New diagnosis with my 3 year old daughter

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Lynch

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Hello all!
As a family our daughter was diagnosed with type1 diabetes on the 22nd of may.
She is very young and therefore the care is done by me and my partner and this is all very very new to us as we have had zero experience with diabetes before (nothing in the family no friends etc)
We are hoping they may be other families in the area we live (Hampshire) that we could maybe meet or chat too in a similar situation? Be great to hear from anybody.

Many thanks
 
Welcome @Lynch 🙂 Sorry to hear about your daughter’s Type 1 diagnosis. It must be hard when they’re too young to really understand. It’s a big learning experience. Does she have a pump or is she on injections?
 
Hello! @Inka many thanks for your reply.
She’s on injections currently before every meal and then corrections as we are struggling to keep her levels low etc.
it’s all very overwhelming and I live in hope that one day soon we can try and have a day that goes to plan but at the moment it just doesn’t.
I have given up employment as she needs care 24/7 so I’m also feeling a little lost.

We are going to talk about pumps at our next clinic in August. Does this make life a little easier?
 
I think pumps do make things easier with young children. I know two young children with Type 1 and both have pumps. They are between the ages of 2 and 5yrs. It’s easier to give more precise boluses and corrections, eg a bolus of 2.3 units or a correction of 0.25 units. You can get basal closer to what a pancreas would do, and you can put a temporary basal rate on, eg for exercise or illness.
 
Lynch said:
Hello all!
As a family our daughter was diagnosed with type1 diabetes on the 22nd of may.
She is very young and therefore the care is done by me and my partner and this is all very very new to us as we have had zero experience with diabetes before (nothing in the family no friends etc)
We are hoping they may be other families in the area we live (Hampshire) that we could maybe meet or chat too in a similar situation? Be great to hear from anybody.

Many thanks
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We’ve just come back from the New Forest on holiday. Our daughter is 6 and was diagnosed two and a half years ago. One of the locals noticed her CGM (she had the same one) and went on to tell us Hampshire is the best place she has known for Diabetes care. Not much help I know, but it does get easier.
 
It’s still really early days and I promise you it does get easier.

My kid was 8 when diagnosed and is now 14. He was on injections for the first few years but is now on a pump.

We found when he was younger that keeping to around 60g of carbs a meal meant we had more chance of getting the insulin about right. If he had lots of carbs there was more chance of the insulin not being right. If you’re doing 3 meals and 3 snacks (mid morning, mid afternoon, before bed) a day then I wouldn’t correct for highs outside of that just deal with it when she has food. Obviously treat lows as they happen.

The benefits of a pump for smaller kids is that you can split the basal into tiny increments but tailor it to when she’s most active. You’ll always need injections as back up though so being confident with that first is good.

I promise it will get easier. The first few months are such hard work as you deal with learning so much and coping with your worries.

We’re here for practical questions but also for your worries and gripes.
 
Hello @Lynch and welcome to the forum!

I'm sorry to heat about your daughter, I can only imagine how difficult navigating all of that as a parent is. However as with anything new - it takes time and learning. It will feel overwhelming at first, but you have your child's best intentions at heart and that's all that matters, so as other users have said - any questions, worries or anything at all - post them and share if you feel comfortable to do so. There's a lot of support and gathered knowledge in this forum and everyone's eager to help. I'm not sure if you've seen it, but we have a guide for parents with T1 kids and there's lots of experience here on the forum, shared by parents in the appropriate section, so do have a wander about.
 
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