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VegetationStation

New Member
Relationship to Diabetes
Type 1
Hii, I'm Dilly and I'm new to the forums. I came on here because my mum suggested it and said I could meet some people.
I have no idea how to use this website but I'll probably get the hang of it at some point I suppose
I literally just turned 15 and I was diagnosed with Type 1 in February 2018 so 3 years ago. I was diagnosed really early. My urine was a really funky colour and I brought it up with my mum who is a nurse. She dipsticked it and it came back with 3 pluses of glucose.

Phoned local GP and the next day came in to be checked, my blood sugars were 8.3 on a fasting glucose. The only thing I can really rememebr after that is being in the children's ward in this big long corridor with animals painted on the walls. My mum was talking to a doctor I think in a room while I sat outside. It felt like they were in there for hours. After that I rmemeber sitting in a different hall with grey walls and a tan floor with vending machines and uncomfortable benches. A nurse came out and spoke to my mum but I was only really half listening. I didn't know what diabetes meant at the time and it was really late as we were there all day. My mum looked sad and she told me an extremely brief explanation and I just started crying.
I didnt start insulin until halloween the same year. Even then, I didn't have to give insulin in school, only at home. Before I started insulin I would go on walks to get my sugars down. I don't think my primary school really knew how to deal with it but that's okay because neither did we really. There were 3 p7 classes in my school and two of the teachers were diabetic and I was stuck with the one who wasn't diabetic?? That was a bit weird to me even at the time.

I remmeber my p7 teacher would make me run laps around the playground if my blood sugars were high because I told him exercise brings them down. Was rlly embarrassing ngl. I also had a freestyle libre in p7 and everyone called me a cyborg which which was kind of funny.

Starting high school was scary because it was the first time I'd acctually had to give injections when I wasn't at home. Every lunchtime I went to the canteen to see what was being served and then went into the nurses office to bolus.

Eventually got confident enough to give insulin in the canteen instead and started carrying around a bag with a -Type 1 diabetes- keychain on it. At some point this girl is the queue asked if I was diabetic because she saw the tag. she only knew about it because she followed diabetic twins on tiktok. That's how i met my best friend.

At the start of my third year in December I got a Medtronic 640G and were taught how to use it by the diabetic nurses over zoom because of covid. have been on it ever since.
Its still difficult sometimes and it sucks that nobody really understands. The "are you diabetic" girl is probably the only one apart from my mum who really gets it because she did a bunch of research. Sometimes I wish I had a diabetic friend who I could chat to about it all.

It is hard but you just have to carry on and keep being resilient.
Thankyou for reading 🙂)
 
Hii, I'm Dilly and I'm new to the forums. I came on here because my mum suggested it and said I could meet some people.
I have no idea how to use this website but I'll probably get the hang of it at some point I suppose
I literally just turned 15 and I was diagnosed with Type 1 in February 2018 so 3 years ago. I was diagnosed really early. My urine was a really funky colour and I brought it up with my mum who is a nurse. She dipsticked it and it came back with 3 pluses of glucose.

Phoned local GP and the next day came in to be checked, my blood sugars were 8.3 on a fasting glucose. The only thing I can really rememebr after that is being in the children's ward in this big long corridor with animals painted on the walls. My mum was talking to a doctor I think in a room while I sat outside. It felt like they were in there for hours. After that I rmemeber sitting in a different hall with grey walls and a tan floor with vending machines and uncomfortable benches. A nurse came out and spoke to my mum but I was only really half listening. I didn't know what diabetes meant at the time and it was really late as we were there all day. My mum looked sad and she told me an extremely brief explanation and I just started crying.
I didnt start insulin until halloween the same year. Even then, I didn't have to give insulin in school, only at home. Before I started insulin I would go on walks to get my sugars down. I don't think my primary school really knew how to deal with it but that's okay because neither did we really. There were 3 p7 classes in my school and two of the teachers were diabetic and I was stuck with the one who wasn't diabetic?? That was a bit weird to me even at the time.

I remmeber my p7 teacher would make me run laps around the playground if my blood sugars were high because I told him exercise brings them down. Was rlly embarrassing ngl. I also had a freestyle libre in p7 and everyone called me a cyborg which which was kind of funny.

Starting high school was scary because it was the first time I'd acctually had to give injections when I wasn't at home. Every lunchtime I went to the canteen to see what was being served and then went into the nurses office to bolus.

Eventually got confident enough to give insulin in the canteen instead and started carrying around a bag with a -Type 1 diabetes- keychain on it. At some point this girl is the queue asked if I was diabetic because she saw the tag. she only knew about it because she followed diabetic twins on tiktok. That's how i met my best friend.

At the start of my third year in December I got a Medtronic 640G and were taught how to use it by the diabetic nurses over zoom because of covid. have been on it ever since.
Its still difficult sometimes and it sucks that nobody really understands. The "are you diabetic" girl is probably the only one apart from my mum who really gets it because she did a bunch of research. Sometimes I wish I had a diabetic friend who I could chat to about it all.

