New pump concerns

Natalie123

Natalie123

Well-Known Member
Relationship to Diabetes
Type 1
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Hi everyone. I've not been around much for a while so hello to anyone who was around about 10 years ago!:hello:
I have been using my medtronic pump with Fiasp insulin for the last 5 years and had an older medtronic pump with Fiasp or Apidra (can't remember when i switched) before that. I am now looking at getting a new pump. My consultant recommended a closed loop system, either a new medtronic pump or ypsomed pump.

I liked the sound of the smaller ypsomed pump but wanted to look at both options. I spoke to the nurse team today expecting to find out more about both systems and make a choice. To my surprise (and horror), I was told that the ypsomed was not compatible with fiasp so I would have to move to novo rapid and the medtronic is no longer available! So now I'm really upset and scared. Novorapid didn't work for me, I had really bad high sugars after food and low sugars 3 hours later. That's why I was switched to Apidra and the Fiasp in the first place. Does anyone have any suggestions? I'm sticking with my current pump for now but have been told that I will need to change when the warranty is up or take responsibility for my pump (whatever that means!). I feel like they aren't discussing this with me, just telling me what i have to do as though I was a child, not an intelligent adult with lots of experience and knowledge of my diabetes.

Thanks all x
 
Hello @Natalie123.
Treat your upgrade as a positive move newer should be better, more modern tech.
I had doubts too but changing onto a closed loop system was a great move for me.
I'm on an Omnipod 5 teamed with a Dexcom G6 sensor and I've never had such good results, I seldom have any lo's or hi's.
Previously I took a fast acting insulin with meals and a long acting once a day the pump now only uses the fast acting.
My pump also works out if you need more insulin or stops insulin if is sees you are dropping down, that's one smart algorithm.

Best
 
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Oh that’s a bit of a rubbish choice! Do your clinic not offer any other pump options? Closed loop pumps are great, but if they are only licensed for use with an insulin that doesn’t suit you then that isn’t helpful. You could keep your old pump, it will still work after the warranty runs out, but if anything goes wrong with it you won’t get help. And if you get a different one and run it with insulin that suits you but isn’t allowed by the pump manufacturer you will probably void the warranty. I’m sorry I don’t know what to suggest, your team seem terribly unhelpful, I can imagine my daughter’s would be making a bit more effort to find a solution that works. Hope you can sort something!
 
Hello from a Medtronic closed loop system. For this I use a 780G pump with the Simplera Sync sensor.

Where you were told that the Medtronic pump is no longer available, is that referring to the 640? If so the 780 is very similar and is loopable. I switched to the 780 from an Accu Check Combo 4 years ago. The transition took me a bit of time to get used to but now would not want to go back from looping. I am aware that people do use FIaSP with this system. Or is the decision a local one where the Medtronic has fallen off the list for your hospital? Does that just leave you the Ypsomed. It is unusual to only offer one choice.

Whichever pump you choose I am a big fan of looping. It is so much easier, and I find that I can ignore my diabetes for large parts of the day. I still need to count carbs and input that for the boluses, but the back ground checks and autocorrections are done without my input and are sorted every five minutes whilst the pump and sensor check in with each other.
 
Thanks @mark king, good to hear that you're getting on with yours well. I much prefer my pump to the old pens! I was really excited about the closed loop system until my appointment today.

Hi @Sally71, the other option is the Omnipod but I really don't want a patch pump because I'm sensitive to adhesives and can just imagine the discomfort and red itchy marks left from having a pump stuck to my body. Now that I've calmed down a bit, it looks like the Ypsomed is compatible with Fiasp after all, it says so on the pump manufacturer's website as well as the insulin manufacturer's website! I'll have to wait to speak to my consultant and see what she says.

@SB2015 It's the 780 pump with the closed loop system that is apparently no longer available. I think it must just be my trust because it is still listed on the main NHS page. I don't mind switching pump as long as it is still a good pump but I really don't want to change insulin type.
 
