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Newly diagnosed 4 year old

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loopeylou

New Member
Hi everyone
I have a newly diagnosed 4 year old son ( we are still in hospital getting BMs and ketones sorted). My husband is also type 1 so have some experience but feeling overwhelmed at what the future holds for us all as a family with a 4 year old starting school in 6 weeks! I already dont want to let him out of my sight and the thought of entrusting his care to the school in 6 weeks quite honestly makes me want to vom! How often do you check little ones BMs through the night? Any advice on pumps as the way forward. God Im scared. . How to people cope?
 
Hi there @loopeylou. 🙂 Sorry to hear about your little one’s diagnosis. There are lots of parents on here who can give you tons of advice and reassurance...I’m sure one of them’ll be along soon.🙂 Welcome!
 
Hi and welcome to the forum. We have a member @Sally71 who's daughter went on a pump after I think eight days of diagnosis. Is your husband on a pump? My daughter is a lot older, so gets to decide for herself, but if I had the choice I would definitely go for the pump. Much easier to manage the small amounts of insulin your son will be needing and to be able to adjust things. Everything will be hugely over whelming now and I agree, the thought of school is scary. My daughter was diagnosed on the 1st May and like your husband, I have type 1, but it is very different being the parent of a type 1!
Do let us know if you have any specific questions re pumps. Lots of us on here that use one - I have an Omnipod. Or anything else.
 
You cope because you have to! You'll soon get into the swing of things. I'd thoroughly recommend a pump if you can get one, they can do much smaller doses than pens which is great for little ones, and you can do all sorts of tricks with them which you couldn’t possibly do with injections which fine tune things much more precisely and make it a lot easier to deal with things such as illness, exercise, slow digesting foods, birthday parties etc. They are not an instant fix and do need a lot of hard work, but worth it in my opinion, and your little one will soon get used to wearing it, we told our daughter it had to be her new best friend!

Regarding testing through the night, a lot of people don’t and you'll probably be told you don't need to. We were told that, and that if she does go low in the night it would wake her up. But then once when we were doing a lot of overnight basal testing, we discovered that she often dropped low at night and it didn’t wake her up, and as it didn’t happen every night it took ages to work out why it was happening and how to avoid it. Then when we got the Libre we discovered that she was sometimes low for 3 hours and still didn’t wake up! So I’ve carried on doing night testing, only once though sometime between midnight and 3 am, and if she's ok then I leave her alone. If you're testing many times through the night I would suggest that you need some help to get things more stable, but the occasional random check I can understand! If you can get a CGM which alarms when they are dropping then that should make things easier, we're hoping to get that with daughter's next pump. My daughter is 14 now, and probably won’t want me barging into her room at night much longer, and tbh is much less likely to drop at night these days so I could probably stop the night checks now, when she's an adult I will have to leave her alone! But at the moment she wants me to continue, I think it makes her feel safe.

School - find out who your son's teacher will be and arrange a meeting before school starts. Our school always has at least one inset day before the children go back so try to make use of that. Go in and explain things to the teacher and don’t move until you’re happy that they have understood at least the basics. Make a care plan - your DSN can probably help with that initially - it's basically a list of instructions for how you want everything dealt with, i.e. mealtime procedure, how to spot and deal with a hypo, what to do if they go high etc etc. Schools are very variable unfortunately, some are brilliant and listen to you and get it nailed, others less so unfortunately. The DSNs can go in and speak to people for you if you’re struggling. Fingers crossed yours is one of the good ones!

My daughter was diagnosed at the very end of year 1 and spent the last 3 days of term in hospital, we then had the 6 weeks holidays to get to grips with it and then had to send her into year 2 as a diabetic, so I know exactly how you feel! Good luck with it all 🙂
 
Your diabetes team will help you through it and will set school up so that you and they are happy to have him. Right now everything will feel overwhelming but in time you will get your head around it (enough to manage). We’re here to help and support you.
 
Welcome to the forum @loopeylou

So sorry to near about your son, but glad you have found the forum, and it’s great that you already have your husband’s experience and knowledge to start you off, but I suppose one of the challenges will be that diabetes is so annoyingly fickle, and what works for one person won’t necessarily be right for someone else.

Keep in touch with the friendly supportive parents and T1s here, and you’ll have a ‘hive mind’ to call on.

You might find the resources on Digibete useful too?
 
Poor little boy. Each time I hear of a new child with this it breaks my heart.

He will be okay. I know a few of us on here have had it since young ages and are fighting fit and live great lives.

Ask any question you need to.

Speak to school as soon as you can, and see what they can do to help, and to give them notice.

All take care x
 
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