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Dj6028

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Type 1.5 LADA
Hi everyone,

Names Dan recently diagnosed in the last week

109 on my 3 month test or 12.1 on the chart

Been on metformin for 7 days
Gliclazide for 2 days

Slightly confused as to what level is dangerious for me to get down to once I start hitting 5 and below I get headakes and dizziness, is this just because I’m not use to being at these ‘normal levels’ or do I let my level drop further,

Still a lot of unknowns think I need another visit with the diabetes nurse

Thanks in advance for any advise you can give

Dan
 
Hi everyone,

Names Dan recently diagnosed in the last week

109 on my 3 month test or 12.1 on the chart

Been on metformin for 7 days
Gliclazide for 2 days

Slightly confused as to what level is dangerious for me to get down to once I start hitting 5 and below I get headakes and dizziness, is this just because I’m not use to being at these ‘normal levels’ or do I let my level drop further,

Still a lot of unknowns think I need another visit with the diabetes nurse

Thanks in advance for any advise you can give

Dan
Welcome to the forum
Many wait a long time to get a proper diagnosis if Type 1 or LADA but it sounds as if that has happened promptly for you.
You are right that if blood glucose starts to fall quickly because of medication and dietary changes then they can start to feel wobbly and the gliclazide has the potential to cause low blood glucose but people can feel the 'hypo' symptoms at higher levels than would be considered hypo until the body gets used to lower levels.
It is often better to reduce levels slowly to avoid problems with eyes and nerves.
Having something like a couple of jelly babies or a small 150ml can of full fat coke can help if you feel shaky. There are also rules about testing if you drive which you should be familiar with.
Many who are diagnosed as LADA will be started on insulin and sooner rather than later is usually better.
You are new to all this so do fire away with any questions, there are others here also in your situation.
How did you come to be diagnosis?
 
Just had a few side effects the normal ones so drinking more, peeing more excessively tired just though it was due to my job, then I had a few of the other ones too.

Got to admit the doctors have been very good and surprisingly quick all a bit of a shock

I’ve informed the DVLA and do the 2 hour testing so I think I’m all good that way I hope

I’m just not use to not eating / limiting carbs so that’s my biggest challenge
 
Just had a few side effects the normal ones so drinking more, peeing more excessively tired just though it was due to my job, then I had a few of the other ones too.

Got to admit the doctors have been very good and surprisingly quick all a bit of a shock

I’ve informed the DVLA and do the 2 hour testing so I think I’m all good that way I hope

I’m just not use to not eating / limiting carbs so that’s my biggest challenge
I am curious how they decided you were LADA rather than Type 1 or even Type 2 which is the normal conclusion.
Have you been given any guidance about how many carbs you should have.
 
Welcome. I’m curious to know how you got a diagnosis of type 1.5 in only a week if diagnosed last week yet on tablets? Have they done all the proper tests eg cpeptide and antibodies as usually they’d take a while to come back.

If you’re only on metformin and gliclazide you don’t actually need to inform the dvla or test every 2 hrs when driving, but good habits to get into as you will when on insulin. You do need to test when feeling unwell though.

When will you be moving to insulin? As you’re type 1.5 not type 2 you don’t need to limit your carbs just eat a normal balanced diet.
 
They said I’m between the two and that because I’m so high they wanted to start the gliclazide asap to get me down. And that I’d could possibily need insulin at a later date also they have caught something
on the blood tests so I need to have that looked into
 
Welcome. I’m curious to know how you got a diagnosis of type 1.5 in only a week if diagnosed last week yet on tablets? Have they done all the proper tests eg cpeptide and antibodies as usually they’d take a while to come back.

If you’re only on metformin and gliclazide you don’t actually need to inform the dvla or test every 2 hrs when driving, but good habits to get into as you will when on insulin. You do need to test when feeling unwell though.

When will you be moving to insulin? As you’re type 1.5 not type 2 you don’t need to limit your carbs just eat a normal balanced diet.
Maybe I should have said I started tables a week ago the tests i had were longer ago then that
 
Hi and welcome from me too.

I also thought your diagnosis of LADA is a bit odd as an initial diagnosis. I wonder if it is because you didn't present with DKA (Diabetic KetoAcidosis) that they are hedging their bets a bit, but great that they are not automatically chalking you down as Type 2 as often happens. For information, LADA is a slow onset Type 1 diabetes and very different from Type 2 but may present like Type 2 and even respond to dietary changes and Type 2 medication in the early stages, but eventually as the immune system slowly kills off your insulin producing beta cells, you will need insulin. There is a school of thought which sugests that early introduction of insulin, takes the strain off existing beta cells and therefore puts them at less risk of attack by the immune system, so preserving some of your "home grown" insulin production. In some cases this can buffer the small insulin doses you inject and make your BG management smoother, but in my experience I found my dwindling home grown insulin erratic and a nuisance and my diabetes has been easier to manage since it mostly petered out.

