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Sedbet

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Hi everyone, I am a new member (joined yesterday) and trying to find my way around the forums.
 
Welcome Sedbet 🙂 Tell is a bit about yourself, what brought you to join us?
 
Welcome Sedbet 🙂 Tell is a bit about yourself, what brought you to join us?
Hi Cathy, I have posted more information on the General Message Board but briefly, I am a 70 year old female (not diabetic) but who was diagnosed in 2010 with Post Prandial Idiopathic Hypoglycaemia and in 2012 with Rapid Gastric Emptying (Dumping Syndrome).
I really enjoy playing golf but cannot manage to play more than about 3 holes before my energy levels are depleted. I have been told by my hospital that there is nothing more they can do for me and that I have to learn to live my life around my symptoms. I joined Diabetes Uk to see if I can get help with what I should eat prior to golf and during a 4 hour round. Also, the symptoms affect me all the time but whilst I am 'pottering' around home I can usually cope but my main problem is, as soon as I try to exert energy I don't have any.
 
Welcome to the Forum. You will find lots of help and advice here. Have a look at the recipes section. There are some lovely things on there.
 
Welcome to the Forum. You will find lots of help and advice here. Have a look at the recipes section. There are some lovely things on there.
Thank you Maz. I haven't looked there yet. I am still finding my way around.
 
Hello Sedbet, and a warm welcome. I hope you find what you need here.
 
Hi Cathy, I have posted more information on the General Message Board but briefly, I am a 70 year old female (not diabetic) but who was diagnosed in 2010 with Post Prandial Idiopathic Hypoglycaemia and in 2012 with Rapid Gastric Emptying (Dumping Syndrome).
I really enjoy playing golf but cannot manage to play more than about 3 holes before my energy levels are depleted. I have been told by my hospital that there is nothing more they can do for me and that I have to learn to live my life around my symptoms. I joined Diabetes Uk to see if I can get help with what I should eat prior to golf and during a 4 hour round. Also, the symptoms affect me all the time but whilst I am 'pottering' around home I can usually cope but my main problem is, as soon as I try to exert energy I don't have any.
Thanks for sharing, sounds like you have been through the mill somewhat o_O not sure what to suggest. Something I do is always have a small pot of almonds and walnuts in my bag so I have something to snack on if I start to feel I’m running low on energy. Burgen bread is a low carb soy and linseed option that many of us use, maybe take a sandwich with you? I am sure some of the others will have ideas to share :D
 
Thanks for sharing, sounds like you have been through the mill somewhat o_O not sure what to suggest. Something I do is always have a small pot of almonds and walnuts in my bag so I have something to snack on if I start to feel I’m running low on energy. Burgen bread is a low carb soy and linseed option that many of us use, maybe take a sandwich with you? I am sure some of the others will have ideas to share :D
Thanks so much Cathy. I will certainly buy some of the Burgen bread, at least then I could take a sandwich out with me. Today I played and had Rolled Oats porridge and skimmed milk before I went and took oatcakes with peanut butter on. After the 2nd hole I was shaking so I think oats are a no no in future. Next time I will try Burgen bread and peanut butter. Thanks for your advice, I really do appreciate it.
 
Welcome to the forum Sedbet.
 
Hi Sedbet, welcome to the forum 🙂.
 
Welcome to the forum Sedbet.
Thank you Ralph. I am obviously in the very early stages of learning new ways of eating, even though I was diagnosed in 2010 when I was told to eat little and often but I was not told to watch my carbs. In the past 8 years I have seen 10 dieticians and they haven't been able to help. My Dr. says my cholesterol is on the high side of normal and he wants me to watch the fat that I eat. If I stick to 'natural' fats, will I be okay using more than usual. I have always used olive oil and Flora or Benecol. I understand because I am severely restricting my carbs that my energy has to come from somewhere and that seems to be extra natural fats. Any advice would be much appreciated. Thank you.
 
I have been eating the fat which comes with the meat I roast - I save the juice and fat and use it to cook other things.
Perhaps if you can switch from burning carbs to using fats for energy your hypoglycaemia will not affect you so much. When in my twenties I had hypoglycaemic symptoms but was never diagnosed, and went low carb by a process of logic and elimination. It was another 40 years before I was diagnosed with diabetes.
I have been eating under 50 gm of carbs a day for almost two years now and my cholesterol has reduced from the time when I was on a cholesterol lowering diet. I use an olive oil dressing on salads, but no extra fats - at my last review I was advised to use a cholesterol reducing spread, but when I asked what I ought to put it on there was a slight problem. A probiotic was suggested, but when I asked about the carb content per bottle the nurse did not know what it was. I said that I would read the nutritional labels and see if there was one I could include in my diet, and let her know.
 
Hi Cathy, I have posted more information on the General Message Board but briefly, I am a 70 year old female (not diabetic) but who was diagnosed in 2010 with Post Prandial Idiopathic Hypoglycaemia and in 2012 with Rapid Gastric Emptying (Dumping Syndrome).
I really enjoy playing golf but cannot manage to play more than about 3 holes before my energy levels are depleted. I have been told by my hospital that there is nothing more they can do for me and that I have to learn to live my life around my symptoms. I joined Diabetes Uk to see if I can get help with what I should eat prior to golf and during a 4 hour round. Also, the symptoms affect me all the time but whilst I am 'pottering' around home I can usually cope but my main problem is, as soon as I try to exert energy I don't have any.
Hi Sedbet,
It is some years since you posted this but I have just joined the forum and have been directed to your post as I, too, have been diagnosed with IPS. I have had the condition possibly for my whole life (now 65) but it has been previously misdiagnosed. The person who helped me most (I saw her about five years ago) was a diabetic dietician. She advised a low carb diet, because I don't seem to process carbohydrates efficiently, and to eat several mini meals a day rather than the conventional three with two snacks. I now eat about 20 grams of carbs every two hours, to drip feed the carbs in and try not to exceed 140 grams of carbs a day, but eat lots of protein.
Here is the next crucial bit - carry glucose tablets with you at all times. One glucose tablet has 5 grams of carbs.. If you are doing exercise, you don't count these in your daily allowance of carbs. Take one before you start exercising, even if it's just walking around a supermarket, and then another as soon as you feel a dip in your energy levels happening. In my case I get an uncomfortable sensation in my tummy and a sudden drop in mood, together with shakiness. You need to take a glucose tablet before the worst of this kicks in, then continue right through the exercise. I also carry unsalted nuts with me at all times and a bottle of water, in case I get caught out.
Living in this way has vastly improved my energy levels and my general mood. However, don't expect miracles!
I hope this helps a bit. I am interested in forming a support group of people who have IPS as it is a minimally researched condition. If you would like to do this, please get in touch.
 
Unfortunately @Sedbet hasn’t visited the forum since 2018, so is unlikely to see your kind reply @Simsmaid
 
Ah well, never mind. Thanks very much for this reply. Her post did give me hope that there is at least one other person out there who has this syndrome. The consultant told me to date there is one person in the USA, one in Nigeria and me! I find this hard to believe so am trying to gather in people or help people realise that what they have been struggling with is this syndrome, then we might get some more research done on it.
Thanks again.
 
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