New here but Long term Diabetic!

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deaf-fishie

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Relationship to Diabetes
Type 1
Hi I'm Vicky, I'm 27 and I've been a type 1 diabetic for about 16 years.

So a little bit of background (this could get quiet long, we'll see how it goes, stop me if you fall asleep! 😛 )

I was diagnosed at 11 years old but sadly I didn't get the right treatment, my father was diabetic and very old school, despite numpours doctors and specialists telling him otherwise he decided I did not need insulin and could control my diabetes by diet alone.

I won't go into what that was like, I'm sure you can imagine.

At 18 I made my own choice and started on an insulin regime and felt alot better bu8t started to put on weight, byt the time I went to university I was a size 20 and unhappy, my dad blamed the insulin, so I stopped taking it....

Fast forward two years in which I was very ill and often had to miss lectures because I just couldn't get out of bed. a week after my 21st birthday I was in alot of pain with my kidney's, went to the doctor and was sent away with pain killers. The next day my partner came home and couldn't wake me, he called an ambulance.

I can't begin to imagine how difficult that was for my family, being told that I probably would never wake up or if I did they didn't know if I'd be brain damaged because of the oxygen deprivation...

2 months later I woke up in ICU, I couldn;t speak, I's lost alot of my vision and my hearing, my legs had wasted so I couldn't walk and could only sit for short periods...but I was alive...

After 6 long months in hospital I was allowed home. It took a long time to begin to lead a npormal life, but a year later I moved into a sheltered community, I refuded to move back in with my partner until I could look after myslef, he was my boyfriend not my carer.

It's almost 6 years since the day I left hospital, I'm profoundly deaf (hearing aids in both ears), I have mobility problems thanks to retinopathy in my legs and have only got sight in one eye (Macular odema) but surprisingly am happier than I've ver been!

I've been living with my partner (who stuck with me through it all!) and my blood sugars are under control. I'm still a size 18 but I'm working on it!

I never want to go back to where I was and some days that still seems possible so I'm joining this forum to help keep me on track and hopefully make a few friends too! 🙂

I'm done now, you can stop snoring! 🙂
 
Vicky I am far from snoring after reading all that im in orr it sounds like you have had one amazingly tough time of it and for you to come out of all that sounding so positive is utter brillaint so dont do yourself out of anything you sound like one hell of a young woman who has a partner who is pure gold. Your story is very sad but also very inspiring I hope you stick around you will make some great freinds on here xx

Oh yeah welcome to the forum have a good look around and ask anything anytime x

what insulin regime are you on?
 
Hi Vicki, welcome to the forum 🙂 Very sorry to hear about all that you have been through and the legacy it has left you. It is good to hear you sounding so positive in spite of all that has gone before, and I hope that we can be some help in keeping that positivity and motivation 🙂

What insulin regime are you on now? I'm guessing that your father is a Type 2 if he thought you could do without insulin?

Hope you enjoy using the forum, I will look forward to hearing more from you 🙂
 
Hi Vicky

Welcome to the forum. Shees, you have had a very tough life, sorry to hear about your problems which were probably brought about because of the lack of care in those early years. You will find this forum very helpfull, the people here are so friendly and always ready to support others wether old or new members, so any questions don't be afraid to ask.

PS I wasn't snoring, its my cough :D

John.
 
Welcome to the forum Vicky 🙂
 
Hey everyone *waves* and thanks for the warm welcome, also I apologise for the numbr of typo's in that first post!

Northerner - Yes my father was a type 2, so in his mind I had to be the same, I just wasn't trying hard enough. *shrugs*
 
Hi Vicky and welcome to the forum.

You've certainly had quite a time of it - and it must have been sacry when you were in hospital. I imagine your Dad was suffering a lot of guilt at that time re his comments on insulin. I hope that he and you have managed to deal with that and put it behind you.

It's good to hear that you are happier than you have ever been. I wish you well in your weight loss.

You could take a look at the weight loss group - you might find some useful tips there.

http://www.diabetessupport.co.uk/boards/forumdisplay.php?f=22
 
Welcome deaf-fishie.

Do you sign? If so, how do you sign fishie? A hand wiggle?

As others have said, weight loss group has lots of help.

Exercise / Sport section also has lots of suggestions - although I don't think that waterproofing hearing aids has been mentioned. I remember that being an issue for a young deaf lad who came canoeing on a try sport day in a swimming pool with members of my canoe club. With an instructor standing in front of him, he could lip read / watch actions and was soon paddling well - getting him to stop at the end of the session was the challenge!
 
Hi DF and welcome aboard.

You are with people who can understand and support with diabetes. Your story really moved me and am so pleased you have joined the board.

Really looking forward to reading more from you as and when hun and yea pop in and see us on the weight loss group, you will be welcome

Stick with it, you are a fighter!
:D
 
Hi Vicky, warm welcome to the forum. Hope you like it here, and settle in.🙂
 
Hi Vicky, welcome to the forum🙂

I'm sure you'll receive lots of support - good luck with everything.
 
Welcome to the forum 🙂

Glad you came through all of that and are feeling much more positive about your D xx
 
Hi Vicky,

I too am a recent joiner, finding the emotional support very helpful between consultant visits, glad to hear insulin is working for you now. Good luck with everything!! Laura xx
 
Hello again everyone!

Sorry forposting then vanishing, lost my internet for a while, but back now!

Ermmm trying to remember who asked what! Lol!

Insulin-wise I'm currently taking Novomix, I'm in discussions with my GP about MDI but since I'm stable (and given my history!) he's not overly keen to change it!

Who asked about signing? I do sign a little (not really enough to converse but enough to ask basic questions etc. I keep trying to learn morebut my hand eye co-ordinatinon sucks, and I can barely get the hang of English grammar so BSL grammar just boggles me!

I'm off to check out the Diet/fitness thread now... 🙂
 
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