Newbie and still in hospital

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Ghyll

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Hi. Diagnosed type 2 on Friday, totally unexpected. I have been in hospital since trying to stabilise my levels. I am still learning and forgive me for my errors. My 3 month levels (sorry dont know the correct term) was 140 so very high and my blood glucose when admitted spiked at 23, currently between 12 and 15.I was shocked at type 2, as not over weight, eat healthy, fit etc. So were the Dr's.. Currently on Metaformin and Glycoside (or something like that) plus once daily long lasting insulin. I hope to get discharged in next 24 hours. My care has been under BUPA but I will now transfer to NHS. Any advice in best way to do this?
 
Hi and welcome.

I would be asking why they think you are Type 2 and asking for tests to rule out Type 1. These are C-peptide and antibody tests. You do not fit the Type 2 profile and have started with an extremely high HbA1c of 140. Did you also notice any unexplained weight loss? I am assuming you had the other symptoms with levels that high ie. the thirst and frequent toilet visits and fatigue?
 
Welcome @Ghyll 🙂 I agree with @rebrascora Ask them if it could be Type 1 diabetes. If it is, you’d need slightly different treatment. Can you tell us a little bit about how you were diagnosed and any symptoms you had beforehand?
 
Not as experienced or knowledgeable as others here but welcome to the Forum. Having read your post I agree with what others have said and wonder if it is Type 1 as it does not seem to fit the criteria for Type 2.
 
Hi. Diagnosed type 2 on Friday, totally unexpected. I have been in hospital since trying to stabilise my levels. I am still learning and forgive me for my errors. My 3 month levels (sorry dont know the correct term) was 140 so very high and my blood glucose when admitted spiked at 23, currently between 12 and 15.I was shocked at type 2, as not over weight, eat healthy, fit etc. So were the Dr's.. Currently on Metaformin and Glycoside (or something like that) plus once daily long lasting insulin. I hope to get discharged in next 24 hours. My care has been under BUPA but I will now transfer to NHS. Any advice in best way to do this?
Thank you for your message.
Hi and welcome.

I would be asking why they think you are Type 2 and asking for tests to rule out Type 1. These are C-peptide and antibody tests. You do not fit the Type 2 profile and have started with an extremely high HbA1c of 140. Did you also notice any unexplained weight loss? I am assuming you had the other symptoms with levels that high ie. the thirst and frequent toilet visits and fatigue?
Hi. Yes I am awaiting the results of the other tests but they believe that I am Type 2. I really didn't have many signs. I had weight loss over last year but I put that down to digestive issues and I was drinking more water overnight and waking with a dry mouth and need to urinate but not drastically.
It's an odd one and a shock. I have now been discharged on Metaformin and Glicolizide and have not had insulin since Tuesday morning. However even with a very restricted diet my blood glucose levels seem to have a baseline of 12.5 to 12.5 and when I eat a very small and healthy meal reccomended by dietician I get high spikrs to 17.6. GP nit been helpful, I don't have diabetes norse appointment until 2 weeks and GP doesn't want to see me until June as said needs to wait 3 months to review my blood tests?! Is that normal?
 
Welcome @Ghyll 🙂 I agree with @rebrascora Ask them if it could be Type 1 diabetes. If it is, you’d need slightly different treatment. Can you tell us a little bit about how you were diagnosed and any symptoms you had beforehand?
Hi. I had very little symptoms that I recognised but looking back I guess there were some.
I did have weight loss of about a dress size over 12 months, digestive issues and feeling full up quickly. Waking with a dry mouth at night and urinating more. No excessive thirst or anything like that.
I was diagnosed last week. I attended a hospital appointment for my tummy issues and they just performed a routine blood test prior to endoscopy. And to everyone's surprise, including the consultant, the test confirmed diabetes
 
Do you know which tests they have done? Hopefully both C-peptide and antibody tests. The latter usually take about 6 weeks to come back.

Can you elaborate a bit more on your "tummy issues"? Wondering if it might be a pancreatic issue which is causing those and the diabetes and that would make you Type 3c, rather than Type 1 or Type 2 and cause the weight loss if you are unable to digest your food properly. The pancreas produces digestive enzymes as well as insulin. so if it is damaged/diseased, then that could cause both. Do you have any history of gall bladder problems, as that can cause damage to the pancreas sometimes?
 
Hi. I had very little symptoms that I recognised but looking back I guess there were some.
I did have weight loss of about a dress size over 12 months, digestive issues and feeling full up quickly. Waking with a dry mouth at night and urinating more. No excessive thirst or anything like that.
I was diagnosed last week. I attended a hospital appointment for my tummy issues and they just performed a routine blood test prior to endoscopy. And to everyone's surprise, including the consultant, the test confirmed diabetes

The feeling full up bit doesn’t fit with Type 1 as we usually feel starving (because we are, not being able to use what we eat). Not all people with Type 2 are overweight. Some are slim but have a build up of fat inside affecting their organs. I hope your tummy troubles are resolved and I hope you get some answers.
 
Do you know which tests they have done? Hopefully both C-peptide and antibody tests. The latter usually take about 6 weeks to come back.

Can you elaborate a bit more on your "tummy issues"? Wondering if it might be a pancreatic issue which is causing those and the diabetes and that would make you Type 3c, rather than Type 1 or Type 2 and cause the weight loss if you are unable to digest your food properly. The pancreas produces digestive enzymes as well as insulin. so if it is damaged/diseased, then that could cause both. Do you have any history of gall bladder problems, as that can cause damage to the pancreas sometimes?
Good afternoon thanks you for your response. My tummy issues were constipation or diarrhoea, flipping between the two and low appetite and indigestion. I have had a CT Scan of my pancreas and they said structurally it is fine.
My blood tests results were done privately so they said that the results should be back in 1 week. The consultant endocrinologist said she expected it to be type 2. But I will ask about 3c.
I have had gall bladder issues previously, my gall bladder was removed 6 years ago because of an infection. So that's interesting. The dieticians did comment that she suspected Bile Acid Malabsorption and that can contribute to diabetes issues so I will try to get medication for that.
I am trying to control spikes by diet (
as well as meds) very odd last night a healthy veg stir fry with Thai green sauce and prawns plus small amount of rice noodles caused a huge spike in glucose but an omelette for lunch kept a very low spike and in normal range. I have so much to learn.....
 
@Ghyll There is a huge difference between what is touted as healthy and what is the proper diet for anyone having high blood glucose levels.
If you cannot deal with the carbohydrates, for whatever reason, avoiding the high carb foods, such as rice or any grain, might help in keeping levels more in the normal range whilst, hopefully the medical side is sorted out.
I stick to foods with less than 11% carbs - not as strictly as I used to as I have recovered a bit over the years - but I don't use sauces, eat a lot of eggs, meat, cheese, fish, full fat dairy and put cream in my coffee - all of which would have a dietician turning pale in many cases, but it has restored me to good health as I am a really ordinary type 2. I eat twice a day, as I am not hungry, and with around a 12 hour gap between meals my levels are in the normal range.
There are many different ways to deal with type2 if that is what you have, but I suspect that there are a number of different conditions which are labelled as type 2 for want of any other title, plus ones which should be called something else because they are not type 2 at all.
I do hope that you can be sorted out and get useful treatment.
Be sure to emphasize that you are eating a low carb diet if it is helping lower levels - as the omelette did - as it could delay testing and proper conclusions in the minds of the medics if they think it is the regime they prescribe.
 
Hope you get some clarity when your results come back, so that your treatment can be optimised - it certainly sounds like your system is struggling to cope with even modest amounts of carbohydrates.

Let us know what you find out when your results come in 🙂
 
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