Newly diagnosed, New here

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Music&InsulinSavedMyLife

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Type 1
Hi, I was diagnosed with type 1 diabetes about 2 months ago now. Its been a weird 2 months getting used to all the injections and having to talk about it to my specialist. I have never been very confident in myself and don't like speaking to others about personal things face to face. I am starting to come to terms with diabetes as a whole, and have a more positive outlook on it. I am 16, dealing with other issues, which meant dealing with it harder, but I am here to share experiences and help others who need my help 🙂

So yeah I talk a lot...

Hi 🙂
 
Welcome to the forum. There are lots of people who can share experiences and offer advice on here, so fire away with any questions you have.
 
Hi, welcome to the forum 🙂 Very sorry to hear about your diagnosis, it can be a lot to take in at first, so it's good to hear that you are being positive about it all. It can be a pain, but the good news is that, with a bit of effort, it can be managed well and doesn't have to stop you doing anything you want to do in life.

How did you come to be diagnosed? What insulin regime are you on? Have a look in our Useful links thread for links to some good resources. You might like to get a support and information pack for people with a recent diagnosis of type 1 diabetes from JDRF (Juvenile Diabetes Research Foundation), plus I would highly recommend getting hold of a copy of Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas - not cheap, but will cover just about every aspect of living with Type 1 you might think of. For everything else, you have us! 🙂

Do you know anyone else with Type 1? How are your friends about everything?
 
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Hi and welcome to the forum 🙂 Sorry you have other problems to deal with as well. Lifes a B* at times isn't it?
What sort of music are you into?
 
Hi you could always ask your team for a letter stating you have diabetes and the need for you to carry syringes/pen/needle device/monitor etc -sort of the kind of letter you need for customs/travelling will always come in handy-and a big welcome from me - my son is 16 too
 
Might be worth getting the Diabetes Etiquette Card to show them! 🙂

Don't give up on the idea of a job in hospitality - it's very early days for you yet and things will get easier. Perhaps sometime in the future you may be a candidate for an insulin pump which improves flexibility with eating to an erratic schedule 🙂
 
Northerner said:
Hi, welcome to the forum 🙂 Very sorry to hear about your diagnosis, it can be a lot to take in at first, so it's good to hear that you are being positive about it all. It can be a pain, but the good news is that, with a bit of effort, it can be managed well and doesn't have to stop you doing anything you want to do in life.

How did you come to be diagnosed? What insulin regime are you on? Have a look in our Useful links thread for links to some good resources. You might like to get a support and information pack for people with a recent diagnosis of type 1 diabetes from JDRF (Juvenile Diabetes Research Foundation), plus I would highly recommend getting hold of a copy of Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas - not cheap, but will cover just about every aspect of living with Type 1 you might think of. For everything else, you have us! 🙂

Do you know anyone else with Type 1? How are your friends about everything?
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It was hard to deal with, especially just before Christmas as I didn't know anything about forums, no one had really been any help, but I think I have everything sorted. I was quite ill for 2 weeks, in the end I had no choice but to phone 111, who rushed me to the hospital, that scared me as they didnt tell me what was going on! Finding the injections a little hard, as i've never been a huge fan of needles, especially not injection myself, but its mind over matter. I'll have a look into that book, thank you, I know 1 other person with type 1, shes in her 30's and a friend of my sister, she was diagnosed when she was my age so I can relate to her. Unfortunately, I am training to work in the Hospitality industry and I'm finding it really hard to control my sugars when at college because of testing foods, and i've found out there are a lot of hidden nasties! Thinking about changing my career path, as i'm struggling to deal with it all. My friends don't really know what to think, other than the rumours about us not being able to eat any sugar, but having to explain myself over and over about what diabetes is and how it affects us is hard, I should write a book haha
 
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delb t said:
Hi you could always ask your team for a letter stating you have diabetes and the need for you to carry syringes/pen/needle device/monitor etc -sort of the kind of letter you need for customs/travelling will always come in handy-and a big welcome from me - my son is 16 too
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That might be a good idea, I have another appointment soon anyway so may ask if she could do that, When was he diagnosed?
 
Pumper_Sue said:
Hi and welcome to the forum 🙂 Sorry you have other problems to deal with as well. Lifes a B* at times isn't it?
What sort of music are you into?
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Thank you 🙂 Yeah it is haha, everything always seems to happen at once. My favourite alternative music, rock/metal, but I listen to anything really except Justin Beiber and similar artists
 
Northerner said:
Might be worth getting the Diabetes Etiquette Card to show them! 🙂

Don't give up on the idea of a job in hospitality - it's very early days for you yet and things will get easier. Perhaps sometime in the future you may be a candidate for an insulin pump which improves flexibility with eating to an erratic schedule 🙂
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I'm just struggling to deal with college, without the grades and experience it will become very hard to find a job, and with my attendance being poor due to health, it doesn't look too good. I've had a lot of problem s with my feet since being diagnosed, maybe it will take the strain off of them, as working in a busy kitchen is painful
 
He was diagnosed just over a year ago-GCSE year!! -But weve pretty much got our heads around stuff- footy etc -we have travelled abroad a few times too never had any issues with airports -there more bothered with his dads metal hips !!!!!!!-
 
delb t said:
He was diagnosed just over a year ago-GCSE year!! -But weve pretty much got our heads around stuff- footy etc -we have travelled abroad a few times too never had any issues with airports -there more bothered with his dads metal hips !!!!!!!-
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Haha, I missed out by about half a year, but was ill for my GSCE's due to other reasons. I stopped playing football when I left school, so that wasn't an issue. Haha, same with my sister, as she has a nail in her knee, but no one believes her lol. I'm probably worrying over nothing!
 
