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neuroglycopenia
- Thread starter bujanin
- Start date
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
Have you been diagnosed with this condition and have you been offered any ways in which you can avoid the symptoms.
There is a fair bit on the internet about the condition but that is not quite the same as hearing from people with similar experience.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
Seems like this is referring to the impact on the brain of severe hypoglycaemia
I found this definition:
Neuroglycopenia is a shortage of glucose (glycopenia) in the brain, usually due to hypoglycemia. Glycopenia affects the function of neurons, and alters brain function and behavior. Prolonged or recurrent neuroglycopenia can result in loss of consciousness, damage to the brain, and eventual death
It’s also mentioned on this DUK page for Healthcare Professionals about supporting people who are struggling with theie experience of hypos
www.diabetes.org.uk
It’s not a term I have heard often - where did you come across it?
I found this definition:
Neuroglycopenia is a shortage of glucose (glycopenia) in the brain, usually due to hypoglycemia. Glycopenia affects the function of neurons, and alters brain function and behavior. Prolonged or recurrent neuroglycopenia can result in loss of consciousness, damage to the brain, and eventual death
It’s also mentioned on this DUK page for Healthcare Professionals about supporting people who are struggling with theie experience of hypos
Chapter 4 - Fear of hypoglycaemia (and other diabetes-specific fears)
Key messages This chapter focuses mainly on fear of hypoglycaemia. Other diabetes-specific fears (worries about complications, and fear of hyperglycaemia and needles) are briefly described.
It’s not a term I have heard often - where did you come across it?
Lucyr
Well-Known Member
- Relationship to Diabetes
- Type 1
Can’t imagine any diabetic would ever use this term, as it just relates to the impact of hypos on the brain. We all know hypos affect the brain but just call them hypos.
Is there some context as to why you need to learn about this term?
Thank you all for your replies.
It has been suggested that I might be neuroglycopenic without severe hypoglycemia. I am due to speak with my specialist soon and I cannot understand how, based on cgm readings - that do not show severe hypoglycemia - this can be a concern.
Of course I have searched the condition and I have none of the symptoms - I don't have severe hypoglycemia and I never feel dizzy or particularly confused and in no way do I think that my behaviour is inappropriate. My control is good and my numbers are in line with the numbers that the ADA and BDA suggest as being optimal. So it's a bit of a bolt out of the blue and I am reaching out for anecdotal experience.
It has been suggested that I might be neuroglycopenic without severe hypoglycemia. I am due to speak with my specialist soon and I cannot understand how, based on cgm readings - that do not show severe hypoglycemia - this can be a concern.
Of course I have searched the condition and I have none of the symptoms - I don't have severe hypoglycemia and I never feel dizzy or particularly confused and in no way do I think that my behaviour is inappropriate. My control is good and my numbers are in line with the numbers that the ADA and BDA suggest as being optimal. So it's a bit of a bolt out of the blue and I am reaching out for anecdotal experience.
Lucyr
Well-Known Member
- Relationship to Diabetes
- Type 1
That sounds normal for hypos? Thats why we all have to wait 45 minutes after fixing a hypo before driving again, because our brain takes time to recover from low blood sugar. It isn’t 45 minutes after a severe hypo it’s after any reading under 4.0
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
If you have no symptoms why do you think or who suggested you may have that condition.
What does your CGM show.
What does your CGM show.
It's tricky to say too much Leadinglights but my cgm shows numbers in line with ADA and BDA recommendations.
Of course the cgm gives data points only, neuroglycopenia appears subjective and unquantifiable?
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
It sounds like they’re saying your previous bad hypos have caused longterm damage @bujanin I think @trophywench or @PattiEvans knew someone who underwent changes from hypo damage to the brain.
How could that be measurable though, on the basis of cgm readings?
My bloods have only measured normal readings that endocrinologists look at. I've had no brain scans even if that could determine any changes.
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
That particular man did have measurable brain damage from many many very severe deep hypos, couldn't be relied on to do anything so no chance of employment, complete change of personality and he seemed utterly unable to grasp how his behaviour and demeanor affected anyone else be they complete strangers or his own wife and daughter.
He was well known at and by their hospital.
He was well known at and by their hospital.
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
I don’t know @bujanin but I presume CGM readings would only be looked at to check for current hypos and control. How they would determine damage from previous hypos I’m not sure. My guess - and it is a guess - is that they would use more than one method to reach such a diagnosis, eg scans, psychological tests, reports from observers like family, friends and colleagues, etc.