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[Loraine]

Hi I'm new to the forum but was amazed by all the comments on here. My son was diagnosed June last year whilst studying for a resit for A levels. He was supposed to go to Leeds Uni in the September, but ended up in hospital when he was supposed to do his exam. As I said it's been nearly a year an at first I didn't know what to do or where to go. It didn't seem to phase my son now 20 at the time. Me as a mother it knock the wind out of my sail. Watching him in hospital with drips all in him. He had a read off the scale of 57 and kidney failure. He had lost two stone in weight so quickly. We were sent home will loads of information to read. The honeymoon period is the worst , as you never know how much his own body is releasing insulin. However as mentioned it's nearly a year and he seems to have it sort of under control, got back the two stone he lost. Eats for England now. My worry now is he's off to uni in September and my anxiety level has started to rise again. Will he have enough time to eat , will he need anything extra in his room, what about ordering his insulin, strips etc. what doctors dose he register with. Any help would be greatly recieved.

 

[grovesy]

Welcome.

 

[Loraine]

Thank you

 

[Stitch147]

Hi and welcome to the forum. I cant offer much advice I'm afraid, not type one or a patent. But just wanted to welcome you. I'm sure you will get lots of helpful advice.

 

[Copepod]

Welcome to the forum, Loraine. Many of your questions depend on where your son ends up living in Leeds. If going to university accommodation / hall of residence, then the accommodation office will be best placed to answer. There is a practice which can register students who live near the campus. It's best for anyone who needs regular medications to ensure they have a few weeks supply before moving, to allow time to set up new regular prescriptions.
Your son is the person who needs to make enquiries - he's an adult now. I know mothers never stop worrying, of course.

 

[Matt Cycle]

Hi Loraine and welcome to the forum. You're in a similar position to my Mum 31 years ago. I was a sixth former studying A levels when diagnosed and although I didn't have kidney failure I'd been close to death and was in a pretty bad way in hospital with DKA. Less than six months later I was at University. I spoke to the medical centre team at the University but in the end chose to stay with my own GP and picked supplies up on my returns home - along with my washing etc. I know my Mum worried because that's what Mums do (I'm a parent myself now) - she still worries about me now and I'm 49! Anyway, I managed to survive all right and enjoyed my time there - I used to phone regularly to reassure her. I would imagine Universities are a bit more proactive with students who have medical conditions now than they used to be. As Copepod says, he will need to speak to the University. I'm sure he will be fine and wish him well.

 

[Loraine]

Hi Loraine and welcome to the forum. You're in a similar position to my Mum 31 years ago. I was a sixth former studying A levels when diagnosed and although I didn't have kidney failure I'd been close to death and was in a pretty bad way in hospital with DKA. Less than six months later I was at University. I spoke to the medical centre team at the University but in the end chose to stay with my own GP and picked supplies up on my returns home - along with my washing etc. I know my Mum worried because that's what Mums do (I'm a parent myself now) - she still worries about me now and I'm 49! Anyway, I managed to survive all right and enjoyed my time there - I used to phone regularly to reassure her. I would imagine Universities are a bit more proactive with students who have medical conditions now than they used to be. As Copepod says, he will need to speak to the University. I'm sure he will be fine and wish him well.

 

[Loraine]

Hi to all who have replied so far.
Thank you for the good advice you are correct my son is an adult, but of course I still worry. I've requested that he stay registered at the hospital by home for his check up as they have been marvellous. I thought that there are so many things he couldn't eat but how it's all changed. It the times you eat them. My son goes to the gym everyday and works out and I was worried he would have low levels but as long as he ate before and did his reads he's been fine. He did however loose a bit of weight again at Christmas but I think that's was because he had time off work and gym so levels obviously changed. He seems to be having a bloated feeling at the moment and not feeling hungry, but doctors said nothing to worry about also a few little lumps in the neck anyone experience this?

 

[Ditto]

Hello and welcome to the forum.

 

[Pumper_Sue]

Hi Loraine and welcome to the forum.
Regarding your sons bloated tum and feeling full all the time, has he been checked for coeliac disease?

As a Mum you will always worry about your children, I've had type1 diabetes for 52 years and my mum bless her still worries about me 🙂

 

[Loraine]

Hi Loraine and welcome to the forum.
Regarding your sons bloated tum and feeling full all the time, has he been checked for coeliac disease?

As a Mum you will always worry about your children, I've had type1 diabetes for 52 years and my mum bless her still worries about me 🙂

 

[Loraine]

No He's had a lot of bloods taken but told to take omeprozol. Just waiting to see if that works. It's a constant worry all the time and I think is it a virus or is it down to the diabetes.

 

[Grannylorraine]

Welcome to the forum.