Newbie

Status
Not open for further replies.
welcome from one mum to another

Hi Sarah -how old is your son -when was he diagnosed?-It can be abit overwhelming at first -but there are so many helpful people on here -with alot of kindness and advice feel free to ask away
 
Hi Sarah, welcome to the forum 🙂 Very sorry to hear about your son's diagnosis. How old is he and how did the diagnosis come about? What insulin regime is he on, and how are things going? I would suggest reading The essential guide for parents of newly diagnosed children, written by Adrienne, one of our very experienced members. There is also a lot of useful stuff in our Useful links thread, so have a browse there. I would particularly recommend getting Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas, which is a very well-written and comprehensive guide to all aspects of living with Type 1.

Please feel free to ask any questions you may have. We have lots of lovely parents here who will do their best to help you out 🙂
 
Northerner said:
Hi Sarah, welcome to the forum 🙂 Very sorry to hear about your son's diagnosis. How old is he and how did the diagnosis come about? What insulin regime is he on, and how are things going? I would suggest reading The essential guide for parents of newly diagnosed children, written by Adrienne, one of our very experienced members. There is also a lot of useful stuff in our Useful links thread, so have a browse there. I would particularly recommend getting Type 1 Diabetes in Children, Adolescents and Young People by Ragnar Hanas, which is a very well-written and comprehensive guide to all aspects of living with Type 1.

Please feel free to ask any questions you may have. We have lots of lovely parents here who will do their best to help you out 🙂
Click to expand...
My son is 14 and was going to the toilet more often and drinking alot, he was also eating more often and just looked awfull wher he had lost alot off weight so rushed him to walk in at the doctors and thats where she dipped his urine and said to many ketones in his urine..... She then checked blood and that was high sugar so she rushed us up to the hospital... he was in a bad way when we got there... the hospital staff were fab and the diabetes staff also have been great... he is on lantus , he is injecting fine and doing really good now , but as a parent you cannot help but worry can you?!!
 
My son is 14 and he was diagnosed last thursday , home from hospital saturday n still trying to get my head round it all :/
 
Sarah- my son is 16 now -15 when we were diagnosed- last dec.Ifound the first few months quite hard- he seemed fine- but each hurdle you get through gives you more confidence and it doesnt matter how many questions you ask -someone will always help also if your team are good use them-I,ve lost count in those early days how many calls I made but hey ho it was for him.-
 
Last edited:
well we had our first hypo yesterday morning 😱 but dealt with it after making a phone call, son was fine and not really in a panic unlike me inside i was a mess.. brave face on for him though, as i know he panics more when im in a tizz...
 
Is he just on lantus Sarah, or does he inject a different insulin when he eats?
 
Sarah- if its any help I had several meltdowns in those early days - because I didnt understand any of it -but we have moved on - also ask your team/dietician for any eating out lists -greggs -kfc - subway-they are handy for when he may eat out with mates .We made sure in those early days that we would eat out say once a week so he would not get a hang up about injecting in public- now he doesnt give a stuff and pretty much will inject anywhere- no-one notices anyway
 
first morning back at school tomorrow so i am a lil worried about that ( i know he will be fine) but cannot help those little feelings inside... I think this will also help with being around people and injecting himself in public.. I dont know if you were all the same as soon as they said type 1 i saw all this food he cannot have flash infront off my eyes thinking oh no he cannot have anything .... Its the fact we sort off take food for granted in a way that we can grab and eat so to speak...... So i have to say i shall be eating like my son to help him feel ok.. our portion sizes are going to be the same it wont hurt us to have a healthier and smaller meal sizes in my home... If that makes sense
 
Sarah-at school -my son went into the medical room to inject -the team met with the school to discuss a care plan -and he will need his info in the staff room etc -like kids who have allergies etc.also send spares in a bag etc and ask the school where it should be kept-the secretaries had ours-He needs to have a hypo treatment in his pocket and the school need to be aware that he may need to test his blood in class should he feel low-perhaps ring the head of year so that all the teachers who teach him are aware- I remember at the start my son went off site for a 2hr games lesson and no the teacher didnt know- mmmmmm wasnt a happy mum.-He will be fine oh and on the subject of food my son eats whatever he wants if he does want a cake etc we were advised to eat it straight after a dinner- have you been told about carb counting? also I remember my sons appetite being huge at first to the point of ridiculous- but Ithink their body is making up for the weight loss-
 
