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Newbie!!'type 2 now thinking type 1

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Rebecca palmer

New Member
Relationship to Diabetes
Type 1
hi I am a newly diagnosed type 2 but after 2 weeks of metfomin (horrendous stomach) and a week 1/2 gliclozide I am due to start insulin this fri as they believe I am acctually type 1 Worried tried groggy Mum of 4year old!! And don't get me started in the suger cravings!!
 
Hi Rebecca, welcome to the group.
 
Hi Rebecca, welcome to the forum!
There's a few of us on the forum that were misdiagnosed as type 2, unfortunately it happens more often than we think. But, I'm glad you'll be getting on to the right treatment for you soon 🙂
How did you original diagnosis come about?
Insulin can be pretty daunting at first, I remember being terrified! However, it soon becomes part of your daily life, and it will hopefully make you feel loads better 🙂
Everyone here is really friendly, so ask lots of questions, the support here is fantastic!
 
Good grief Rebecca - at your age unless there are other factors informing them - God knows what! - it's more than likely to be T1.

Fear not insulin - in comparison to Metfartin - it's easy peasy LOL No side effects usually unless you take too much - but you'd find that out so quick it would be obvious. Still is after 44 years!

Welcome to the merry band - and go forth and purchase 'Type 1 diabetes in Children, Adolescents and Young Adults' by Ragnar Hanas forthwith!
 
hi I am a newly diagnosed type 2 but after 2 weeks of metfomin (horrendous stomach) and a week 1/2 gliclozide I am due to start insulin this fri as they believe I am acctually type 1 Worried tried groggy Mum of 4year old!! And don't get me started in the suger cravings!!
Hi Rebecca ,I really wish you well for Friday , I hopefully your syntoms will be under control soon , know it's not easy but try and keep your chin up .
 
Hi Rebecca. Once your BG (blood glucose) levels start to go down you will soon start to feel better. Don't worry about going on insulin as Jenny said
Fear not insulin - in comparison to Metfartin - it's easy peasy LOL No side effects usually unless you take too much - but you'd find that out so quick it would be obvious. Still is after 44 years!
For me Insulin has been the best thing since sliced bread or rather the stodge that they call sliced bread today 😱. It has many things going for it, one of the pluses no one ever mentioned to me , is that it improves your maffs no end :D . Did I mention that you'll soon start to feel better.
We're are a friendly bunch, so pick our brains . In time you will go on a course or two. You have a great resource on tap here so ask away K

Metfartin, I somehow think that name is going to catch on here :D
 
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Hi Rebecca
Don't worry about the insulin, you'll get the hang of it very quickly. It feels very disconcerting at first (very) but that's totally normal at the beginning, and the feeling of being overwhelmed by it all goes very quickly. Make sure you take a notebook with you on Friday so you can jot things down. They tend to throw stuff at you quickly and if you're anything like me you'll get home and have forgotten it all. The key thing is to feel comfortable so ask questions if you don't understand and get them to slow down if they're moving too quick. There's loads of insulin shooters here so don't be afraid to ask questions here either. Once the insulin kicks in and your body gets used to normal again you'll feel much better too. The sugar cravings are also quite normal, it's your body telling you you're starving (literally in this case), without insulin your body can't use what you're eating so it thinks you're not eating. Sugar is the quickest form of energy so your brain is sending signals for sugar. It will do the same if you hypo when on insulin, quite clever really when you think about it 🙂 Before diagnosis I knew something was really wrong when the only food on the planet that looked appealing was peanut butter cups and full sugar cherry Coke, I hate milk chocolate and can't stand fizzy pop but they took on a very special place in my life. Back to normal now, can't look at Cherry Coke or a peanut butter cup without feeling nauseous. I think I also ate a few bananas in hospital and normally you'd have to tie me down and force me to swallow those vile fiends 😱 Best of luck on Friday, take it one step at a time and you'll be fine, if it feels overwhelming take a deep breath and tell them you feel overwhelmed.
 
