Newbie, hello.

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Dibley71

New Member
Relationship to Diabetes
Type 1.5 LADA
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She/Her
My husband was diagnosed T2 twelve years ago. At the time it was observed that he wasn't a typical diabetic. I trusted that the GP surgery diabetic nurses knew what they were doing, but I've been concerned about his unexplained loss of weight and muscle mass over the past few years, he's now underweight despite playing competitive tennis all year. He was continually being told that he was okay. He recently gave me access to his online medical records and I noted his blood results and weight from diagnosis. He hadn't ever been seen by a doctor, just an array of different nurses. A chance online encounter brought about the possibility of LADA - I investigated and he fits the criteria on nearly every point. We've recently changed our named GP within the practice and, with my husbands consent, I wrote to her. Suddenly things started to move. The diabetic nurse had never heard of LADA. Within ten days he has been seen at the local hospital Diabetic Centre, fitted with a Libra sensor and initially commenced long acting insulin, followed two days later by a short acting. He has had two follow up phone calls and due another tomorrow, he has also been referred to a Diabetic Consultant. This is a steep learning curve for both of us, the sensor results are fascinating (read frightening!) and I've joined this forum to learn from other's experiences.
I would say not to be afraid of speaking out if you don't feel something isn't right - I should have done so years ago. We've a lot to learn, but now going in the right direction.
 
Welcome to the forum @Dibley71 and glad to hear that your husband is finally getting the support he needs. I hope you'll find lots of information here....and there's no such thing as a stupid question, so holler if you need help. We are a friendly bunch! x
 
Goodness! What a rollercoaster for you both. So sorry it took so long to get his case investigated.

LADA can be a fickle and foxy beast. As the destruction of the beta cells can be quite slow, it can initially look like T2, and can respond to oral meds. But as the beta cells gradually decline, eventually insulin will be needed.

It’s a bit surprising that the nurse hadn’t heard of LADA - it’s been a term used for slow onset T1 in adults for decades!

We’ve quite a few members diagnosed with T1 or LADA in later life, so you are in good company here. Fire away with any questions, and let us know how you get on!
 
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