Newly diagnosed Type 1

Status
Not open for further replies.
M

mikebOAFC

New Member
Relationship to Diabetes
Type 1
Evening all,

Thought I would introduce myself as I'm likely to be lurking around the forums from now on.

I was diagnosed with type 1 diabetes about a month ago. I'd been fatigued, thirsty and experiencing cramps in my calves for a couple of months as well as losing weight. I stupidly put the symptoms down to the fact I had trained for and then ran a half marathon at the end of May and ended up in hospital due to DKA. After a couple of nights in there I was put on an insulin regime and have never felt healthier.

I've had a couple of issues with my prescriptions (mainly due to moving house and GP just after diagnosis) and I'm still sticking to fairly strict injections (Lantus and Novorapid) until I'm shown how to amend my doses accurately but otherwise I'm feeling surprisingly comfortable with it. I'm missing chocolate and sugary desserts generally but other than that I already had a fairly healthy diet.

If anyone has any advice or tips on anything that newbies generally don't think about or get wrong then please let me know!!
 
Hi Mike and a warm welcome to the forum, have a good look around the forum and get yourself aquianted we dont bite and any questions you have just ask x
 
Hi Mike. Welcome. 🙂

There must a correlation between running and type 1 !! :D
(you're not the first by any means 🙄)

If you take a look here http://www.diabetessupport.co.uk/boards/showthread.php?t=10406 there's some useful reading.

You could do worse than to buy the book by Ragnar Hanas, Type 1 Diabetes for Children, Juveniles and Young Adults (from memory). It's a good reference work.🙂

Rob
 
Welcome to the forums mikebOAFC 🙂
 
Thanks for the welcome guys. Rob, i'll definitely check out some of that reading, thanks for the tip.
 
Hi Mike and welcome

You may want to take a look at this link

http://www.bdec-e-learning.com/

they have an online course which aims to show you how to match your insulin to the carbs you eat.

So as a newly diagnosed type 1 (I am sure I will forget something)

If you drive you must inform the DVLA and you car insurance company.
You may wish to check any yearly travel insurance - and make sure they are aware.
You are entitled to a prescription exemption cert and can get VAT relief on anything you buy for your diabetes (like a meter - but you've probably been given one free or a frio pack).
If you fly insulin must be in your hand baggage as it may freeze in the hold and that will damage its usefullness. A letter from a Dr or DSN is recommended in case Airport security have any issues.

Sure there are other things but thats a start.
 
Hi Margie

Thanks for the link, I actually signed up to that link yesterday but haven't got round to looking through it yet.

I've sorted half of the list but hadn't thought to check my travel insurance. Fortunately, I've only had to pay out for a kit bag so far to keep my gear together and everything else I've had on prescription. Although I'm English I live in Scotland and so get those for nothing anyway. The letter for travelling is also something I'll need to keep in mind
 
Hi Mike and welcome to the forums. It looks like you're taking things in your stride so far, but we can all benefit from the information on here. You'll soon find you are in good company as there are a few runners on here. Take care and I look forward to getting to know you better. Happy lurking! 🙂 XXXXX
 
mikebOAFC said:
Evening all,

Thought I would introduce myself as I'm likely to be lurking around the forums from now on.

I was diagnosed with type 1 diabetes about a month ago. I'd been fatigued, thirsty and experiencing cramps in my calves for a couple of months as well as losing weight. I stupidly put the symptoms down to the fact I had trained for and then ran a half marathon at the end of May and ended up in hospital due to DKA. After a couple of nights in there I was put on an insulin regime and have never felt healthier.

I've had a couple of issues with my prescriptions (mainly due to moving house and GP just after diagnosis) and I'm still sticking to fairly strict injections (Lantus and Novorapid) until I'm shown how to amend my doses accurately but otherwise I'm feeling surprisingly comfortable with it. I'm missing chocolate and sugary desserts generally but other than that I already had a fairly healthy diet.

If anyone has any advice or tips on anything that newbies generally don't think about or get wrong then please let me know!!
Click to expand...

Welcome Mike, anything you are unsure of, just ask away. You will get lots of support and advice from people on here. Best wishes Sheena
 
Welcome to the forum Mike 🙂
 
Hi Mike,

Welcome to the forum ... Im Heidi, mam to Nathan type1, aged 16, diagnosed nearly 4 and a half years ago.

Heidi
xx🙂
 
I'm late for the party again - Hi Mike
 
Klocky said:
I'm late for the party again - Hi Mike
Click to expand...

Not as late as me Karen!! We coulda shared a taxi here!

Hi Mike and welcome, I too missed the sugary foods and was naughty for a long time. Doing the carb course was the best thing ever, as well as joining here! I found the B-DEC course a good starting point but used it as an introduction to the local course offered from my DSN. (I found the e-course a bit too distant, I like to chat and share stuff in person!)
If you can, get on a local course, usually known as DAFNE. It allows you to eat all those sugary foods as long as you inject the Novorapid!

(You are the 1st peep I seen on here that is also on Lantus and Novorapid!)
 
Northerner said:
I'm on lantus and novorapid! 🙂
Click to expand...

Ha ha...sorry Alan! I didn't know! I was starting to think I was the only one on this concoction! I couldn't get on with humalog, it induced a mild depressive reaction with me...is that weird?

I always look at peoples taglines at their medications.
 
Thanks for the replies all (even those of you who took your time :D)

I hadn't even considered whether or not my insulins were the norm. I've already booked in for the carb counting and I've been told I can't do the Dafne until a year after diagnosis (I've put my name down anyway as there's apparently a wait) but it definitely looks useful.
 
Hee hee, already said Hi "Elsewhere" LOL - you won't recognise my handle though cos it's different here!

I hereby confirm you insulins to be totally norm I was on lantus and Novorapid for ages till I changed to Levemir (once I needed a split dose of basal and couldn't persuade Lantus to play nicely with me) - and am still on Novorapid now.

I reckon it just depends on what's flavour of the month with the person you see as to whether you get Novo or Huma but bearing in mind I had terrible trouble in the past with certain products from the same company and wanted to change away from them, probably explains why I got what I got. Wonder if Humalog was out at the same time as Novo? - she mused .....
 
mikebOAFC said:
Thanks for the replies all (even those of you who took your time :D)

I hadn't even considered whether or not my insulins were the norm. I've already booked in for the carb counting and I've been told I can't do the Dafne until a year after diagnosis (I've put my name down anyway as there's apparently a wait) but it definitely looks useful.
Click to expand...

Heya,

It would deffo be worth questioning that statement about being diagnosed a year? Sounds to me like someone is trying to fob you off! You'll find that might happen a lot during your diabetes care! A lot of old school 'professionals' that don't know their a*** from their elbow! On my local DAFNE there was a girl who had been diagnosed only 6months and the people on the course had to wait 4months.

(maybe I'm wrong about the rules to DAFNE but I am only going off my experience and course!)
 
Status
Not open for further replies.
Back
Top