Newly diagnosed Type 2 Diabetes prescribed Metformin

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maryjaneholland

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Hi I have been diagnosed today with Type 2 Diabetes by my GP after several blood tests, so prescribed Metformin, GP told me to expect diarrhoea, so maybe need to invest in pack of adult diapers in order to get my blood sugar levels down and lose weight!

Going back to GP surgery tomorrow for full physical health checks poked and prodded by specialist diabetes nurse for hour or so too!

Will report back, diagnosis is still sinking in with strange mix of dread, fear, panic, disbelief, anger, frustration, confusion and left feeling damaged as not offered any physical health checks by GP for over decade, compounded by lockdown, hey-ho, oh well, life carries on and the world keeps turning.
 
Welcome to the forum
One important thing to ask at your appointment if you haven't already been told is what the result of your HbA1C test was as that will give an indication of how much work you need to do. The threshold for diagnosis is anything over 47mmol/mol but if not too much over that then GPs hopefully will give people opportunity to make lifestyle changes before prescribing medication as dietary changes will be needed anyway.
Many do find a low carbohydrate approach successful and this link may help you with that if is something that would suit you. https://lowcarbfreshwell.com/ There is good explanation and some menu ideas to suit various tastes and budgets.
Low carb does not mean NO carb but it is suggested that no more than 130g carbs (not just sugar) per day is a good starting point.
Other people have found a very low calorie or shakes-based regime suits them to give a kick start but they then have to have a transition to something sustainable for life.
I found the low carb way one that was successful and is a regime that is now my new normal way of eating.
Let us know how you get on at your appointment.
 
@Leadinglights hi thanks for welcome and useful info, yes my blood glucose levels tested last week were 89, and have consistently been above Hbac1 80, with GP and Diabetes Nurse stating the average range is around 40-42, so in numerical terms, I am living with Type 2 Diabetes and taking Metformin and making lifestyle changes happen until my BG/Hbac1 levels are below 40 and I am out of the danger zone!

I may be hypersensitive due to getting formal diagnosis today, but this is very disturbing trend where wealthy people go to private clinics and their ability to pay grants them unlimited access to prescription only diabetes drugs used solely to lose weight for reasons of fitting into the latest fashions, looking thinner and slimmer, despite all of this coming at cost of causing real life shortages of POM drugs like Ozympic and Wegovy, oh and I have never liked Robbie Williams or paid actual money to access Netflix *wink*
"Type 2 Self Loathing" - Robbie "Take That" Williams
 
That may very well be true but many do manage to reduce their HbA1C by making dietary changes and that should be the first thing that people should look at and only if that is not successful then the medication route will give a helping hand for them.
HbA1C is fairly high but not as high as some people here who have had success with dietary changes without needing medication, as making those changes is fundamental.
Many find that having a blood glucose monitor for home use so they can test the effect of food and meals and to check day to day, week to week progress on the changes being made instead of being reliant on the periodic HbA1C.
 
@Leadinglights thanks yes I have read through the Diabetes UK publications and although I am far from perfect with other health issues like weight management, I am heeding the warning of my Type 2 Diabetes diagnosis seriously enough to explore all healthcare and treatment options as I may have gradually slipped into the danger zone of my body being unable to manage BG levels many years ago, a decade ago, it's unknown, that's certainly question for the Diabetes Nurse too!

Can I ask if you have taken diabetes medication like Metformin for any length of time as it sounds like you have decided these prescription drugs licensed for treating diabetes are not for you?

I watched Channel 4 Documentary with jazzy title "The Truth About Skinny Jabs" which is actually about prescription drugs licensed for treating diabetes being used by people not living with diabetes for weight loss purposes only, and shows total lack of regulation around private clinics with regards to prescribing POM drugs for off-label purposes, and it's now on YouTube here..
 
