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Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
New member steve
- Thread starter Steve1963
- Start date
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Ditto
Well-Known Member
- Relationship to Diabetes
- Type 2
Hello and welcome @Steve1963. 🙂
Hi @Steve1963 and welcome to the forum. Are you on any diabetes medication?
All Carbohydrates (starches as well as sugars) raise Blood Glucose. So reducing the amount of carbs you eat is the obvious thing to try for control and remission of Type 2 Diabetes. This means grains/flour/bread/pasta (wholemeal/brown as well as white), starchy veg such as potato/parsnip/carrot plus tropical fruit and fruit juices.
Normally we eat more meat, fish, eggs, cheese as well as low carb veg such as cauliflower, broccoli, courgettes, nuts full fat dairy and berries. But I suppose you need to avoid red meat because of its high haem content.
We are all different and so some can eat much more carbs than others. The best way to find out which foods don't spike your Blood Glucose is to self-fund a Blood Glucose meter and test strips.
If your BG rises by more than 2.0 mmol from before eating to 2hrs after first bite then that meal probably had too many carbohydrates in it for your body to handle at that time (yes, it can change at different times of day).
All Carbohydrates (starches as well as sugars) raise Blood Glucose. So reducing the amount of carbs you eat is the obvious thing to try for control and remission of Type 2 Diabetes. This means grains/flour/bread/pasta (wholemeal/brown as well as white), starchy veg such as potato/parsnip/carrot plus tropical fruit and fruit juices.
Normally we eat more meat, fish, eggs, cheese as well as low carb veg such as cauliflower, broccoli, courgettes, nuts full fat dairy and berries. But I suppose you need to avoid red meat because of its high haem content.
We are all different and so some can eat much more carbs than others. The best way to find out which foods don't spike your Blood Glucose is to self-fund a Blood Glucose meter and test strips.
If your BG rises by more than 2.0 mmol from before eating to 2hrs after first bite then that meal probably had too many carbohydrates in it for your body to handle at that time (yes, it can change at different times of day).
Cherrelle DUK
Much missed Online Community Coordinator
Hi @Steve1963 , I'm the same as you. Type 2 with Haemochromatosis too. Luckily for me neither are causing any issues currently. How did you discover you have Haemochromatosis?
hi everybody thank you for your replies
I'm sorry I'm just replying now but haven't had chance to get back on site for a while
as I'm very busy at the moment with work and the fact that I'm a single father as well
this happened just as i was joining
me and my partner split and my two young girls wanted to live with me
you can imagine how difficult and busy this can be as they are 6 and 3 and I'm a male who as everyone knows unlike the female of the species cannot multitask so its one job at a time and that coupled managing two conditions and work dont leave much time in the day
but wouldn't change it apart from the conditions
CHRISTY
re your question
i found out 4years ago about the hemochromatosis
started with a boil on the back of my leg which after 3month of doctors visits turn out to be a sist
i already started with pains in my feet which i put down to lots of driving north to south and south to north everyweek due to my work at the time also my back so didnt worry about it just took as norm
after mentioning this pain and some numbness they gave me blood tests which showed low vitaminB levels i think vitaminB could have been D so they boosted my levels and after 6month and no change and no contact i decided to contact them and they said you need to have blood test which i under took again and was told if there is a problem they would contact me they didnt so thought all was well and my problem down to travel and back but it just seemed to get worse so after another 2month i again contacted them only to be told another blood test and again no contact so in the end i contacted them again and saw a very nice professional doctor who said my levels where to high
obviously i question this and said they where to low so they boosted me she informed me that they hadnt been that low in first place and she thought she knew why they hadnt got back to me and that was no one understood what was happening
but said she had seen this before and thought it was hemochromatosis passed down from parents
did the checks and it was found that it was hemochromatosis and this is what was causing the feeling in my feet
but wasnt told how to manage just to keep iron levels down
no medication or help
just blood test
then 12month ago after more blood tests they diagnosed type two diabetes which they say could have been brought on with the hemochromatosis called the bronze diabetes because it can turn your skin a bronze colour
and put me on metformin for diabetes and told this could be the reason for my feet feeling like they do
then told it could still be a nerve in my back so just seen a specialist for back whom has ruled out the back
so back to square one
and feet getting worse
so have to go back to doctors and ask for other options to deal with this
apart from weight and food lol
and dont know how long diabetes had actually been in my life as never tested for when blood's tested even though both conditions where present in my family
just know my feet feel swollen all the time even got some bigger shoe sizes to try stop that feeling
i am trying to see if i can find some special diabetic safety boots and trainers and shoes trainers and shoes not safety
because my footwear does affect my feet
and as we know we need to be careful with feet
sorry for long reply but had to explain best i could how it got diagnosed and treatment given or not given
if anybody knows where i can get the specialist footwear if anywhere please could you let me know
kind regards
steve p
I'm sorry I'm just replying now but haven't had chance to get back on site for a while