Music&InsulinSavedMyLife said:
NovoRapid and Lantus 🙂
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Ah, that's good then - some people are put on mixed insulin with two injections a day, which is much less flexible. With your regime you should be able to eat when you want, although it does help with control if you can eat regularly.

Have you been booked on any diabetes education courses yet? The main ones are DAFNE and BERTIE, but there may be something different available for you locally. A lot of people find them very useful, especially as it means you get to meet other people in the same situation 🙂
 
Northerner said:
Ah, that's good then - some people are put on mixed insulin with two injections a day, which is much less flexible. With your regime you should be able to eat when you want, although it does help with control if you can eat regularly.

Have you been booked on any diabetes education courses yet? The main ones are DAFNE and BERTIE, but there may be something different available for you locally. A lot of people find them very useful, especially as it means you get to meet other people in the same situation 🙂
Click to expand...

I've learnt the hard way about remembering to eat! With being at college different times with different breaks, I found it hard to force myself to eat. I didn't even know there was education courses!
 
Well - seriously you shouldn't HAVE to eat if you just don't want to - not on a modern regime like you are on.

However, I do find meself that I feel a lot better and my D behaves itself better if I have something to eat roughly 3 x a day. Times - brekkie can be 7 am or 11am. If it's 11am I'll probably not have anything else till dinner. Lunch might be any time between 12 and 3pm ish. Dinner usually 7-ish but can be 5.30 or 9pm!

And it can be anything from a bit of cheese on a crispbread to a full blown meal. With or without a pudding. Depends on exactly how I feel and what I'm doing. Might eat between meals or might not.

Totally flexible!

Have they perchance put you on fixed amounts of Novorapid at mealtimes to start you off? - which isn't unusual if they have. You have to get your head round it a bit, after all - as we all found out even though we didn't really want to! - and get used to having the jabs. (Presonally I felt that awful when I was dignosed, if they'd said We can make you feel better but we'd have to amputate your leg for that to happen I'd have said Do it NOW! So jabs didn't seem that bad really, esp as the first one they gave me made me feel so much 'more like me' again pretty instantly, I thought it was probably well worth making holes in myself forever for that ......

If you are seeing your team soon, I think you should say this to them - I've been told you can do this and would like to learn how to adjust my insulin to deal with it.

However, I shouldn't be surprised if they didn't raise the subject before you do!

Good luck !
 
QUOTE=trophywench;408552]Well - seriously you shouldn't HAVE to eat if you just don't want to - not on a modern regime like you are on.

However, I do find meself that I feel a lot better and my D behaves itself better if I have something to eat roughly 3 x a day. Times - brekkie can be 7 am or 11am. If it's 11am I'll probably not have anything else till dinner. Lunch might be any time between 12 and 3pm ish. Dinner usually 7-ish but can be 5.30 or 9pm!

And it can be anything from a bit of cheese on a crispbread to a full blown meal. With or without a pudding. Depends on exactly how I feel and what I'm doing. Might eat between meals or might not.

Totally flexible!

Have they perchance put you on fixed amounts of Novorapid at mealtimes to start you off? - which isn't unusual if they have. You have to get your head round it a bit, after all - as we all found out even though we didn't really want to! - and get used to having the jabs. (Presonally I felt that awful when I was dignosed, if they'd said We can make you feel better but we'd have to amputate your leg for that to happen I'd have said Do it NOW! So jabs didn't seem that bad really, esp as the first one they gave me made me feel so much 'more like me' again pretty instantly, I thought it was probably well worth making holes in myself forever for that ......

If you are seeing your team soon, I think you should say this to them - I've been told you can do this and would like to learn how to adjust my insulin to deal with it.


However, I shouldn't be surprised if they didn't raise the subject before you do!

Good luck ![/QUOTE]

I never seem to feel 'hungry', the doctors say there's nothing they can do about it, but I can go a day without eating and not notice until someone mentions it or my stomach moans! I find with college, and the way my breaks are is that if I don't force myself to eat on the first break, then I feel like I'm about to collapse by the second break!
I was on a fixed dose, but now i'm starting to vary it myself already as I have a good knowledge about food (I work in the hospitality business and study it)
I felt awful when I was diagnosed too, basically in bed for 2 weeks as it took so much energy to get up, which I now know why!
I don't mind the jabs, it's remembering them I'm finding difficult, and with all my friends being fascinated by it it feels like all eyes are on me.
They have told me about adjusting it, but they also said how important it is to eat, and maybe eating more regularly will help more.
I'm not than thin, and being young they are encouraging me to loose weight, i've been trying to eat regularly since I was diagnosed mid Decemeber, and since then have managed to lose 16lbs!
I guess eating regularly does help 🙂
 
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