anywhere and everywhere I used to love the cosy winter nights. But that was also when i could curl up with buttered crumpets and some biscuits!
And yes, lack of sleep doesn't help.
I love my new lifestyle with low carbs and exercise, but it's definitely more challenging in the winter.
Hope you perk up soon xx
 
Vonny said:
Indeed, this is the time of the year when I go off the rails if I'm going to. Before I took up walking anywhere and everywhere I used to love the cosy winter nights. But that was also when i could curl up with buttered crumpets and some biscuits!
And yes, lack of sleep doesn't help.
I love my new lifestyle with low carbs and exercise, but it's definitely more challenging in the winter.
Hope you perk up soon xx
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Thank you early night tonight, was last night but some kind person decided to message me at 9.45
 
Diabetes does have rough spells and smooth spells, so I can have fairly uneventful plain sailing for weeks sometimes, where things mostly behave as I expect them to and then it suddenly goes off the rails a bit and I am fighting my diabetes and need lots of corrections and sometimes end up on the rollercoaster which is absolutely no fun at all and it doesn't make sense and chews me off. Usually I resort to a bit of basal dose adjustment if it persists for more than a couple of days and then I get back to plain sailing again. I have learned not to let it frustrate me as much as it used to and that certainly helps, but knowing from experience that it will come right again, tides me through those bad spells now.
Of course there are things like illness and stress and lack of sleep and coming to the end of the honeymoon period which throw a real spanner in the works too and have to be negotiated, but for the ordinary rough periods, I just keep my head above water as best I can until it settles down again and so far it has. I used to get wound up about it ruining my TIR stats but it the long run they are largely unaffected by these spells and are still good, so I am slowly learning to just be accepting that they happen like most other things in life that ebb and flow and you have to take the rough with the smooth.
 
rebrascora said:
Diabetes does have rough spells and smooth spells, so I can have fairly uneventful plain sailing for weeks sometimes, where things mostly behave as I expect them to and then it suddenly goes off the rails a bit and I am fighting my diabetes and need lots of corrections and sometimes end up on the rollercoaster which is absolutely no fun at all and it doesn't make sense and chews me off. Usually I resort to a bit of basal dose adjustment if it persists for more than a couple of days and then I get back to plain sailing again. I have learned not to let it frustrate me as much as it used to and that certainly helps, but knowing from experience that it will come right again, tides me through those bad spells now.
Of course there are things like illness and stress and lack of sleep and coming to the end of the honeymoon period which throw a real spanner in the works too and have to be negotiated, but for the ordinary rough periods, I just keep my head above water as best I can until it settles down again and so far it has. I used to get wound up about it ruining my TIR stats but it the long run they are largely unaffected by these spells and are still good, so I am slowly learning to just be accepting that they happen like most other things in life that ebb and flow and you have to take the rough with the smooth.
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Thank you so much. Feel like on rollercoaster at the moment, think I’m exhausting myself with it all. Been doing good lately tir in the 80s now 68. Sensor not working properly gave me some anxiety for couple off days, certainly working now as low at half one this morning. Don’t know if I am in honeymoon period or not, hospital never said much about it. Hopefully good nights sleep will help, and try to chill out more. I just get so mad with myself
 
You do know about compression lows don't you? Lying on the arm with the sensor during your sleep can cause false low readings? Always best to double check low Libre alarms during the night with a finger prick unless you are experienced and confident of identifying compression lows from genuine ones, from the graph or from your sleeping position when the alarm goes off etc.

I think, much as Libre is a great bit of kit, when things start going wobbly with your diabetes it can be very tempting to start reacting to the Libre readings rather too quickly without double checking them, causing the roller coaster to get worse, rather than just waiting it out a bit. I did that last week and I really should know better! 🙄
 
rebrascora said:
You do know about compression lows don't you? Lying on the arm with the sensor during your sleep can cause false low readings? Always best to double check low Libre alarms during the night with a finger prick unless you are experienced and confident of identifying compression lows from genuine ones, from the graph or from your sleeping position when the alarm goes off etc.