Natalie123 said:
@SB2015 It's the 780 pump with the closed loop system that is apparently no longer available. I think it must just be my trust because it is still listed on the main NHS page. I don't mind switching pump as long as it is still a good pump but I really don't want to change insulin type
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The 780 is definitely available generally. I got my most recent only 1 week ago, so as you say it must be a local thing.
 
How frustrating for you @Natalie123

Sounds like you need to ask about the possibility of sticking with Fiasp in the Ypsopump (even if they don’t generally do that).

The algorithm may be designed more around NRs timings? Though the DSN Forum comparison does suggest compatibility with its HCL and Fiasp/Apidra?
 
Well, I just looked at the Ypsopump website and Fiasp is there right at the very top of the list! I actually quite fancy one of those myself but since I cannot contact The Pump Team at my hospital - They will contact you when it the time comes. Er, when is the actual time then? Any time from now till next January, and your wish for HCL has been noted but of course funding is always an issue there. Now, about blah blah ....

I just wanna know what I have a choice of. I presume the Novorapid 1.6ml Pumpcarts fit the Ypso, same as the did the Insight, but NP if not cos the Ypso rocket science allows you to have a session reservoir filling and can supply a storage box to keep em in, in your fridge. They made very excellent 'click on' pen needles when I went onto Lantus last century - cos BD only did screw on and they weren't interchangeable back then.
 
Thanks @everydayupsanddowns and @trophywench . I got a call from the hospital to say they made a mistake at my appointment yesterday and Fiasp is ok to use in the ypsomed pump!

I still don't know whether to go for it or wait to see if the medtronic becomes available again. I feel like I have so many questions that no one has answered and I don't want to agree to something that doesn't work for me.
 
Natalie123 said:
Thanks @everydayupsanddowns and @trophywench . I got a call from the hospital to say they made a mistake at my appointment yesterday and Fiasp is ok to use in the ypsomed pump!
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Woo hoo! Thank goodness for that!

Natalie123 said:
I still don't know whether to go for it or wait to see if the medtronic becomes available again. I feel like I have so many questions that no one has answered and I don't want to agree to something that doesn't work for me.
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It’s very stressful choosing isn’t it - especially knowing you’ll then be tied in for 4 years!

Have your DSNs got any idea why Medtronic isn’t being offered any more, and how permanent that is? It certainly is still available in some places. we’ve had a few recent starters on it on the forum (eg I started over the summer)
 
I wondered IF you or I can actually get the HCL version, what CGM the Ypsopump pairs with?
 
trophywench said:
I wondered IF you or I can actually get the HCL version, what CGM the Ypsopump pairs with?
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As Bruce says, it's the Libre 3 or Dexcom. Why do you think they wouldn't give it to you? I was lead to believe that my NHS trust was offering it to people who are upgrading their pump and already use a CGM. But it might also be because my HBA1C isn't good at the moment due to mental health struggles.
 
Well I know what he says but that does not always mean the money will be available, once it's been already been promised to A, B and C does not mean there'll be enough left for the rest of the alphabet. Or when.
 
trophywench said:
Well I know what he says but that does not always mean the money will be available, once it's been already been promised to A, B and C does not mean there'll be enough left for the rest of the alphabet. Or when.
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As I understand it there's been an agreement: upgrading pump users in this way is cost effective. So there should be money, and Prof Kar wants to know when local teams claim otherwise so he can help resolve things. (I don't know whether pump contacts come into this. I can imagine they might. I just don't recall all the details. I'm not using a pump so it's not critical to me.)
 
When the Simplera sensors became available for the Medtronic I was told that I needed to wait until my pump was up for renewal, and that they would train us in groups.

I was surprised that there were only three of us at my training recently, but in spite of us all being familiar with the pump we still filled the four hours, with setup and sorting out the sensors etc. It is an expensive process.
 
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