It is hard but you just have to carry on and keep being resilient.
Thankyou for reading 🙂)
Well done for coming on the forum and giving such a comprehensive account of your diagnosis and where you are at now.
There was somebody posting regularly who was just a little older than you, but they haven't been here in a while, may be busy with exams I suppose but there are several parents of young people who regularly post so if you have any questions that would help you with your diabetes management then just ask.
Welcome anyway.
 
Hi Dilly and welcome from me too.

Just want to say that that is one of the best intro posts I have read and even more impressive that it came from a 15yr old young lady. I love that you gave us so much info about your journey so far. Isn't it interesting the odd details that you remember about events. I remember sitting outside the doctor's surgery in my car staring at the dead looking rose bushes (it was winter) and crying after they told me that I would need insulin. If I could go back to that me I would say, don't waste your tears because it really isn't so bad, but I was so disappointed at the time. It has just become an everyday part of my life now and other than being frustrating at times, it is manageable.

The forum provides a great opportunity to compare notes with other who have diabetes and in particular Type 1s who face the same or similar challenges in balancing their BG levels with glucose and can be incredibly helpful in making you feel less alone and more "normal" as well as providing an opportunity to increase your knowledge and pick up practical tips which can really improve your diabetes management.

Which insulin are you using in your pump? How do you like the pump compared to injections? Has it helped you manage things a little easier? I am still injecting and quite happy to remain so for now, but it is interesting to read about the technology other people use. Libre is a game changer though. I love it.

Anyway, just wanted to say "hello" and happy to have you here. We have one or two younger members as well as us old fogeys and some in between. Age is only a number and you can learn from anyone whatever their age, so I am not sure how relevant it is unless you want to chat about music when of course our older generation had by far the best music when we were young. 🙄 Hard to dispute that when we had the Beetles and Queen and Simon and Garfunkel (Google them if you don't know them).... Happy for you to try to convince me otherwise though. 😉

Look forward to hearing more from you soon.
 
Hi Dilly and welcome from me too!

I was diagnosed at age 12, and I can well remember how lonely it felt as I never knew any other diabetics throughout my school and college life. Was it rarer then? I really don't know, but it is certainly more talked about now so maybe there were others around but we never admitted it in public!

As #EmmaL76 has said you’ve got loads of friends here now, and we all T1’s certainly know where you’re coming from if you have any questions - just remember there is no such thing as a stupid question on here, we all have queries/worries from time to time and on here, we can all post to like minded people who will certainly try to help.
 
Hi @VegetationStation and a very warm welcome to the forum!

Loved your post! A really eloquent account of your experiences! I'm 22, so a little bit older than you, but can sympathise with some of your experiences at school (especially the stress of the canteen and visiting the nurses office to give bolus!).

Glad you found the forum and can't wait to hear more of your experiences!
 
And welcome to the forum from me too @VegetationStation

What a lovely story you wrote I was sorry when I reached the end, very interesting and absorbing.

You've come to the right place to make friends, even if they are only cyber ones who can give lots of advice and understanding when you need it.

Wishing you every good luck for your future and keep smiling.🙂
 
Hi everyone, thankyou all for your replies, I'm really touched. It's my birthday, had a great day and you all made it even better. Thanks for all the support. Currently finishing art work, might share with you later. Off to karate soon so can't chat for long but hopefully will talk soon. thanks again
 
Which insulin are you using in your pump? How do you like the pump compared to injections? Has it helped you manage things a little easier? I am still injecting and quite happy to remain so for now, but it is interesting to read about the technology other people use. Libre is a game changer though.

Look forward to hearing more from you soon.
Hi, thanks for your lovely message, I used novorapid when injecting and in the pump. Its definitely made things a lot easier, though I was really hesitant to start using it at first. I only inject if my sugars are really high and won't come down but that doesn't happen often. When I look back I dont know how I injected 5 times a day. Or even finger pricked for that matter. I didn't really have many issues with injecting but there was always the worry that my injection sites would get all filled with insulin (I forgot the medical term). Libre definately is a game changer. Thankyou again, hope your day was alright xx
 
Hi everyone, thankyou all for your replies, I'm really touched. It's my birthday, had a great day and you all made it even better. Thanks for all the support. Currently finishing art work, might share with you later. Off to karate soon so can't chat for long but hopefully will talk soon. thanks again
Oh! Happy Birthday! Good to hear you have had a lovely day and hope you have a special treat planned for after Karate.
I'm sure we would all love to see your artwork when you have time to post it. Have a great evening.
 
Welcome to the forum @VegetationStation

There’s quite a thriving T1 community on instagram which has been running for years. I’d guess Tiktok and Snapchat too, but I never really got going with those.

Happy birthday!