@Leadinglights thanks yes I have read through the Diabetes UK publications and although I am far from perfect with other health issues like weight management, I am heeding the warning of my Type 2 Diabetes diagnosis seriously enough to explore all healthcare and treatment options as I may have gradually slipped into the danger zone of my body being unable to manage BG levels many years ago, a decade ago, it's unknown, that's certainly question for the Diabetes Nurse too!

Can I ask if you have taken diabetes medication like Metformin for any length of time as it sounds like you have decided these prescription drugs licensed for treating diabetes are not for you?

I watched Channel 4 Documentary with jazzy title "The Truth About Skinny Jabs" which is actually about prescription drugs licensed for treating diabetes being used by people not living with diabetes for weight loss purposes only, and shows total lack of regulation around private clinics with regards to prescribing POM drugs for off-label purposes, and it's now on YouTube here..
I had been prediabetic for a while but slipped over the threshold just into the diabetic zone so not too high 50mmol/mol. I was absolutely terrified of taking metformin as I am quite intolerant of medication having bad reaction to quite a few things.
I therefore went down the low carb approach limiting carb to 70g per day and reduced my HbA1C to 42mmol/mol in 3 months and to 36mmol/mol in another 6 months. That regime is one I find sustainable and is now my normal way of eating. I appreciate it is not so easy for everyone and people do sometimes need help from medication
 
I was diagnosed with diabetes after a blood test, and the GP told me to get to an endocrinologist immediately. She prescribed me Metformin as a stopgap. I just filled the prescription without asking any questions, and they handed me three months' worth.

First of all, it brought down my blood sugar extremely fast. I saw the endo three days later, and my blood was already much better. He prescribed me insulin and told me to ditch the Metformin, but I'd been reading up and Metformin is close to being a miracle drug. It's anti-inflammatory and anti-aging and has all sorts of cardioprotective effects, so I just keep taking it. There's no downside. I'm going to run out shortly, and I will miss it.

I have had exactly zero side effects, and no diarrhoea.
 
I was diagnosed with diabetes after a blood test, and the GP told me to get to an endocrinologist immediately. She prescribed me Metformin as a stopgap. I just filled the prescription without asking any questions, and they handed me three months' worth.

First of all, it brought down my blood sugar extremely fast. I saw the endo three days later, and my blood was already much better. He prescribed me insulin and told me to ditch the Metformin, but I'd been reading up and Metformin is close to being a miracle drug. It's anti-inflammatory and anti-aging and has all sorts of cardioprotective effects, so I just keep taking it. There's no downside. I'm going to run out shortly, and I will miss it.

I have had exactly zero side effects, and no diarrhoea.
That is quite surprising that it worked within 3 days as people are usually started on a low dose building up over a few weeks and even so it takes time to build up in your body before it starts to make a difference. It does not work directly on the food you eat but helps the body use the insulin it is producing more effectively and prevents the liver from releasing glucose into the blood stream.
Your HbA1C must have been very high to be prescribed insulin immediately. Did you make any other changes. Are you still on insulin.
 
I am incredibly sensitive to Metformin. It's not supposed to work for hours and hours, but it starts working very quickly shortly after I take it. My HbA1C was so high (13.5%) that the nurses who saw the blood results went "oh my God" and nudged each other. I started Metformin on Tuesday and my blood sugar was already improved by the time I saw the endocrinologist on Thursday. But I was still extremely sick, as I had very high ketones in my blood. I started on basal and bolus insulin immediately.

Yes, I am still on insulin, and still learning how to use it (I was diagnosed in August). It's only just sinking in that I have this wretched disease for the rest of my life. But I am also learning there are other ways to lower blood sugar — I have increased my exercise, and that helps a lot. Sometimes too much. My blood sugar falls very fast when I'm out doing a brisk walk, or in a gym class, and the first couple of times it happened, I could feel it. But now it can fall very fast and I don't seem to notice, so I have to keep checking my app.
 