Welcome to the forum Rebecca. And good luck Friday. Sure you will feel much better once you start the correct treatment. 🙂
 
Hi and welcome to the forum Rebecca
 
Welcome Rebecca from a fellow T1 (probably). I say probably as they still can't decide despite a battery of tests if I am T1, 1.5 or 2. However, I was put on insulin immediately after diagnosis as my HBA1c and FBG were so high and to be honest I've not looked back. Initially I was on mixed insulin, injecting before breakfast and before dinner and this brought my levels down pretty quickly. Last week I went onto basel/bolus regime and that is even better (bar a blip on waking BG reading today), so much more flexibility.
I was dreading injecting but it becomes second nature very quickly and is just part of the eating and bedtime routine now. Insulin has really helped me bring my levels down and the consultant is hoping to sign me off in Jan/Feb after only 8/9 months.
Please don't be afraid of it because it will really help you and we are all here to help and offer advice.
 
hi I am a newly diagnosed type 2 but after 2 weeks of metfomin (horrendous stomach) and a week 1/2 gliclozide I am due to start insulin this fri as they believe I am acctually type 1 Worried tried groggy Mum of 4year old!! And don't get me started in the suger cravings!!
Hi Rebecca, welcome to the forum 🙂 Very sorry to hear about your diagnosis :( At least they appear to be on the ball and have quickly realised you may be on the wrong treatment - some people can go back and forth for months trying to convince their nurse or doctor. How did your original diagnosis come about?

Insulin is nowhere near as scary as you might be imagining, so try not to get too wound up about the prospect. In comparison to the oral medications, like the gliclizide and metformin you have been on, it is much more controllable, far less hassle and it will make you feel a million percent better almost straight away - it's true! I was in a desperate state when I was diagnosed, but as soon as I was given insulin I felt full of energy and soooo much brighter and better. The thing is that we all need insulin in order to get energy from the food we eat - if you are not producing enough of it, then you don't get the energy, the glucose stays in your blood and climbs high, your body tries to get rid of it by making you thirsty and peeing all the time, it makes you incredibly lethargic due to lack of energy - and it also makes you incredibly hungry, with sugar cravings 😱 The reason for the sugar cravings is that your brain only detects that you are not getting energy into your body's cells, so it sends out distress signals to make you want to eat EVERYTHING 😱

Once you are getting the insulin you need, your body and your brain can relax and you will start to feel so much better - it's often at this point that people realise just how poorly they have been feeling, the contrast is so great. So, whilst I know you would really not be in this situation, you should look forward to the benefits it will bring you 🙂

Most people feat the actual injections, but here again there is some good news (believe it!). The needles are tiny and very fine, and the injections are made into fatty areas (tummy, thighs, bottom) - you will hardly feel a single one. It is nothing at all like the injections you get for things like flu or vaccinations, or when they take blood samples.

Hopefully, they will put you on an insulin regime called 'MDI (Multiple Daily Injections) - also known as 'basal/bolus'. On this regime you inject a slow-acting type of insulin once or twice a day, and in addition you inject a fast-acting insulin when you eat. This allows you great flexibility over when and what you eat, and you can miss meals if you wish, no problem. Another insulin regime requires fewer injections, and it is a 'mixed' type of insulin which mixes slow and fast-acting insulin together. If they mention this to you I would highly recommend asking for the MDI instead. Mixed insulins do work well for some people, but they are very inflexible. You inject maybe twice a day, but then you HAVE to eat at certain times, according to when the insulin 'peaks', and you HAVE to eat a certain amount, whether you want it or not. With a young child and a busy life I imagine you would find this restrictive - hopefully it will not even be mentioned 🙂

Do get a copy of the book Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas, it is an absolutely essential reference that covers all aspects of living with Type 1. The book is suitable for any age (I was 49 at diagnosis!), so don't be put off by the title 🙂

