Anne Marshall
Member
- Relationship to Diabetes
- Type 2
I was diagnosed as insulin dependant at age 17, off insulin at 25, diabetes controlled with tablets untl 2001, then metformin until this spring when someoby mentioned MODY (maturity onset diabetes of the young) to me - I didn't fit the bill as a Type 2 (skinny). After genetic testing I saw the consultant this week.
He told me MODY isn't type 1 or type 2 but a distinct clinical entity.
However neither my GP surgery nor in fact diabetes UK seem to acknowledge this - so my GP records had me as Type 2 since 1973 (in fact diagnosed Type 1) and hadn't even heard of MODY. Same with DUK website - you have to tick either type 1 or type 2 when you register (although they do have info on MODY if you know to search for it ... which means you need to have heard of it already .... )
The correct diagnosis is crucial as the treatment for when the diabetes is out of control is very different.
PS I sacked my last GP after seeing him for the first time this year re diabetes as I was training for the London Marathon (DUK place, I did it!) and want advice re diet etc - he said I may need to go onto insulin and need MORE metformin! (also didn't know what a marathon was!).
TTFN
Anne
He told me MODY isn't type 1 or type 2 but a distinct clinical entity.
However neither my GP surgery nor in fact diabetes UK seem to acknowledge this - so my GP records had me as Type 2 since 1973 (in fact diagnosed Type 1) and hadn't even heard of MODY. Same with DUK website - you have to tick either type 1 or type 2 when you register (although they do have info on MODY if you know to search for it ... which means you need to have heard of it already .... )
The correct diagnosis is crucial as the treatment for when the diabetes is out of control is very different.
PS I sacked my last GP after seeing him for the first time this year re diabetes as I was training for the London Marathon (DUK place, I did it!) and want advice re diet etc - he said I may need to go onto insulin and need MORE metformin! (also didn't know what a marathon was!).
TTFN
Anne
