New diagnosis

[KLF88]

Hello everyone, I’m Kes

So it’s been a bit of a journey already to be honest. In 2017 I was told I was type 2 but remained so unwell with different symptoms that I kept going back to the GP and being told that I needed to have better control, change my diet and sort my weight out.

I moved to another county in January 2019 and registered with a new GP and they weren’t happy with my symptoms - constant infections and losing a lot of weight without doing anything amongst others. I was diagnosed with LADA in July following blood tests.

Whilst I’m glad that I’m getting support which is great and being listened to- can’t fault it at all they’re brilliant - I’m really struggling emotionally and just feel totally overwhelmed. I just don’t know what to do with myself or where to start with dealing with the emotional side of things as I’m feeling like I don’t know what to feel and just keep crying over the smallest things that might not even be related. It’s so bizarre....really mixed emotions.

 

[rebrascora]

Hi Kes and welcome

That maelstrom of emotions is common with this condition, partly because BG levels have an influence on the brain/mood and partly because it involves quite a big change of lifestyle. It is good that you now have a proper diagnosis and hopefully the support and medication to move forward? Are you on insulin yet? Do you have any oral meds? It would help to know your most recent HbA1c reading so that we have an idea of where you are with your BG control.
I was initially diagnosed as Type 2 but lack of response to oral meds and low carb diet lead to me being started on insulin (which provoked a few tears) and further testing which confirmed I am type 1. I still follow a low carb high, fat diet which helps to control my BG, limit the amount of insulin I need and also enjoy what I eat which is important with this condition. We have to restrict so many foods that it is important to find things we can eat and enjoy without needing to jab ourselves or feel guilty about it. This forum is a wonderful place to share ideas with others who understand this condition, get advice when we can't think straight and have a good rant when it all gets a bit much for us. Feel free to utilise it on all those levels. You will get replies from people who "get" where you are at and can reassure you that things will get better.

 

[KLF88]

It is good that you now have a proper diagnosis and hopefully the support and medication to move forward? Are you on insulin yet? Do you have any oral meds? It would help to know your most recent HbA1c reading so that we have an idea of where you are with your BG control

Thanks for your reply

The support from the surgery is really good both Drs and diabetic nurse support.

I was started on insulin (humalog mix 25) in July but this is going to change next week as a result of the blood tests coming back and diagnosis being changed.

In terms of oral meds metformin and sitagliptin is what I have been taking.

I’m having a HbA1c on Tuesday

 

[rebrascora]

Great to hear that your health care professionals are so supportive. Will be interested to hear what insulin(s) they change you to and whether they keep you on Metformin. Fingers crossed your new HbA1c is a good result or at least an improvement on your initial diagnosis. I went from 112 to 114 after 5 weeks of very strict diet and meds which was a big kick in the teeth for all my hard work but I now look back and realise there was nothing I could have done to improve that. The positive thing is that my diet is hugely improved from before my diagnosis and I have lost a stone and a half and I no longer suffer migraines, even when I drink red wine which was a trigger and everyone says how fantastic I look.... and my partner's pet name for me now is "slim", so there are many positives to this diabetes diagnosis.

 

[KLF88]

Great to hear that your health care professionals are so supportive. Will be interested to hear what insulin(s) they change you to and whether they keep you on Metformin. Fingers crossed your new HbA1c is a good result or at least an improvement on your initial diagnosis. I went from 112 to 114 after 5 weeks of very strict diet and meds which was a big kick in the teeth for all my hard work but I now look back and realise there was nothing I could have done to improve that. The positive thing is that my diet is hugely improved from before my diagnosis and I have lost a stone and a half and I no longer suffer migraines, even when I drink red wine which was a trigger and everyone says how fantastic I look.... and my partner's pet name for me now is "slim", so there are many positives to this diabetes diagnosis.

I will find out what my last result was all I remember is that it was over 100 so I’m hoping it will be less.

Sounds like you’re having a positive experience that’s really good to hear

 

[rebrascora]

Don't be fooled that it is all sunshine and smooth sailing..... I have bad spells too (I think we all do) and I have been frustrated to the point of tears more than once as it has been a real rollercoaster but it helps to focus on the positives and there certainly are some if you look hard enough! Good luck with your new HbA1c and new insulin regime.... I am guessing they will give you a basal and bolus system of background insulin with a fast acting one to take before food so that you can tailor your insulin to suit your dietary needs. Let us know how you get on and feel free to have a rant anytime..... we all understand the need to let off steam sometimes.

 

[SB2015]

Thanks for your reply

The support from the surgery is really good both Drs and diabetic nurse support.

I was started on insulin (humalog mix 25) in July but this is going to change next week as a result of the blood tests coming back and diagnosis being changed.

In terms of oral meds metformin and sitagliptin is what I have been taking.

I’m having a HbA1c on Tuesday

Welcome to the forum @KLF88
Having got the correct diagnosis now it will be most useful if they can switch you to Multiple Daily Injections (MDI) with separate background (basal) Insulin, which deals with the glucose released by your liver to keep you ticking over in the background. Then another Bolus Insulin that you will learn to match to what you want to eat. This is a lot more flexible than using a mixed insulin, with which you will have to eat to match the injections. With NDI you will be able to choose when to eat and how much or how little. Let us know what they choose for you.

 

[KLF88]

Welcome to the forum @KLF88
Having got the correct diagnosis now it will be most useful if they can switch you to Multiple Daily Injections (MDI) with separate background (basal) Insulin, which deals with the glucose released by your liver to keep you ticking over in the background. Then another Bolus Insulin that you will learn to match to what you want to eat. This is a lot more flexible than using a mixed insulin, with which you will have to eat to match the injections. With NDI you will be able to choose when to eat and how much or how little. Let us know what they choose for you.

Thanks for your reply. I will it’s changing on Tuesday so I’ll be sure to update 🙂

 

[louloulou]

Thanks for your reply. I will it’s changing on Tuesday so I’ll be sure to update 🙂

Welcome Hope you doing ok Lou

 

[SB2015]

Thanks for your reply. I will it’s changing on Tuesday so I’ll be sure to update 🙂

How are you getting on with the Mutiple Daily Injections.

 

[KLF88]

Hi everyone I’ve had my insulin changed over now to humalog 3 times a day before each meal and abasaglar before bed.

I’m finding the injecting ok I’m not bruising as much as I was which has to be a positive