Hi, just wondering if anyone has any advice please. My husband is 58 has type 2 diabetes diagnosed 3 years ago. Upto a year ago was on 500mg metformin and all well. Then blood sugar was rising so doubled to 1000mg but still rising so on Jardiance too. He was constantly peeing and losing weight so they stopped Jardiance this week. Blood sugar is 69 the GP referred to rapid diagnostic team for investigations we are obviously so worried about this. We just don't know what it all means gp says he wants him seeing urgently. Anyone had similar experience sorry for long post. He does eat carbs etc never had a diet plan I just cook health but surely it's had sn effect? Thanks
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New and so worried
- Thread starter Holmesy
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Ljc
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- Type 1.5 LADA
Hi @Holmesy . Welcome to the forum.
Firstly please try not to panic ok.
It seems to me your Gp is on the ball.
T2 is not always a straight forward condition, in my non medical opinion it’s more of a range of conditions, don’t worry about this.
Their is also a type that initially mimics T2 but it only shows it’s true colours weeks, months or as in my case years later.
This is why I said earlier your Gp seems to be on the ball.
The specialists your husband will be seeing are the real experts in all the various types of diabetes.
It may just be that your husband needs a change in medications.
What changes has your husband made to his diet.
Firstly please try not to panic ok.
It seems to me your Gp is on the ball.
T2 is not always a straight forward condition, in my non medical opinion it’s more of a range of conditions, don’t worry about this.
Their is also a type that initially mimics T2 but it only shows it’s true colours weeks, months or as in my case years later.
This is why I said earlier your Gp seems to be on the ball.
The specialists your husband will be seeing are the real experts in all the various types of diabetes.
It may just be that your husband needs a change in medications.
What changes has your husband made to his diet.
Leadinglights
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- She/Her
One of the suggestions for medication not working ie blood glucose high and losing weight would be a possibility of Type 1 diabetes or LADA . However if his diet has too many carbohydrates for the body to cope with even with the medication then that might muddy the waters on what Type he might be. Sometimes what is regarded as 'healthy' diet is not so for somebody diabetic where reduction in carbohydrates is the key to blood glucose control.
What would help is to make a food diary of everything he eats and drinks so you have some evidence of his diet. If you are willing to share that on here then people could suggest where some of the issues might be.
It is good that you have a referral hopefully quickly but I may be worth suggesting the possibility of Type 1 as many doctors don't consider that in a more mature person.
What would help is to make a food diary of everything he eats and drinks so you have some evidence of his diet. If you are willing to share that on here then people could suggest where some of the issues might be.
It is good that you have a referral hopefully quickly but I may be worth suggesting the possibility of Type 1 as many doctors don't consider that in a more mature person.
Hi Holmesy, welcome to the forum.
As mentioned, it does sound like there may be a diagnosis issue so it’s worth keeping your finger on the appointments and making sure they’re double checking his diagnosis based on his current symptoms.
Eating healthy is a great start however one thing I’ve found is that what we think is healthy may not be healthy in relation to blood sugar levels.
it’s best to use a glucose meter and test upon waking and two hours after each meal so you can see the impact they’re having on him.
As mentioned, it does sound like there may be a diagnosis issue so it’s worth keeping your finger on the appointments and making sure they’re double checking his diagnosis based on his current symptoms.
Eating healthy is a great start however one thing I’ve found is that what we think is healthy may not be healthy in relation to blood sugar levels.
it’s best to use a glucose meter and test upon waking and two hours after each meal so you can see the impact they’re having on him.
TheClockworkDodo
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- Relationship to Diabetes
- Type 1
If your husband is losing weight without trying, it does sound as though he may have been misdiagnosed and is really LADA - that's basically the same as type 1, it's just that type 1 usually starts very rapidly but LADA starts gradually.
It sounds as though your GP is on the ball, as Lin said, so hopefully the investigations your husband has been referred for will include tests for type 1. If not, then it is worth his asking (or politely insisting!) that he be tested for this - as @Leadinglights says, a lot of GPs think only children get type 1, whereas actually quite a high percentage of people diagnosed with type 1 are over 21 (I was 44). The tests he would need are a GAD antibody test and ideally a C-Peptide test.
In the meanwhile it is worth his trying to cut out some carbs, because whichever type of diabetes he has this is going to help (in the long term if he has type 1 he will be able to eat some carbs, with insulin to balance them out, but without insulin a lot of carbs will make him very ill - if he does have type 2 then he'll need to cut down on carbs anyway). Don't forget carbs include starchy foods like pasta, rice, bread, and cereals as well as sugary foods - and also fruit - a lot of people think eating lots of fruit is healthy, but it's not if you're diabetic.
Please try not to worry about the possibility of his having type 1, because it is very easy to treat and if that is what he has he will feel a whole lot better once he's on insulin! But do keep an eye on him and if he starts feeling (or being) sick, having stomach pains, and/or his breath starts smelling of pear drops, take him straight to A&E, because those are signs of Diabetic Ketoacidosis (DKA) and that is an absolute emergency.
It sounds as though your GP is on the ball, as Lin said, so hopefully the investigations your husband has been referred for will include tests for type 1. If not, then it is worth his asking (or politely insisting!) that he be tested for this - as @Leadinglights says, a lot of GPs think only children get type 1, whereas actually quite a high percentage of people diagnosed with type 1 are over 21 (I was 44). The tests he would need are a GAD antibody test and ideally a C-Peptide test.
In the meanwhile it is worth his trying to cut out some carbs, because whichever type of diabetes he has this is going to help (in the long term if he has type 1 he will be able to eat some carbs, with insulin to balance them out, but without insulin a lot of carbs will make him very ill - if he does have type 2 then he'll need to cut down on carbs anyway). Don't forget carbs include starchy foods like pasta, rice, bread, and cereals as well as sugary foods - and also fruit - a lot of people think eating lots of fruit is healthy, but it's not if you're diabetic.
Please try not to worry about the possibility of his having type 1, because it is very easy to treat and if that is what he has he will feel a whole lot better once he's on insulin! But do keep an eye on him and if he starts feeling (or being) sick, having stomach pains, and/or his breath starts smelling of pear drops, take him straight to A&E, because those are signs of Diabetic Ketoacidosis (DKA) and that is an absolute emergency.
TheClockworkDodo
Well-Known Member
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- Type 1
I should have said, to set your mind at rest about the DKA, it might be a good idea to get a box of Ketostix from your pharmacy so your husband can test for Ketones - it's an easy urine test (he just has to wee on a stick and follow the instructions on the box) and I don't think Ketostix are very expensive, so worth it for peace of mind. If he has anything other than trace Ketones in his urine then he needs to go to A&E.
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- Type 1
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Pumper_Sue
Well-Known Member
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- Type 1
Hello and welcome to the forum.
It sounds as if you have a fantastic GP as others have said 🙂 GP is doing urgent referral for type1 testing, which is autoimmune so if this proves to be the case then he will need insulin for the rest of his life. Worry not life can go on as normal with a few tweaks 🙂
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