• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Newbie

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Jo-Jo-T1

Jo-Jo-T1

Member
Relationship to Diabetes
Type 1
Hi there just joined, I'm Jo I've been T1 for 43 years got diagnosed at the age of 5. Just waiting on appointment for a pump and the Libre. Basically I just wanted to say hi
 
Jo-Jo-T1 said:
Hi there just joined, I'm Jo I've been T1 for 43 years got diagnosed at the age of 5. Just waiting on appointment for a pump and the Libre. Basically I just wanted to say hi
Click to expand...
Welcome to the forum JoJo
Great to have your experience on here.

I too have a pump and a Libre. What a difference it makes. Better control and also much more flexibility. I have learnt most of what I know about making effective use of these from others on here, so I am glad that you have found us.

The other excellent resources I have used are
They are very useful.

Let us know how you get on with your appointment.
 
Welcome to the forum. How exciting that you are waiting for an appointment for pump and libre, have you found a pump you would like?
 
MrDaibetes said:
Welcome to the forum. How exciting that you are waiting for an appointment for pump and libre, have you found a pump you would like?
Click to expand...
Hi thank you I'm liking the omnipod as I have a grandson of 5yr boisterous and a sprocker spaniel that's also boisterous so thought it would be a good idea with no tubes but I'm uncertain as I'm also liking the new medtronic pump
 
Jo-Jo-T1 said:
Hi thank you I'm liking the omnipod as I have a grandson of 5yr boisterous and a sprocker spaniel that's also boisterous so thought it would be a good idea with no tubes but I'm uncertain as I'm also liking the medtronic
Click to expand...
It is worth bearing in mind not all hospitals offer all pumps.
 
Welcome @Jo-Jo-T1 🙂

I have a 5 year old and a spaniel :D My (tubed) pump has survived them both:D

The best thing I found was to read reviews of various pumps online and also watch Youtube videos of them. I then made my own ‘priorities’ list.
 
Inka said:
Welcome @Jo-Jo-T1 🙂

I have a 5 year old and a spaniel :D My (tubed) pump has survived them both:D

The best thing I found was to read reviews of various pumps online and also watch Youtube videos of them. I then made my own ‘priorities’ list.
Click to expand...
Thanks for the info I've been watching YouTube for ideas
 
SB2015 said:
Welcome to the forum JoJo
Great to have your experience on here.

I too have a pump and a Libre. What a difference it makes. Better control and also much more flexibility. I have learnt most of what I know about making effective use of these from others on here, so I am glad that you have found us.

The other excellent resources I have used are
They are very useful.

Let us know how you get on with your appointment.
Click to expand...
Thank you and I will 🙂
 
Hi and welcome from me too. Like you, I'm in the North East, but Durham is my hospital clinic. I am currently self funding the Libre but my consultant has authorised it for prescription, so hopefully I won't need to buy anymore from my own pocket. I have been using it for 3.5 months and the info it provides is amazing as well as giving you more confidence to do things.
Covid has caused a go slow with these things (I was actually authorised for Libre in Feb) but hopefully you will get sorted with your new tech soon.
Which insulins are you currently using and how do you find them? Are you having any particular issues that you hope the pump will fix? There are quite a few experienced pump users here on the forum who will no doubt be of real help once you get started.
 
rebrascora said:
Hi and welcome from me too. Like you, I'm in the North East, but Durham is my hospital clinic. I am currently self funding the Libre but my consultant has authorised it for prescription, so hopefully I won't need to buy anymore from my own pocket. I have been using it for 3.5 months and the info it provides is amazing as well as giving you more confidence to do things.
Covid has caused a go slow with these things (I was actually authorised for Libre in Feb) but hopefully you will get sorted with your new tech soon.
Which insulins are you currently using and how do you find them? Are you having any particular issues that you hope the pump will fix? There are quite a few experienced pump users here on the forum who will no doubt be of real help once you get started.
Click to expand...
Hi there I'm currently using Novorapid and Lantus I'm struggling with my levels and also sometimes my bg can be 2.0 and I have no knowledge and also had a few serious lows so that's why I got told about the libre. I hate having to finger prick 10+times and the constant injections I just want to be free of them for once and I think I will have a lot more control over this which I can't wait for 🙂
 