I know its the carbs i will get all in a tizz over and adjusting the insulin to what he eats...Its a huge shock at first n im still all over the show n sort off feeling sorry for him.. Not really what you want to see your kids go through is it.. but he has been fab and im so proud off him for it all... Thats a good idea i will speak to them next week when they come out... 🙂 thank you .. going back to school im hoping will help him feel comfy injecting with people around him, as he has said he is happy to inject around his friends... i am scared when he goes into school tomorrow coz im handing him n them control..
 
Just make sure all his teachers know and he is happy wipping out the monitor in class if needs be -he will be fine- my sons friends now take bets as to what his levels are at lunch-as for carbs- dont get in a tizzy{ I remember in those early days I cooked some pasta thingy and omg it took me ages to work the thing out- wish id listened in maths -anyway it does become easier- have you got digital scales? anyway start with easy cooking to begin with. Good luck for tomorrow
 
Yes i am making sure tonight everything is packed and extra checked n again checked, shall make sure there is plenty off his meds for them.. Spoken to them on the phone today as he will be doing just mornings like the dietitian said for now and no p.e.. I am so happy with all the help so far since he has been diagnosed they are a great team ... One day at a time 🙂
 
Carb counting does get very easy in no time at all. All pre-packed food is labelled with the carbs in them (crisps/cereal bars etc) and loaves of bread have the carbs per slice in the info on the bag and with digital kitchen scales it's easy enough to weigh things like rice, pasta and potatoes.

Hopefully your team have given you a basic list of carbs in things like fruit, flour, pasta, rice, potatoes etc. Make sure you know the carb count for them cooked or uncooked though, so you get the figures right. 100g of dried pasta = 300g cooked.

I saw your post in the parents section before this one. Glad (in the nicest possible way) that your son has had his first hypo already. My son didn't have one for 2 or 3 weeks, so had already been back at school a little while before one happened. He then went through a period of serious anxiety about leaving the house in case it happened at school. Do just be prepared in case this happens. As he coped so well with his first one, hopefully he will deal with it ok.

As everyone says, make sure he has hypo treatments on him at ALL times. Keep an eye on his stocks. Some use Coke or Lucozade, others Dextrose tablets, and others Jelly Babies! Liquid is meant to be the fastest acting, those mini cans of Coke being the perfect size to treat a hypo. How practical that is to carry at school though, and for my son the shakes with a hypo meant opening a ring pull was impossible. He now prefers Dextrose tablets. Our school nurse asked us to provide a supply of hypo treatments which she kept in her office, and we also found it was worth leaving half a box of needles with her too, as my son invariably forgot to restock his case with needles regularly, then couldn't inject. A dash to school at lunchtime for me with no car and a houseful of toddlers was a right nightmare.

Try and keep the lines of communication open between you and your son. In time you may find he gets fed up with you checking on him every five minutes, but with time you will both settle down to it much more. These early days are tough on everyone though. I don't think people outside of this little circle have any idea just how stressful it all is, but take heart, we do all survive. Keep talking, positive or negative, we are all here for you.

Tina
 
Thank you tina , I do jot bits down and did put in a script when we got home from hospital so we dont get low as the stuff is not mega amounts you get to bring home....

When i heard the words diabetes type 1 my heart sank coz straight away all this rush off what he wont be able to have and panic n worry set in as he was in a bad way and very lucky... kids are so resilient with things and surprise me as he did with injecting himself..

Today after speaking with the dietitian she has put my mind at ease with foods, so as a treat tonight we had a take away , as i know he was missing it 🙂

I have given him his meds to put in his bag and all the bits incase off a hypo... Luckily i have older children who have also been there to support so far so he has them and they always pop round to see him as he is the youngest they all wrap him up in cotton wool sometimes but not to much... 🙂

So thank you tina for your kind words and advice it is very much appreciated
 
All day today and he did super fine and was very happy when he got home ... One pleased mummy lol :D
 
Status
Not open for further replies.
Back
Top