as I'm very busy at the moment with work and the fact that I'm a single father as well
this happened just as i was joining
me and my partner split and my two young girls wanted to live with me
you can imagine how difficult and busy this can be as they are 6 and 3 and I'm a male who as everyone knows unlike the female of the species cannot multitask so its one job at a time and that coupled managing two conditions and work dont leave much time in the day
but wouldn't change it apart from the conditions
CHRISTY
re your question
i found out 4years ago about the hemochromatosis
started with a boil on the back of my leg which after 3month of doctors visits turn out to be a sist
i already started with pains in my feet which i put down to lots of driving north to south and south to north everyweek due to my work at the time also my back so didnt worry about it just took as norm
after mentioning this pain and some numbness they gave me blood tests which showed low vitaminB levels i think vitaminB could have been D so they boosted my levels and after 6month and no change and no contact i decided to contact them and they said you need to have blood test which i under took again and was told if there is a problem they would contact me they didnt so thought all was well and my problem down to travel and back but it just seemed to get worse so after another 2month i again contacted them only to be told another blood test and again no contact so in the end i contacted them again and saw a very nice professional doctor who said my levels where to high
obviously i question this and said they where to low so they boosted me she informed me that they hadnt been that low in first place and she thought she knew why they hadnt got back to me and that was no one understood what was happening
but said she had seen this before and thought it was hemochromatosis passed down from parents
did the checks and it was found that it was hemochromatosis and this is what was causing the feeling in my feet
but wasnt told how to manage just to keep iron levels down
no medication or help
just blood test
then 12month ago after more blood tests they diagnosed type two diabetes which they say could have been brought on with the hemochromatosis called the bronze diabetes because it can turn your skin a bronze colour
and put me on metformin for diabetes and told this could be the reason for my feet feeling like they do
then told it could still be a nerve in my back so just seen a specialist for back whom has ruled out the back
so back to square one
and feet getting worse
so have to go back to doctors and ask for other options to deal with this
apart from weight and food lol
and dont know how long diabetes had actually been in my life as never tested for when blood's tested even though both conditions where present in my family
just know my feet feel swollen all the time even got some bigger shoe sizes to try stop that feeling
i am trying to see if i can find some special diabetic safety boots and trainers and shoes trainers and shoes not safety
because my footwear does affect my feet
and as we know we need to be careful with feet
sorry for long reply but had to explain best i could how it got diagnosed and treatment given or not given
if anybody knows where i can get the specialist footwear if anywhere please could you let me know
kind regards
steve p
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
You may find something suitable here. https://www.wideshoes.co.uk/products/wide-load-690bl-extra-wide-fitting-safety-work-boot-6e-fit
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
There is treatment for haemochromatosis - see https://britishlivertrust.org.uk/in...-condition/liver-conditions/haemochromatosis/ and to be honest I'm quite surprised this diagnosis has not led to your being referred to the Haematology Department at the nearest hospital.. The reason this surprises me is because one of the various blood tests my husband has had in the last 6 ish months where a Full Blood Count was one of the tests they did, revealed that he too has a higher proportion of red blood cells than the norm - the GP who ordered these tests had said he would ring him with the results thereof and did, saying when he did so that the only one which was anything other than completely normal was that one - and because he didn't know what if anything he should either do or advise Pete to do - he'd asked the haematology dept the answer - he might not get a reply today though so would ring Pete again when he did. In fact he rang back the same evening - answer was, nob all. Pete's firmly on the hospital computer system anyway and they've done all sorts of tests over the years as well as any the GP has so they said because it could quite easily be a one off unless something else caused the GP surgery to query if it was still OK, they were content to just leave it as is. So, they all have just shrugged their shoulders and moved on.
Also know someone, treated at one of the Leicester hospitals for this for years and years, who because of the same thing needs regular blood tests and sometimes needs blood removing. Bit like donating blood he says - takes longer to get there than it does to do the deed. I don't understand why you aren't on a regular schedule of repeat testing for this, even if it never gets bad enough to start removing blood.
Also know someone, treated at one of the Leicester hospitals for this for years and years, who because of the same thing needs regular blood tests and sometimes needs blood removing. Bit like donating blood he says - takes longer to get there than it does to do the deed. I don't understand why you aren't on a regular schedule of repeat testing for this, even if it never gets bad enough to start removing blood.
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
Yes I know someone with that diagnosis and he has regular 'blood letting' to manage the condition.
It can of course affect HbA1C results as with any haemoglobinopathies.
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