• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Newness

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

LMcA91

New Member
Relationship to Diabetes
Type 1
hello all,
I have thought about joining here for years and never did, but here we are lol!
I’m type 1, pump user! And to be quite honest I am not doing so well right now! I think I am just burnt out! So I am hoping I get some inspiration on these forums!!
 
Hi and welcome.

Sorry to hear you are feeling burnt out with managing your diabetes. I am sure I don't need to tell you that diabetes takes up a lot of mental bandwidth day in, day out, meal by meal, car journey by car journey, before during and after any exercise and activity and even whilst we sleep our mind has to continue monitoring things and perhaps intervening to wake us to take action. I think it is important firstly to acknowledge that you have been successfully managing that drain on your mental resources for a long time, so give yourself a big pat on the back. I wonder if perhaps there are currently other issues which are placing extra needs on your mental capacity making the diabetes more challenging now because you can't spare it as much capacity.

I have only been managing my diabetes 4 years but I know that there is a need to ebb and flow with it. Sometimes, it is OK and even necessary to drop your standards a bit and just do the bare essentials to tread water with it and then when you feel a bit better, you can take up the slack and have more control. When you hit those challenging times, finding little strategies to get you though can help. I believe @Inka and @SB2015 have been through burnout and talked openly about their experiences here on the forum and what helped for them.

Which pump do you have and is it integrated with a sensor into a closed loop system. If not, perhaps that would be something to discuss with your team to take some of the strain off you, although it can take some extra input initially I believe. Or perhaps a break from your pump and going back to injections for a short (or long) while might give you some respite. I don't have a pump, but I use Libre and whilst I absolutely love it and the data it gives me, sometimes when things are not going so well, it starts to feel a bit like "the spy in the cab" and I resent it recording every little mistake or bad decision I make. If I then have a break from it, I come back to it in a week or two feeling almost relieved to have it back and appreciative of how much it helps me, so it might be worth considering a pump break, if those are the sort of feeling you are having.

Another thing that really helps mentally, is just connecting and comparing notes with others in a similar situation, which is why this forum is such a wonderful resource. It is hard for none diabetics to really understand how much thought we have to devote to our diabetes on a daily basis, so it can be quite isolating, but here we get it. We understand the need to have a good moan sometimes about the fickleness of diabetes and a rant about the unfairness of it all is perfectly reasonable and also if you have a particularly well won victory over your diabetes (no matter how trivial) which needs sharing with others who really understand, this is the place to come and shout it from the rooftops.

Anyway, just wanted to say, you are not alone with these feelings, they come and more importantly go for many people at different times and you will get through it. Sometimes we put a little too much pressure on ourselves to manage our diabetes well, perhaps better than it actually needs to be managed, so cutting ourselves a little slack is all that is needed for a while. My uncle was diagnosed long before BG meters and modern insulins. He was found and hospitalized numerous times with DKA or unconscious with hypos throughout his life but he was still cycling on his own at 80 and died at 88 which is a good innings for anyone, let alone someone whose BG levels had been erratic for most of his life, not necessarily through mismanagement of course but just not the modern technology to support him to manage it well as we now have today. That thought, allows me to accept that even if I have what I consider to be a really bad day with my levels, I am probably still doing better than my Uncle who was mostly ignorant of what his levels were doing, so to try not to sweat too much about it.
 
hello all,
I have thought about joining here for years and never did, but here we are lol!
I’m type 1, pump user! And to be quite honest I am not doing so well right now! I think I am just burnt out! So I am hoping I get some inspiration on these forums!!
Welcome to the forum @LMcA91. I am sorry to hear that you are feeling burnt out with all that you have to do day to day to manage your diabetes.

As @rebrascora said I hit burnout and it took me a time to ask for help, so well done on seeking help on here. I found the support from others on here invaluable. I got counselling to help me deal with the totally unrealistic expectations that I had set myself, and how I had let it swamp me. I posted my progress on the forum and I will try to drop the link in here (my tech skills are not brilliant)


You mention that you are on a pump. Which one are you using? I have used a pump for over 10;years now but two years ago switched to a Medtonic 780 and I am now running it as a closed loop system, which has taken away so much of the work that I was doing. There is a similar system with the t-slim.

There is a wealth of support and practical tips to tap into on here, and no questions are considered silly. Just ask.
 
Welcome to the forum @LMcA91

Glad you’ve joined us at last!

Hope you find this a helpful, supportive and welcoming place to ask questions, compare experiences, or just simply vent and let off steam at the fickle relentlessness that is Type 1 Diabetes.

Sorry to hear you are feeling a bit burnt out at the moment, I think most people who have lived with diabetes of any type for some time will have experienced periods when it seems much harder to keep up the momentum required to keep actively managing blood glucose levels.

It’s a whole lot of extra decisions, and things to factor in to everyday life, with no breaks or days off for good behaviour! And it isn’t even as if T1 will let you just keep doing the same things with doses that just permanently ‘work‘ - there always seems to be some adjustment needed… something to fix (and then fix again!).

Exhausting!

It’s absolutely fine to feel how you are feeling. But it will pass. Just keep going as best you can in the meantime. Though wonky levels are exhausting and demotivating in themselves - so perhaps some sort of a reset might help?
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top