I think, much as Libre is a great bit of kit, when things start going wobbly with your diabetes it can be very tempting to start reacting to the Libre readings rather too quickly without double checking them, causing the roller coaster to get worse, rather than just waiting it out a bit. I did that last week and I really should know better! 🙄
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Have seen few posts on here about it, don’t have many night lows but will check in future, in the beginning had more but usually half asleep, and wud just take couple off glucose pills and snuggle back in. Day ones usually double check with finger prick
 
Woodywoodpecker said:
Thank you so much. Feel like on rollercoaster at the moment, think I’m exhausting myself with it all. Been doing good lately tir in the 80s now 68. Sensor not working properly gave me some anxiety for couple off days, certainly working now as low at half one this morning. Don’t know if I am in honeymoon period or not, hospital never said much about it. Hopefully good nights sleep will help, and try to chill out more. I just get so mad with myself
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Don’t let the Type1 get to you @Woodywoodpecker That’s what it does: be fine then randomly go mad with highs and/or lows. Experience can help but perfection is impossible - even for people who’ve had it for decades.

If you have ‘bad’ results, don’t dwell on them. Try to work out if it’s anything you did (often it’s not), then deal with it and put it out of your mind. I also suggest you don’t look at the Libre TIR when you’ve had some s**t days or been ill or whatever. There’s zero point in looking. You know it will be worse, you didn’t do it on purpose, and looking is just upsetting yourself for no reason.
 
Inka said:
Don’t let the Type1 get to you @Woodywoodpecker That’s what it does: be fine then randomly go mad with highs and/or lows. Experience can help but perfection is impossible - even for people who’ve had it for decades.

If you have ‘bad’ results, don’t dwell on them. Try to work out if it’s anything you did (often it’s not), then deal with it and put it out of your mind. I also suggest you don’t look at the Libre TIR when you’ve had some s**t days or been ill or whatever. There’s zero point in looking. You know it will be worse, you didn’t do it on purpose, and looking is just upsetting yourself for no reason.
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Thank you, and you are right need to stop looking at tir, had bit better afternoon hopefully good nights sleep will help as well
 
It's tough sometimes and we just have to hang in there. After a lengthy period of stability, there are the occasional unexpected blips. I had an unexpected hypo yesterday and it was horrid, but in my stressed and confused state I did everything I shouldn't have done - I was 3 with a downward arrow despite just eating. When my wife got in from work around 6pm, she found me pacing up and down in the kitchen after making dinner for our daughter, emptying the dishwasher, tidying the lounge, loading the washing machine, trying to help with maths homework etc etc. She kept asking if I had eaten, asking what my BG was and I apparently just kept busying myself with tasks "I'll sort it in a minute". Eventually she forced me to sit down. I was very dazed and confused and then fell into the trap of eating my way out of the hypo - Jelly Babies had done nothing after 20 minutes so I had more, then chocolate, a few biscuits and around an hour later I felt human and could rationalise everything that had happened earlier. Sadly that meant the commencement of a rollercoaster over the next 12 hours or so - up to 15 around midnight and then a hypo around 6am. Exhausting!

As @rebrascora mentioned, we have to learn to take the rough with the smooth. Over time it is thankfully less rough!
 
Sorry to hear your diabetes has gone a bit wobbly for a few days.

You certainly aren’t alone, and you’ll get used to your T1 behaving like a grouchy toddler or cantankerous elderly aunt at times.

This is the hardest thing about living with T1 for me. Doing the routine stuff of carb counting, doses, corrections, workarounds for exercise, strategies for particular tricky meals etc etc etc is pretty easy and untroubling when it mostly works. The real grind for me is putting in all that effort and getting chaotic numbers back for no reason, and then having to go round and double-guess / tweak everything again so that it mostly works again. 🙄
 