@maryjaneholland the good news is that, if you are a plain ordinary type 2, like me, then you could be back in normal number in 6 months. The bad news is that if you are, like me, sensitive to Metformin's side effects you could be in for explosive incontinence and a lot of weeping and wailing.
Luckily for me, I decided to throw the tablets in the bin and do low carb even if it was a long slow process, but as it turned out, it wasn't.
Having started out with a HbA1c of 91 I went down to 47 at the first retest, and 41 at 6 months. I do need to stick to fairly low levels of carbs - but I was already very familiar with Dr Atkins way of eating, so it has been no trouble but I do wish that when I was first showing signs of glucose intolerance in blood tests that the GP had mentioned it rather than continuing to hammer on with low fat and lots of healthy carbs, even though I never felt right eating that way.
 
Hi I have been diagnosed today with Type 2 Diabetes by my GP after several blood tests, so prescribed Metformin, GP told me to expect diarrhoea, so maybe need to invest in pack of adult diapers in order to get my blood sugar levels down and lose weight!

Going back to GP surgery tomorrow for full physical health checks poked and prodded by specialist diabetes nurse for hour or so too!

Will report back, diagnosis is still sinking in with strange mix of dread, fear, panic, disbelief, anger, frustration, confusion and left feeling damaged as not offered any physical health checks by GP for over decade, compounded by lockdown, hey-ho, oh well, life carries on and the world keeps turning.
Hi I was diagnosed earlier this year with HbA1c of 81 and prescribed metformin and Atorvastatin for cholesterol level. I haven’t really had any side effects from either drug, even though I was informed of the possibility so I would urge you not to worry too much about something that might not affect you. As you say there are enough concerns following diagnosis. I have cut out most of the crisps, biscuits etc as well as reduced intake of carbs such as rice, pasta bread etc( though not completely eliminated). After 3 months my BG was 52, cholesterol normal and an unintended weight loss of about 10 Kg. Some useful advice that I have gleaned from this forum is to start with small sustainable changes ie I now have Greek Yoghurt with berries for breakfast most days as opposed to my former diet of toast, cereal or porridge.
Dont worry too much, you can improve your situation.
 
@Leadinglights @MarinaDE @Drummer @Lurcher67 hiya thanks for all the welcomes and support, really glad I joined now and setup Diabetes UK membership worth it for the great publications alone!

I am definitely listening to all the advice, learned experience, wise words, and slowly moving past the shock and panic and starving my self for days in the absence of having no clue about what was healthy diet for me any longer, and it's really great to hear that Metformin and other prescription medications are helping people to manage their diabetes for themselves, alongside lifestyle changes and exploring new diets, yes I'm definitely switching from granola and porridge to yoghurt with fruit, and as treat for exercising, coconut water has no added sugar, high in Vitamin C and electrolytes, as something to replace my fruit juice and fizzy drinks I accept are very bad for me now!

So as promised, quick update on my first appointment with specialist nurse at my GP Surgery, I arrived early and waited nearly hour or so as told they were running late and I am patient and reasonable and respect all NHS Staff, and then there was whirlwind rollercoaster ride of physical health checks, weight, blood pressure, pulse, foot prick assessment (unfortunately due to lack of health screening over many years, I was prescribed athlete's foot cream and sample taken for lab testing for fungal nail infection which may be undiagnosed untreated diabetes causing havoc to my feet?), and referred to diabetes education course and chasing up my referral to weight loss mangement programme, and then no time to ask questions or to answer all questions, telephone appointment booked with GP in fortnight, and walking home!

I accept I need to be more assertive, but all my diabetes related appointments have been very rushed and stressful, there wasn't forty minutes to discuss anything, and then ultimately I am left feeling I am the only person who can motivate my self to make these big lifestyle changes happen, but have successfully dropped my HbA1C from high of 99 in August to 89 end of October by making small changes, and I do have self-discipline and just have to accept there will be good and bad days, but yeah expressing angst and frustration and "why me?" when I have friends and extended family members few years older who have been smoking, drinking, taking drugs, eating barbecued red meat (as risk factor for lifestyle conditions) since they were teenagers, and thirty years later, no medical conditions I am aware of, but the same can be said for very fit healthy people developing cancer, it's very complex and there's no family history of Type 2 Diabetes either...

