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New to the Forum (but not diabetes)

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Mrsdeapsleap

New Member
Relationship to Diabetes
Type 1
Hi all,

As per my title, I am new to the forum, but not new to this annoying condition! I was diagnosed 38 years ago at the tender age of 5; i had suffered from flu previous to being diagnosed, so thought to be caused by immune issues. As you can imagine, I have seen quite a change in views and technology over the years with this condition. When I was first diagnosed in 1978, life expectancy was around 10 years less than a non-diabetic, and it was almost a forgone conclusion that we would lose our sight, and may be limbs due to diabetes complications. At my age I saw a Paediatrician, not a diabetes consultant,and my parents had to teach him about the condition (from info they got from the British Diabetic Association, now Diabetes UK). Thankfully that is no longer the case for most people who are diagnosed early, and taught about the condition. I have gone from one injection a day (with a glass and stainless steel syringe that had to be stored in surgical spirit!), to disposable syringes, and then to pens; gone from unreliable urine tests, to blood tests, and now continuous blood testing is available. However, I still feel that diabetes care can be lacking, especially with hospital clinics. My most recent appointment I was seen 45 minutes after my appointment time, then felt rushed, and non of my issues were addressed. Considering the possible serious complications caused by bad control of blood sugars, and the cost to the NHS (and peoples lives!), you would think the diabetes clinic would be more proactive and helpful. I am hoping to find here the support and advice that I felt was lacking with my diabetes consultant.
 
Hi Mrsdeapsleap, welcome to the forum 🙂 Care can be so variable, and often worse or non-existent for people with Type 2 :( I had a very good consultant until last year, when they decided that I would be seen by my practice nurse - I already know far moore than her, so there's little point in seeing her, really :(

Hopefully, you will find our forum friendly, informative and supportive! 🙂 We've got quite a few people who have been diagnosed back in the 'rusty syringe' days, so you're not alone! 😱 😉
 
Welcome to the forum Mrsdeapsleap. 🙂 I wish my sleep was deep. :D
 
Hi Mrsdeapsleep from another old hand - we have quite a few here! - so we're all in good company!

Personally speaking, I was 'just' 35 years in when the NHS let me down repeatedly and so I said Bugger it - I'm going to Google! - which I had done several times earlier, just for curiosity, but found repeated 'adverts' extolling the virtues of cinnamon to 'cure Type 2' - so knowing that to be a load of old bollards I'd never gone further.

However - having done this - I then learned all sorts of things I never knew in the space of a few hours and having started to help myself - suddenly found the NHS a LOT more helpful. I think that 'they' often assume just because we ARE old hands - that we already know everything.

But - since they've been assuming that thing for a LONG time - very very often - we are relatively clueless actually. Ooops ......

Question - have you ever been on a carb counting course? - DAFNE or one of the other courses along the same lines that ALL Health Authorities in England offer? If not, why not? - cos like I did - you'll most likely learn an awful lot ........
 
Welcome - I'm glad I've never had to do the syringe thing!
 
Hello and welcome Mrsdeapsleap 🙂

I was also diagnosed in 1978 with 38 years clocked up. I've learnt so much since being on here but I've also come across the 'you've had it for years so you must know what you're doing' assumption made by some medics. My treatment has morphed from rusty syringe in surgical spirit with a urine testing kit to using a pump for the past 17 years. It's been an interesting journey to date!

I'm sure you'll find great support and advice here, I certainly have 🙂
 
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