• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Newly diagnosed Type 1

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Fenders080570

New Member
Relationship to Diabetes
Type 1
Hi just been diagnosed with Type 1 after spending 5 days in hospital with DKA. Not sure what I’m doing!!!
 
Last edited:
Hi there and welcome to the forum
xx
 
Welcome to the forum @Fenders080570

Relax... take a breath... There is a lot to take in in the first weeks and it can feel overwhelming - not least because by the time you get a diagnosis you may well be feeling pretty grim, and have been sleeping poorly with all the overnight trips to the loo!

A diagnosis with diabetes can feel like a devastating blow, but modern treatment options, technology, gadgets and gizmos make it tantalisingly possible to achieve very effective blood glucose management while continuing to do pretty much anything you would have before, it just needs a little planning, and a few adaptations - depending on how your individual diabetes responds to things.

Lots of folks here really value Ragnar Hanas’s book - don’t be put off by the title... it is just as helpful however old you are!

Ask away with any questions! there are lots of friendly experienced T1s here to give you some pointers.

And perhaps check out www.t1resources.uk too, which has links to reliable information, links, blogs, books, and videos on almost anything you could need.
 
Hi and welcome from me too.

Which insulins have they given you and do you have a Freestyle Libre or are you finger picking to get your readings?

Is there anything particular you are finding difficult? I was diagnosed a year and a half ago at 55yrs old but managed to dodge a DKA thank goodness! I understand that is pretty rough! Hope you are feeling better.

This forum is a beacon of experience and knowledge which will hopefully help to guide you through the day to day trials and tribulations of getting to grips with your diabetes diagnosis and how to live with it. Feel free to ask anything or just have a good rant because we all know and understand that occasionally overwhelming feeling of frustration which comes with trying to impersonate a pancreas on a daily basis..... you have no idea what a phenomenally clever little organ it is until a vital part of it stops working and you have to manually take over it's role.
Hope you find the members here as helpful in your diabetes journey as I have over the past 18months.
 
I didn't have that sudden feeling of improvement possibly because I didn't DKA and because I was mis-diagnosed as Type 2 initially so I slowly and steadily cut the carbs from my diet to reduce my BG before I eventually went on to insulin.
What I found most surprising was the weight loss.... not so much losing the weight but where it actually went from. In particular my forearms and wrists started to look like they weren't mine. You tend to think that there isn't much flesh on wrists to lose but I kept seeing them in front of me and wondering where they had gone. I have lost weight before through dieting but not lost it from my forearms and wrists like that. I suppose those areas are mostly muscle and on a normal diet you don't tend to lose muscle.

Good to hear that your BG and ketones are improving. Does your BG meter also have ketone strips for blood or are you having to use Ketone urine sticks.

Have you been referred to the hospital Diabetes Clinic or have a DSN for support in these early stages.
 
Welcome to the forum @Fenders080570 From another person diagnosed as an adult.
There have been a few on here this week so you are certainly not alone, and there is plenty of experience to draw in from others on here.

As others have said it is a lot to take in at the start but it is most definitely manageable, and shouldn’t stop you doing anything that you want to . It just takes a bit of planning.

Keep firing away with any questions that you have. No one will mind.
Try to be patient with your body’s reactions as it takes a bit of time to get things sorted to suit your individual needs. I do remember how much better I felt once I had some insulin inside me, as like you I had been very poorly in the run up to diagnosis.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top