I wonder if the medical staff are using the label of LADA to hedge their bets as to your Type. Do you know if they have done C-peptide and GAD antibody tests? If you don't know.... ask! Diabetes is very much about self management and particularly in the current climate, so you really need to ask what tests they have done and what the results are in numerical form and learn all about it and keep records or gain access to your records so that you can understand where you are with your management and what you need to work towards. Knowledge is power and you need to become the expert in your own diabetes management.....There is a huge amount to learn and it is really overwhelming at first but this forum is probably one of the best resources in the world, likely the best, for practical knowledge and understanding as well as emotional support, so do lean on us and ask lots of questions.

As regards your initial question ....
Slightly confused as to what level is dangerious for me to get down to once I start hitting 5 and below I get headakes and dizziness, is this just because I’m not use to being at these ‘normal levels’ or do I let my level drop further,

You are looking to keep your levels above 3.9 ie 4 or above, however it is not intrinsically dangerous to drop below 4 as non=diabetic people do so from time to time, but below 3.5 is when your brain is at risk of suffering some damage and certainly below 3 is not good at all, but that doesn't mean to say that you will do permanent irreparable damage at those levels, but they are to be avoided if at all possible, partly because they will erode your hypo awareness and that is essentially your safety net, so you really want to preserve that.
In the early days, because your body has probably been running with very high BG levels for a while, levels well above 3.9 may make you feel quite unwell, but ideally you want your body to become reasonably happy with levels mostly in the 4-7 range, so if you feel bad when your levels are say at 6, then eating some jelly babies or whatever your chosen hypo treatment is, will probably send you back up into double figures and your body will not get used to those nice healthy in range levels, so you have to be a bit cautious with treating those false lows because you don't want to rebound too high. A normal hypo treatment (for when you are below 4) would be (15g carbs) which is about 3 jelly babies, so if you feel rough at 6, maybe try just one jelly baby and give it 15 mins to work and then test (finger prick) again to see if that has brought levels up a bit. If you have Libre, do be aware that it will take about half an our to show your levels have changed direction from dropping to rising, which is why people are encourage to finger prick when they feel hypo and also when they are checking recovery from hypo, because otherwise you can be tempted to over treat a hypo (or false hypo)

Anyway, I hope that answers your question. Jelly babies are one of the commonest hypo treatments because they are about 5g carbs each which is a niuce round number.... I never really understand why they don't make glucose tablets larger as they are about 3g each and are easily portable and work well for most people. It is worth knowing that we absorb glucose through the cells in our mouth as well as the rest of our digestive tract, so chewing your hypo treatment really well or swishing it around your mouth with a liquid hypo treatment will usually work faster than a few chews and swallowing, so try not to panic and eat too much (can be challenging when you get the hypo munchies and want to eat everything in sight 🙄 ) and chew well before swallowing to get greatest impact from what you do eat.

If any of that doesn't make sense, please ask. I am just over 4 years down the line and still learn something new about diabetes nearly every day and I frequent the forum pretty much every day to share my experience and learn from others, so there is a big learning curve and you are probably currently on the steepest part of the curve, so do step back a bit when you feel overwhelmed but keep coming back to ask and top up your understanding and little by little it will become your new norm.
 
Jelly belly jellybeans are about 1 carb each and are a nice way to do hypo trstment..setting your libre alarm quite high eg 5 is good to start off so you have a warning and can head the drop off begore it gets into hypo territory.
You can do low carb but don't need to..i started as low carb but it eventually made me insulin resistant., plus, i missed bread. Now, whilst i still avoid cakes, choca
olates have found a place back in my diet
 
Welcome to the forum @Dj6028

Hopefully as your body adjusts to being back towards a healthy range of BGs the wobbly feelings in the 5s will subside as your ‘glucose thermostat’ resets after having been running high for a while.

Hope you get some clarification on your diabetes type soon. Perhaps they will start you on insulin sooner rather than later - I understand that this can help protect the remaining beta cells, rather than pushing them to work double shifts providing the insulin you need while they are a bit ‘short staffed’ with the autoimmune destruction of some of your beta cell mass.
 
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