@MarinaDE please feel free to express your rage on support forum (within rules and regs etc), as if you can't rant about the realities of your own diabetes diagnosis here, then where can you find space to do so and feel supported by fellow travellers?!

I will share honestly and openly that when I was told I was at high risk of having Type 2 Diabetes, I felt like my life was over and I envisaged bleak future of needles to take blood samples, and needles for insulin, and total dependence upon Pharmacies and GP's for prescription drugs, and very limited sheltered life eating broth soup, drinking water only, never being able to travel independently unless there were local Pharmacies available, and being misread as drug addict if I had to do the routine above in public, and I realise now there is so much stigma and misunderstanding about diabetes, and I am learning more every day and educating my self, but still feel selective about who I tell due to some fickle fairweather friends only responding with "so sorry to hear that babes" then total silence as if I had already died, and I want to scream at them "I can still go out partying if I want to and drink sugar-free lemonade and cola and enjoy my self, I'm not dead yet!" Ugh!

Anyway, I will certainly be expressing my angst and frustration at regular intervals along my journey, and indie rock music you can mosh and flail and dance to is just what the doctor ordered when you have been diagnosed with lifelong condition which is pretty complex and has it's own meds... Probably NSFW (but NOT YouTube Age Restricted before anyone complains!) loud rock music from Eurotrash Dilletantes Placebo 😉
 
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@maryjaneholland one of the best things about returning to normal numbers is the reduction in size - though it means that every winter I open my store of warm clothes and find they are loose, so I need to buy new or remake them smaller.
 
Thanks for the update @maryjaneholland

And I’ve often enjoyed a little Placebo 🙂

I will share honestly and openly that when I was told I was at high risk of having Type 2 Diabetes, I felt like my life was over and I envisaged bleak future of needles to take blood samples, and needles for insulin, and total dependence upon Pharmacies and GP's for prescription drugs, and very limited sheltered life eating broth soup, drinking water only, never being able to travel independently unless there were local Pharmacies available, and being misread as drug addict if I had to do the routine above in public, and I realise now there is so much stigma and misunderstanding about diabetes, and I am learning more every day and educating my self, but still feel selective about who I tell due to some fickle fairweather friends only responding with "so sorry to hear that babes" then total silence as if I had already died, and I want to scream at them "I can still go out partying if I want to and drink sugar-free lemonade and cola and enjoy my self, I'm not dead yet!" Ugh!

I completely understand that, and have felt similar feelings at times over my 30 odd years with diabetes. It is a strange thing when your body/metabolism suddenly lets you down and stops doing something you never really really knew it was doing (balancing glucose levels). The good news is that diabetes can usually be managed well, with some tweaks and changes and any necessary meds (insulin in my case).

I guess it’s a bit like those amazing ‘superhuman’ ads for the paralympic games a few years back. We can take pride in actively managing our glucose levels despite a wonky metabolism/pancreas. Things others take for granted, that we have to actively keep on top of every day, while also doing all the ‘normal’ stuff that everyone else has to do 🙂
 
@Drummer @everydayupsanddowns thanks for your encouragement, I have watched some of the "Stand Up To Cancer" programmes on Channel 4 and similarly many people learn to manage all of the complex medical conditions under the umbrella of "cancer" and have health checks and meds to live their lives fully in spite of their diagnosis, but I feel very fragile this evening as this is the first day of taking my Metformin medication throughout the day making my Type 2 Diabetes diagnosis very real and having to confront all the neglect and damage and lack of healthcare which has led me here to this point in time and motivating my self to reach my goal of remission, even if that takes me year or longer to reach my personal goal...

