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Teresa S

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Type 1
🙂 Hi,I'm Teresa.I have a son who's 21, diabetic since 8 yrs old. His control is terrible & i worry about his future. Is anyone in a similar position?
 
Hi and welcome to the forum!🙂

My son is just 11 and was diagnosed 11 months ago. Sorry your son is having a bad time - there are a few around your sons age who have been through some bad times - I am sure they will be around soon. Is your son on MDI or a pump? My son has just started pumping and we/he finds it much easier to manage than injections etc.. 🙂Bev
 
Hi Teresa, welcome to the forum.

Sorry I'm not in the same situation (I'm T1 myself, got diagnosed nearly 3 years ago) but there may be other people on here who are in the same boat.

Could you tell us a bit more about your son, and what he struggles with? Are his clinic helpful? I know my clinic encourage young adults to go on DAFNE type courses to get used to controlling their diabetes when they move away from home etc.

Does he have any other diabetic friends? I know it can be so isolating and if his friends are all able to do what they want when they want it must make it difficult to try to fit in.

I hope you'll find this forum helpful, moral support and new ideas are always around!
 
hi teresa and welcome im not in your situation im type 2 myself, theres many mums in here mind i think there children are younger but im sure you go through similier x
 
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Hi stef, thanks for your message. im getting ready for work right now so cant stop. Catch you later.
 
Hi

I’m not in that situation now, but I was diagnosed with type 1 at the age of 21 and very much didn’t care about looking after myself at that age. I think there’s always so much going on when you’re that age, you feel quite invincible so it seems that complications happen to someone else, everything seems so long away that it’s difficult to comprehend. I was so determined not to let it affect me, but I handled it the wrong way, ignored it instead of taking control.

I’m 26 now and it’s only in the last 2 or 3 years that I’ve pulled myself together and got a handle on my diabetes. For me it was doing the dafne course that helped, it gave me an opportunity to really take control of the condition and see that by just spending a little time thinking about it made all the difference. Also getting to meet other diabetics was a total eye opener. Get him on here if you can! Where abouts are you based, I have a couple of friends who run young people support groups around the country so may know of something near to you.

A
 
Hi

I consider myself one of the lucky ones, not diagnosed as kid, but as an adult!

Stick around and read the threads as they appear, join it etc, you'll soon get a feel for other peoples situations, and can "chat" with them about your concerns.

Best of luck

Rossi
 
Hi Bev, whats MDI ? My son takes multiple injections & he's 'happy' with them. He's never accepted his diabetes & is in & out of hospital regularly.Thinks he's invincible & buries his head in the sand. Has had loads of help but doesnt take it, doesnt turn up for appointments & is his own worst enemy. But i keep on trying. One day .......... T
 
Hi Aymes.Glad u are doing so well. My son lives alone, has good friends & mostly bad friends, not much motivation. I have recommended Dafne course but its always tomorrow. He makes appointments & doesnt turn up. I see him lots & support him loads. We both live in cheshire. Thanks for your help. T
 
Hi Pigeon, thanks for your message. My son doesnt get much help from the DSN but i think they've given up on him as he doesnt turn up for appts. He tells me they don't follow him up after hospital admissions but he often distorts the truth! I never know what to believe. He doesnt have any friends with diabetes & some of his friends are not a good influence. Basically he hates being diabetic.....who doesnt?.....doesnt look after himself & sems to think hes invincible. T
 
Hi Teresa,
MDI -multiple daily injections. I think your son is on this.

Has he ever attended a Diabetes UK event/weekend? These really are brilliant - he would get loads of help and advice and probably a kick up the backside too! However, it seems like he still hasnt fully accepted the diagnosis or is in denial etc? Would it be possible for you to attend his next appointment with him? I know he's an adult - but his DSN probably doesnt know what he is really like about his diabetes. Does his team have a phsychologist? I am sure he is aware of all the complications and thinks he is invincible etc.. but there was a young boy (15) on my sons Diabetes holiday this summer who was already blind in one eye and was limping. To be honest, this has had more of an impact with my son (11) than any medical professional or myself could have hoped for. He was very upset about this boy and now hates it when his levels are high. But i do realise that my son is only 11 and this is a very impressionable age. Being 21 is a whole different ball game!😉🙂Bev
 
Hi Teresa,

Could you get him interested in this site? Maybe if he could have a chat with other type 1s himself it might inspire and help him. Although saying that I am a type 1 and used to think I was pretty invincible too, - I think it is probably quite common to go through a bit of rebelion with your diabetes at some stage. It is easy to think that it doesnt apply to you, when you feel well and before any complications hit.

At least he has got you to try and put him back on the straight and narrow. - Hang in there!
H x
 
Hi Hev,
ive talked to my son about this site + he sounds interested. i contacted DSN + said he needed help ,got an apptmt for thursday + Tom wants me to go with him. The best news is for the last week he's been doing lots of blood sugars + looking after himself. He's got some great readings + is already feeling much better. I think his self esteem has hit rock bottom , he's sick + tired of being sick + tired. His HbA1c has been between 11+ 13 for years now. Yes i'll hang in there. I'll do anything i can to get him well,pity i can't have his diabetes for him. Thanx for your support. T x
 
hi teresa

i'm also 21 and type 1 - i think it would be great if he could get on here - there are a couple of us around that age with type 1 on here. we're always looking for new people to join our gang of 'young people with diabetes'. i find it really really helpful talking to other people with type 1 and especially people around the same age as me - maybe he would too?
 
That sounds like good progress, Teresa, let's hope the good work of the last week will continue! Well done for getting on the case, he's so lucky to have you as his Mum. Hope he joins up on here as well, it's a good place to have a rant and share the good things too.
 
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