New here - but not new to diabetes :/

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Catherine-louise

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Relationship to Diabetes
Type 1
Hello Everyone!

Just signed up! I've had diabetes for since the day before my 13th birthday and I'm now almost 21 (wow, I've just realised how scarily fast time flies by!! 😱 ) Anyway, my Dr finally persuaded me to go onto a pump around 14 month ago after I had a terrifying hypo in which I turned very violent and was completely out of it. I'd say the pump was definitely a wise choice and I'm so glad I went on it, but I'm still really struggling to find a balance with my diabetes. The scary thing is that I often here fellow diabetics talk about 15/16 mmol being 'scary, scary high...' whereas i'd consider my 'scary, scary high' to be much higher than that - in the 20s maybe. Coupled with my diabetes I recently started suffering panic attacks whilst out and about - mainly my worries (at the moment) are centred around the fear of going hypo and being unable to help myself. Naturally, because of this, I've been giving less and less insulin which has resulted in me going even higher! I've also just started a new job, which is proving to be a bit of a nightmare! An hour or so into my shift, I'm hitting 17mmol, then giving 2 units to bring myself down and coming wayyyy, wayyy down, so I'm panicking and throwing Lucozade down my neck only to find myself again reaching highs of 17!

At this point, I might mention of my absolute fears of complications. I sometimes work myself into such a state at the thought of what damage might be happening to my body. It's frustrating, as I'm sure you all well know.

My Drs are trying to get me to attend a DAFNE course, but unfortunately, what with these panic attacks, it's not looking like an option for me at the moment. My Mum suggested popping onto a forum site to see if anyone could offer me any support or advice and at first I shrugged off the idea, but somehow I ended up here! 😛

Looking forward to hearing from lots of you! 🙂
I suppose we're all in the same boat, anyone got a paddle?? 😛 xx
 
Hello Catherine - Louise,

I myself have newly inducted into the world of pumping. Down where I am it also involves rolling up your trouser leg and dodgy handshakes! I jest. I do love my pump as it's given me one hell of alot better control.

I would most definitely reccomend a going on the DAFNE course as what you will learn on it will be invaluable. I did one over last summer and well, I wouldn't be where I am today without having done that. It allowed me to get such a level of control which I had thought impossible on MDI. That all went out the window when I went to university a few months later!

Welcome to the madhouse, I'm sure you'll be able to take something useful out of this place. I most definitely have.

Tom
 
Welcome to the forum Catherine-Louise. I'm not on insulin at the moment and so cannot offer advice on that.

Despite that, I'd echo Tom's advice. Good knowledge about how to control diabetes is half the battle. But if you can't overcome the panic attacks to attend the course, then I hope that you can get the advice that you need here instead.

One thing that springs to mind though. You really shouldn't have a panic attack when on the DAFNE course. There are plenty of diabetics about who would know precisely what to do whilst you're there. 🙂 But, I suppose the issue might be getting there, is there someone who could go with you?

Best wishes,

Andy
 
welcome catherine-louise you will get lots of support here x🙂
 
Hi Catherine-Louise, welcome to the forum 🙂 Do please try and attend the DAFNE course. It's not so much for what they will teach you, but you will be amongst fellow diabetics where you can feel completely at ease - as Andy says, you couldn't be in safer hands! I think a lot of people in your age group have problems with swinging levels, so please let us know if we can help in any way - no question is silly, and you're not expected to know it all! Getting a better balance between your fears and your levels will help you enormously - those highs are really messing with your emotions.

Keep posting - we will look forward to hearing from you! 🙂
 
Hi Catherine-Louise, and welcome to the forum!

I'd echo what everyone else has said, in that so many people find DAFNE really useful.

Where are you based? We have members who are involved with 18-30's local fun social and support groups, so might be able to point you to one! 🙂
 
Hi

Welcome to the forum😉. I'm 22 and have been diabetic for 2 years now x
 
Hi Catherine-Louise, welcome to the forum! I'm Shiv, I'm 22 and I've been type 1 for 19 years. This forum is awesome in terms of the support and the people. I'd be happy to chat, drop me a PM and we can exchange details if you'd like! 🙂
 
Hi Catherine-Louise, welcome to the forum.
 
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