new here and overwhelmed with info

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Overheat

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Relationship to Diabetes
Type 1
Hi there,

I don't have a formal diagnosis of type 1 diabetes yet and waiting on blood results, it will be at least another 5 weeks I think. I'm trying to take all this information in about type 1, i am taking insulin - Lantus (now 36units) at night and Novo rapid 3x a day with meals - 8,8 and 10 units.

(I'm also on tinzaparin which is a blood thinner as I have a clotting disorder) so i have to take 5 injections a day now atm.

I'm finding it all a bit much but I am coping, I currently live in a nursing home, but I am moving soon to independent living which I am looking forward to.

thanks for listening
 
Hello, and welcome to the forum.
It is a very difficult and confusing time when you are first diagnosed and it's good to know that you are managing to cope with it all, and getting prepared for independent living.
There is a lot of experience and knowledge on the forum, so please ask if you want to know more about anything.
Please keep in touch and let us know how it all goes.
 
Welcome to the forum Overheat.
 
Welcome to the forum @Overheat

Sorry to hear about the difficult time you are having. Hopefully you will begin to feel much more yourself after a short while on insulin. Did you lose much weight before your diagnosis? And were you very tired? Both are quite common (along with a raging thirst and needing to pee a lot more)...

If your eyesight has changed prior to diagnosis, this will also usually resolve as your blood glucose begins to return to more normal levels.

Have you been given much advice about food - in particular carbohydrates - and in matching what you are eating to your insulin doses? As you are taking the same doses each day you will need to find the approximate amount of carbohydrate (not 100% accurate, but rounded up or down to the nearest 10g of total carbs) that matches with your insulin dose(s). Otherwise you might unwittingly get yourself into a bit of bother by eating far more carbohydrate than your dose can 'process' one time... or even more challenging... far less than your dose for a meal needs, in which case as the insulin continues to work your BG levels could drop you into a hypo.

Just keep checking your BGs with the meter you’ve been given. Keep asking for help from your diabetes team, and ask any qiestins as the arise here too. We aren't medically qualified, but we can offer our own 'lived experience' of managing diabetes.
 
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I just want to cry i have not seen a dietian, my eye sight seems to come and go especially with consistent high bg.

I dont understand the numbers in terms of carbs and sugars and amounts i should have etc. Its so tiring trying to figuring it out but it is all new to me so its going to take some time. Im seeing the specialist on thursday for half hour-she said she has alot of stuff to do with the diabetes and my health. As you say things she start to go back ro normal with the reigime im on. Something bolus regime. Thanks for your help its given me a few things to think about.
 
Hello and welcome to the forum. 🙂
 
I just want to cry i have not seen a dietian, my eye sight seems to come and go especially with consistent high bg.

I dont understand the numbers in terms of carbs and sugars and amounts i should have etc. Its so tiring trying to figuring it out but it is all new to me so its going to take some time. Im seeing the specialist on thursday for half hour-she said she has alot of stuff to do with the diabetes and my health. As you say things she start to go back ro normal with the reigime im on. Something bolus regime. Thanks for your help its given me a few things to think about.

Ah sorry to hear you are feeling so overwhelmed @Overheat. But try to relax... you have got insulin going in and so the basics are being covered. The rest is all just massaging the numbers and trying to keep within the recommended range of 4-10 (usually, though your Dr will advise a suggested range for you personally) for as much of the time as you can manage.

It will be basal:bolus that they said for your insulin regimen.

Basal being the long acting or ‘background’ insulin which deals with the glucose that is continually trickled out by the liver throughout the day to keep the body ticking over. These insulins gradually start working over an hour and last for 16-24 hours or more.

Bolus (literally ‘ball’ or ‘lump of food’) is the dose you take when eating a meal or snack with carbohydrate in it. These insulin’s start acting quickly and their action lasts about 4-6 hours.

There is a lot to of information to process at the beginning, and you are right it really can feel overwhelming at times, but take things slowly, ask lots of questions, and before long it will all become second nature.

You might find it helps make sense of things to keep a food diary along with a note of your BG readings before eating. If your meals are about 4 hours apart you can use that information to see how well the dose has been able to manage the food that you ate, and can then adjust the amount of carbs in different meals up or down. The numbers themselves are less important at this stage than the consistency (or otherwise) of the pre-meal readings. If your before-breakfast reading is within 2mmol/L of your before-lunch reading (whatever those numbers are) then your dose has dealt well with the food. If the lunch reading is much higher, then it’s likely that you ate slightly too many carbs at breakfast. If the lunch reading is much lower then you probably didn’t have quite enough carbs for the units of insulin.

I’m not sure if that helps, or just adds to your confusion and brain fog?
 
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