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- Type 1
A new study will be examining the implications of when and how NHS healthcare professionals re-contact patients with new genetic information that may impact their health or that of their family. The three year Economic and Social Research Council (ESRC) funded research will also explore issues of consent and how genetic information is stored.
Professor Susan Kelly from the University of Exeter is leading the project looking at how the NHS currently re-contacts patients; the legal context for this and the relevant guidelines; ethical issues, and expectations of both patients and professionals. The project involves partners from Cardiff University (Angus Clarke), the University of Southampton (Anneke Lucassen) and the Royal Devon and Exeter Hospital (Peter Turnpenny).
http://www.news-medical.net/news/20...ntacts-patients-with-genetic-information.aspx
Professor Susan Kelly from the University of Exeter is leading the project looking at how the NHS currently re-contacts patients; the legal context for this and the relevant guidelines; ethical issues, and expectations of both patients and professionals. The project involves partners from Cardiff University (Angus Clarke), the University of Southampton (Anneke Lucassen) and the Royal Devon and Exeter Hospital (Peter Turnpenny).
http://www.news-medical.net/news/20...ntacts-patients-with-genetic-information.aspx