No more Friday night binges of food or drink or unhealthy lifestyle choices until my BG levels are below 40 and I know exactly how my body metabolises different food and drink types, despite stressful week packing suitcase and securing my home to stay with friends until the very noisy dusty disturbing renovations and refurbishments in my building are completed, discovering broken damaged alleygating leading to open unsecured alleyway behind my building where street homeless people are sleeping rough under mature tree, and called council and street homeless outreach charity requesting workers visit to offer accommodation and help as the police in my area criminalise homeless people and I have lost all respect for them as victim of crime...

So my gift or discovery promoting good mental health and wellbeing to share with my fellow travellers getting me through the weekend travelling and making plans away from home is bit obscure but worth time and attention from listeners, and appreciaters of live theatre/live music/classical music/live opera performances, an English Language National Theatre Mannheim Germany reimagining of Bjork's Vespertine album as live opera performance with full orchestra and choirs, with creative synopsis and summary as follows... Enjoy and look after yourselves...
Album Title - Bjork: Vespertine - A Pop Album As An Opera (Live)
Artists - Bjork Gudmundsdottir, Aki Hashimoto, National Theatre Orchestra Mannheim, Matthew Toogood, Raymond Ayers
Label - OEHMS Classical
Available on streaming services and digital music platforms and record stores 🙂
 
On topic open question from newbie currently taking Metformin every day as prescribed by GP - what do people managing diabetes currently think about the supplement Chromium Picolinate which claims to lower blood glucose levels and curb cravings/suppress appetite similarly to Metformin?

To clarify, I am definitely NOT suggesting or promoting anyone should take prescribed diabetes medication AND supplements like Chromium Picolinate at the same time, which can also have the effects of lowering blood glucose levels, and obviously I am not any kind of medically quaified doctor, so all the prescription medication guidance clearly states not to take Metformin with alcohol, laxatives, beta-blockers, anti-inflammatory drugs or Chromium Picolinate, for clarification here!

Chromium Picolinate supplements were suggested to me by mature lady living with Type 2 Diabetes who I met at community cafe drop-in in my local area, as she was extremely sceptical about pharmaceutical drugs and by all accounts had rough ride over many years battling the NHS for access to healthcare and treatment, so here's Wikipedia page about Chromium Picolinate Supplement... https://en.m.wikipedia.org/wiki/Chromium(III)_picolinate

And here's one or two examples of nutrition supplement manufacturers selling Chromium Picolinate, there are many others and again, I am not advertising or promoting or have any affiiation with any companies selling supplements...



I am hoping there will be point in the not too distant where my GP will no longer prescribe Metformin for my Type 2 Diabetes, as very long term use when it's no longer required to manage blood glucose levels can be harmful, but I am looking ahead to managing my condition with lifestyle changes, weight management, new diet suited to my needs, taking appropriate supplements (I already take B12 supplements as Vegetarian bordering on Vegan diet), and this could be another way to keep my blood glucose levels below 40 and out of the danger zone of 48 and above, which mostly represents unmanaged untreated Type 2 Diabetes... Apologies if I have used the wrong terms or words here as I am still learning about managing my diabetes in the best way I can living with other health issues and medical cnditions, and no offence is intended to anyone else living with diabetes, I wish you all well and for good health in managing your diabetes in the best way which suits you without any judgment or harsh criticism, having been on the receiving end of so much stupid from friends and family who all have internet access at home and via all their devices, but I will end my little rant here, as it's very steep learning curve... 🙄
 
Apologies for oversharing on support forum, good news I will be taking clean break as it's my birthday coming up and I obviously don't know enough about managing diabetes or blood glucose levels or weight loss to offer much support or insight to other members, having apparently offended people by asking genuine question about diabetes and supplements.

I have consciously and actively chosen not to disclose anything personal about my private life here due to not feeling like this is safe space for minority groups and the loud vocal minority group of members here who are always online posting veiled comments about specific groups in society, such as "pub banter and jokes time, there's nowt so queer as folks, no offence ha" and variations on theme shall we say...