Please let us know how you get on, or if you have any questions - there's loads of experience here and no question is considered 'silly', so if it is confusing or bothering you - ask! 🙂
 
Welcome 🙂 I've found this forum incredibly useful and supportive - especially out of hours😱... this is truly 24/7 support🙂
 
Thank you all so much I feel already at ease! And the sound of me feeling better is amazing🙂 I went into hospital in regards to spinal random BG test done whilst there I was at 26.1 so fasted and the 18.1 had uncontrollable thirst and lost 2stone over past 6 months not trying which is the only bonus to date ha ha 😛 I have also been to see podiatrist and have been put in high risk foot attack due to loss of feeling in feet but they are not sure if that's due to spinal complications or diabetes?? o_O
 
Thank you all so much I feel already at ease! And the sound of me feeling better is amazing🙂 I went into hospital in regards to spinal random BG test done whilst there I was at 26.1 so fasted and the 18.1 had uncontrollable thirst and lost 2stone over past 6 months not trying which is the only bonus to date ha ha 😛 I have also been to see podiatrist and have been put in high risk foot attack due to loss of feeling in feet but they are not sure if that's due to spinal complications or diabetes?? o_O
It could be either!
 
Thank you all so much I feel already at ease! And the sound of me feeling better is amazing🙂 I went into hospital in regards to spinal random BG test done whilst there I was at 26.1 so fasted and the 18.1 had uncontrollable thirst and lost 2stone over past 6 months not trying which is the only bonus to date ha ha 😛 I have also been to see podiatrist and have been put in high risk foot attack due to loss of feeling in feet but they are not sure if that's due to spinal complications or diabetes?? o_O
The numbness in your feet may be related to the diabetes as this can happen due to sustained uncontrolled blood glucose levels. Hopefully, however, if this is the case then it will improve once you have levels under better control. 🙂

Another thing to be aware of is that your eyesight may change as you get your levels under control (if they have not already). This is normal and has happened to most of us - high blood glucose levels can cause a distortion in the shape of the lens, but again this is temporary so don't go buying any expensive new glasses as you may not need them in a few weeks time! You'll probably also get an appointment for special photos to be taken of your eyes, called a 'retinopathy scan'. Doesn't hurt, although if they use drops to enlarge your pupils then they do sting for a moment or two.They should then do these pictures annually, and also check your feet annually.

I lost a lot of weight also prior to my diagnosis and it did take time to come back on. Basically, when your body can't get energy from the food it burns body fat and muscle tissue instead. When you start on the insulin you'll probably feel really hungry for a few weeks as your body starts to rebuild itself 🙂
 
Hey Northie - I wasn't hungry for 'everything' - although I made myself eat 'normally' but every night on the way home from work, I'd nip in the Newsagents and get 2 Caramacs to scoff on the train ! Could hardly wait to get on it, to get it down my neck, the walk to New St was excruciatingly slow! (And you know how far the station is, from smack opposite the pub!) So that was over 44 years ago - and I haven't been able to face even the outside wrapper of the stuff since when I have to walk past it in supermarkets (though I did occasionally enjoy a square pre diagnosis) - Eeeukkk.

Eating any normal food made me feel like I'd just eaten half a ton of cold lamb fat - ie exceedingly nauseous. Classic pre-DKA symptoms!
 
Hello Rebecca, and welcome 🙂

So glad they have picked up so quickly that you are likely to be type 1 rather than type 2, as people often seem to have to fight to get a correct diagnosis. Insulin injections, as everyone has said, are really easy to do (even for me, and I'm needle-phobic, I have covered needles so I don't have to see them!), and should make you feel loads better.

Taking notes on Friday, as Kooky said, is a really good idea, as they should give you all sorts of info (eg what to do if you're ill, rules for driving, and so on) and you won't need to know everything at first but if you've jotted it all down you'll know where to look when you do need it. It will soon become second nature, don't worry.
 
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