1666031708582.jpeg

Sounds like you’ve made a great start with your diabetes self-management. Well done! Hope you find the forum helpful - we have literally centuries of lived diabetes experience between us, so ask away with any questions as they crop up. 🙂
 
Hi Dilly
What a lovely introduction! My daughter is 16 now and at sixth form college, she was diagnosed at 6 so can’t really remember not having diabetes. She doesn’t let it bother her much although I’m sure she has days when she wishes she could just sit down and eat like all her friends do without doing sums and having to mess about with her pump! She is lucky with friends, they have usually been very understanding, I think maybe primary school was harder but since she transferred to secondary and then college, she has had some fab friends who take it all on board. I don’t think she’s got any type 1 friends, but did have one with a life-threatening nut allergy and seems to bond with anyone who has any sort of long term medical condition, they can share stories and commiserate with each other even if it’s not the same situation. And she did spend quite a lot of time in the medical room at school getting to know a few other diabetics and people with other problems, although they were mostly from different year groups so didn’t become close friends. At primary school she could hardly bear to talk about it though so that’s a distinct improvement.

My daughter did sign up to this forum a few years ago and posted a few messages, she hasn’t been on it for ages though so I doubt she can remember her login. But I’ll ask her if she’d like to get in touch with you as you are nearly the same age 🙂
 
Hi @VegetationStation and welcome to these forums! I loved reading your story and can understand how you felt at diagnosis. I was diagnosed at age 42 and it was confusing and unsettling then, so I can only imagine how much harder it would be at your age. Giving yourself insulin at school and standing out from the crowd is tough, especially when you’re young.

There are loads of really friendly people on here who will get exactly how you feel and what you are going though. It sounds like you have the right attitude and strength to deal with T1. Oh, and belated Happy Birthday for last Monday!
 
Hii, I'm Dilly and I'm new to the forums. I came on here because my mum suggested it and said I could meet some people.
I have no idea how to use this website but I'll probably get the hang of it at some point I suppose
I literally just turned 15 and I was diagnosed with Type 1 in February 2018 so 3 years ago. I was diagnosed really early. My urine was a really funky colour and I brought it up with my mum who is a nurse. She dipsticked it and it came back with 3 pluses of glucose.

Phoned local GP and the next day came in to be checked, my blood sugars were 8.3 on a fasting glucose. The only thing I can really rememebr after that is being in the children's ward in this big long corridor with animals painted on the walls. My mum was talking to a doctor I think in a room while I sat outside. It felt like they were in there for hours. After that I rmemeber sitting in a different hall with grey walls and a tan floor with vending machines and uncomfortable benches. A nurse came out and spoke to my mum but I was only really half listening. I didn't know what diabetes meant at the time and it was really late as we were there all day. My mum looked sad and she told me an extremely brief explanation and I just started crying.
I didnt start insulin until halloween the same year. Even then, I didn't have to give insulin in school, only at home. Before I started insulin I would go on walks to get my sugars down. I don't think my primary school really knew how to deal with it but that's okay because neither did we really. There were 3 p7 classes in my school and two of the teachers were diabetic and I was stuck with the one who wasn't diabetic?? That was a bit weird to me even at the time.

I remmeber my p7 teacher would make me run laps around the playground if my blood sugars were high because I told him exercise brings them down. Was rlly embarrassing ngl. I also had a freestyle libre in p7 and everyone called me a cyborg which which was kind of funny.

Starting high school was scary because it was the first time I'd acctually had to give injections when I wasn't at home. Every lunchtime I went to the canteen to see what was being served and then went into the nurses office to bolus.

Eventually got confident enough to give insulin in the canteen instead and started carrying around a bag with a -Type 1 diabetes- keychain on it. At some point this girl is the queue asked if I was diabetic because she saw the tag. she only knew about it because she followed diabetic twins on tiktok. That's how i met my best friend.

At the start of my third year in December I got a Medtronic 640G and were taught how to use it by the diabetic nurses over zoom because of covid. have been on it ever since.
Its still difficult sometimes and it sucks that nobody really understands. The "are you diabetic" girl is probably the only one apart from my mum who really gets it because she did a bunch of research. Sometimes I wish I had a diabetic friend who I could chat to about it all.

It is hard but you just have to carry on and keep being resilient.
Thankyou for reading 🙂)
Hi dilly, great account, I've been T1 since 1974 and I relate to the diagnosis I was kept in hospital for over a month and being very young had no idea, the treatments and diagnosis have got better and you seem like your dealing with it great, and now you have a massive group of T1 friends for any questions or queries, when I was diagnosed computers were not even invented lol and the phone was attached by wires in the hallway of the house lol, stay positive it's getting better
 
Hi dilly, great account, I've been T1 since 1974 and I when I was diagnosed computers were not even invented lol and the phone was attached by wires in the hallway of the house lol, stay positive it's getting better
Come off it! - moon landings started in 1969 and shedloads of firms owned IBM (eg) mainframes by then eg insurance companies for automating renewal invitation and accounting processes.

I'll give you the phone in the hall, though ours was in the lounge/diner, ie the only room we kept heated! Trimphone and 3 jackpoints round the house and garage so we could answer it wherever, or move it to wherever we happened to be.

What we didn't have apart from mobile phones back then, was HOME computers - or of course the internet cos TBL wasn't even at CERN until later in the 80s.
 
Well yeah, computers one side of the world could communicate with computers the other side of it - but not much help to your average housewife!
 
Well yeah, computers one side of the world could communicate with computers the other side of it - but not much help to your average housewife!
It was of more limited use, but email was still useful. And usenet. Things like gopher less so (IMHO).
 
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