Will return when I have time or energy and feel I'm in stronger place to endure all the punching down comments on the support forum with stiff upper lip and thick skin and pull your socks up and snap out of it and lose weight simples etc. :(
 
Apologies for oversharing on support forum, good news I will be taking clean break as it's my birthday coming up and I obviously don't know enough about managing diabetes or blood glucose levels or weight loss to offer much support or insight to other members, having apparently offended people by asking genuine question about diabetes and supplements.

I have consciously and actively chosen not to disclose anything personal about my private life here due to not feeling like this is safe space for minority groups and the loud vocal minority group of members here who are always online posting veiled comments about specific groups in society, such as "pub banter and jokes time, there's nowt so queer as folks, no offence ha" and variations on theme shall we say...

Will return when I have time or energy and feel I'm in stronger place to endure all the punching down comments on the support forum with stiff upper lip and thick skin and pull your socks up and snap out of it and lose weight simples etc. :(
Hi Mary Jane,
I have to admit, I haven’t noticed such veiled comments on here (but on other forums, so I know what you mean). It is really sad if this keeps you from asking your questions, and I would encourage you to possibly report it, but also just stay here as it is important for us all to have this forum to clarify the myriad of issues we come across as T2s. Other people’s questions can be just as enlightening to read as the answers.
 
Apologies for oversharing on support forum, good news I will be taking clean break as it's my birthday coming up and I obviously don't know enough about managing diabetes or blood glucose levels or weight loss to offer much support or insight to other members, having apparently offended people by asking genuine question about diabetes and supplements.

I have consciously and actively chosen not to disclose anything personal about my private life here due to not feeling like this is safe space for minority groups and the loud vocal minority group of members here who are always online posting veiled comments about specific groups in society, such as "pub banter and jokes time, there's nowt so queer as folks, no offence ha" and variations on theme shall we say...

Will return when I have time or energy and feel I'm in stronger place to endure all the punching down comments on the support forum with stiff upper lip and thick skin and pull your socks up and snap out of it and lose weight simples etc. :(
I understand what you're saying as I've taken a break from the forum on three occasions, and been tempted to do so on others, because of the way a member has responded to one of my posts. However, do you know that you if you click on someone's avatar you can select 'Ignore' and you won't see any comments from that member?

@everydayupsanddowns Mike..??
 
Apologies for oversharing on support forum, good news I will be taking clean break as it's my birthday coming up and I obviously don't know enough about managing diabetes or blood glucose levels or weight loss to offer much support or insight to other members, having apparently offended people by asking genuine question about diabetes and supplements.

Are you referring sensing you have offended people because of something elsewhere @maryjaneholland ? Or was it that you had no replies or responses to your question on Saturday?

If you have been concerned by any replies to your posts elsewhere, please use the ‘report‘ function to alert the moderators so that any necessary action can be taken to ensure posts comply with forum rules.

There doesn’t seem to be much mention on the forum of Chromium Picolinate before - only one thread from 3 years ago

I’m not sure many forum members have tried the supplement you are considering. Though several have successfully been able to reduce or come off Metformin by carefully adjusting their menu.

In general Diabetes UK seems to dissuade people with diabetes from supplements, even herbal or ‘natural’ ones.

I had a quick look for RCTs that looked at Chromium Picolinate, and some seemed to find some ‘modest beneficial effects’ in some markers for people with T2 eg

And this with approx 1mmol/L fasting glucose reduction for the supplement arm

This systematic review from 2007 finds no significant effect, among a mixed bag of 40+ studies, many of which were poor quality, and studies with design flaws seemed to be the ones which showed the biggest benefits?

I guess you’d just have to go with your gut instinct, but the clinical evidence of effectiveness doesn’t look hugely compelling - so perhaps be a little cautious, especially if the supplements are pricey?
 
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