Ivostas66 said:
It's tough sometimes and we just have to hang in there. After a lengthy period of stability, there are the occasional unexpected blips. I had an unexpected hypo yesterday and it was horrid, but in my stressed and confused state I did everything I shouldn't have done - I was 3 with a downward arrow despite just eating. When my wife got in from work around 6pm, she found me pacing up and down in the kitchen after making dinner for our daughter, emptying the dishwasher, tidying the lounge, loading the washing machine, trying to help with maths homework etc etc. She kept asking if I had eaten, asking what my BG was and I apparently just kept busying myself with tasks "I'll sort it in a minute". Eventually she forced me to sit down. I was very dazed and confused and then fell into the trap of eating my way out of the hypo - Jelly Babies had done nothing after 20 minutes so I had more, then chocolate, a few biscuits and around an hour later I felt human and could rationalise everything that had happened earlier. Sadly that meant the commencement of a rollercoaster over the next 12 hours or so - up to 15 around midnight and then a hypo around 6am. Exhausting!

As @rebrascora mentioned, we have to learn to take the rough with the smooth. Over time it is thankfully less
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everydayupsanddowns said:
Sorry to hear your diabetes has gone a bit wobbly for a few days.

You certainly aren’t alone, and you’ll get used to your T1 behaving like a grouchy toddler or cantankerous elderly aunt at times.

This is the hardest thing about living with T1 for me. Doing the routine stuff of carb counting, doses, corrections, workarounds for exercise, strategies for particular tricky meals etc etc etc is pretty easy and untroubling when it mostly works. The real grind for me is putting in all that effort and getting chaotic numbers back for no reason, and then having to go round and double-guess / tweak everything again so that it mostly works again. 🙄
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Thank you, think I’m finally back on track. Had good 8 hours sleep last night, first good nights sleep since last Friday, feeling much more positive today. Do find mornings are my worst when working, I inject wait 20 minutes then have breakfast, but between 8.30 and 10.30 feel I have to snack to keep glucose up. I need xtra nova rapid to stop spiking too much first thing. Thanks everyone for your support
 
Woodywoodpecker said:
I need xtra nova rapid to stop spiking too much first thing.
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It is an easy mistake to make to assume you need more insulin to prevent the spike, when often what you actually need is to give your insulin more time to work before you eat. With Novo(notso🙄)Rapid, I used to need over an hour each morning before eating breakfast to prevent spiking up to about 15 and then coming back down to 5 later. My insulin dose was enough to bring me back down into range without needing extra, but it needed more of a head start than the typical 20-30mins prebolus time. I experimented by bringing the injection forward by 5 mins each day, until the peak started to flatten to a level that I was happy with. Now I inject as soon as I wake up and before I get out of bed for breakfast and then usually I have time to go to the loo and get washed and dressed and make my breakfast and a coffee before I eat and I don't often go above 8 anymore. I use a faster insulin (Fiasp) now but I still need 30-40mins prebolus most mornings unless my waking levels are low ie in the 4s or low 5s.

Of course, if you are happy having a mid morning snack to resolve the problem then stick with that..... or you could ask for a faster insulin. There are always different options to get around a problem.
 
rebrascora said:
It is an easy mistake to make to assume you need more insulin to prevent the spike, when often what you actually need is to give your insulin more time to work before you eat. With Novo(notso🙄)Rapid, I used to need over an hour each morning before eating breakfast to prevent spiking up to about 15 and then coming back down to 5 later. My insulin dose was enough to bring me back down into range without needing extra, but it needed more of a head start than the typical 20-30mins prebolus time. I experimented by bringing the injection forward by 5 mins each day, until the peak started to flatten to a level that I was happy with. Now I inject as soon as I wake up and before I get out of bed for breakfast and then usually I have time to go to the loo and get washed and dressed and make my breakfast and a coffee before I eat and I don't often go above 8 anymore. I use a faster insulin (Fiasp) now but I still need 30-40mins prebolus most mornings unless my waking levels are low ie in the 4s or low 5s.

Of course, if you are happy having a mid morning snack to resolve the problem then stick with that..... or you could ask for a faster insulin. There are always different options to get around a problem.
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Thank you, don’t have a lot off extra time on mornings that I work, days I’m off are better. Don’t mind having a snack as lost 3 stone, I’m tall so need to put some weight back on, sick to death off people telling me I need to eat, I feel I’m eating more than I did before minus rubbish and full fat cola
 
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