Jo-Jo-T1 said:
Hi there I'm currently using Novorapid and Lantus I'm struggling with my levels and also sometimes my bg can be 2.0 and I have no knowledge and also had a few serious lows so that's why I got told about the libre.
Click to expand...

That's a bit surprising, since hypo unawareness and similar aren't regarded as recommendations for the Libre. (Since it doesn't (yet) have alarms.)

Having said that it probably does (on the whole) help since it makes it more practical to avoid hypos for long enough for awareness to return. (Awareness doesn't always return, but if it does it'll probably happen after avoiding going low for a few weeks.)

(Testing 10 times a day ought to be enough on its own. And lacking hypo awareness seem to me likely to be a justification for needing to test that many times a day.)
 
Hello JoJo. 🙂
 
Bruce Stephens said:
That's a bit surprising, since hypo unawareness and similar aren't regarded as recommendations for the Libre. (Since it doesn't (yet) have alarms.)

Having said that it probably does (on the whole) help since it makes it more practical to avoid hypos for long enough for awareness to return. (Awareness doesn't always return, but if it does it'll probably happen after avoiding going low for a few weeks.)

(Testing 10 times a day ought to be enough on its own. And lacking hypo awareness seem to me likely to be a justification for needing to test that many times a day.)
Click to expand...
I don't know for certain it's the levee they are going to offer me the nurse called it a button so I'm just assuming it will be the libre. My bg's have been all over the place since starting hrt 😱 earlier this year normal doctors said"it's probably down to that also you should be doing 4 blood tests a day as the strips are expensive" I couldn't believe them
 
Oh dear, that is not good, having very little hypo awareness. Do you go low overnight or is it through the day? Just wondering if Lantus may not be the best basal insulin for you?Have you tried others? Do you take it once a day and if so, morning or evening or do you split it and inject morning and night?
Hope you get fixed up with tech to help you soon.
 
I started HRT (patches) last year and not having problems but obviously everyone is different.
What I do find is that I need much less basal insulin during the night than I do during the day. I am on Levemir which is split into 2 doses. I take 16 units in the morning but only need anywhere from 0-7 through the night depending upon how much exercise I have done in the past few days.... I am currently trying to get out and do 4-8 miles every day and the more days in a row I manage, the less evening Levemir I need. Can't imagine how I would manage on a single dose of Lantus.
 
rebrascora said:
Oh dear, that is not good, having very little hypo awareness. Do you go low overnight or is it through the day? Just wondering if Lantus may not be the best basal insulin for you?Have you tried others? Do you take it once a day and if so, morning or evening or do you split it and inject morning and night?
Hope you get fixed up with tech to help you soon.
Click to expand...
Lantus at night this is why I'm hoping to get seen asap but knowing my luck it won't be until next year with this covid
 
I think it is worth asking to try a change of basal or even change when you take it ie in the morning instead of evening, especially if you are have frequent hypos through the night as Lantus has a peak of activity I think about 5 hours after injecting so just a change in when you take it could make a significant difference.... You didn't say if there was any specific time that you hypo so don't feel I am pushing you to try that... just suggesting possible short term solutions until you get the tech.
Due to the face to face nature of learning how the pumps and Libre work it will likely take longer to get that sorted due to Covid but a telephone appointment should enable you to change the time you take the basal insulin or change the type of basal insulin you use, to see if that might be better for you in the mean time.
It is possible to self fund the Libre and whilst expensive, I have found it well worth while. I used my birthday money to fund the starter kit and I can't think of anything I would have rather had.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top